MAC & Bronchiectasis Support Group

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Comments (478)

The Aeroclipse has a setting that can change from "breath actuated" mode to "non-actuated" meaning the...

https://connect.mayoclinic.org/comment/1267017/

Discussion: What brand of Nebulizer components are you using?

Support Group: MAC & Bronchiectasis

Posted: Mar 26 7:34am

Hi Irene, The Pari Vios works well for me. It is the first neb I've used...

https://connect.mayoclinic.org/comment/907030/

Discussion: MAC/NTM is Different for Everyone, Treatment might be different too

Support Group: MAC & Bronchiectasis

Posted: Aug 3, 2023

@carolinediehl yes, it should be your decision whether to treat MAC, assuming you have MAC. I...

https://connect.mayoclinic.org/comment/1265155/

Discussion: Does Infectious Disease need to be part of overall team?

Support Group: MAC & Bronchiectasis

Posted: Mar 23 5:34pm

I use a Pari trek s at home and for travel. It has been reliable. I...

https://connect.mayoclinic.org/comment/951277/

Discussion: What are your recommendations for travel nebulizer?

Support Group: MAC & Bronchiectasis

Posted: Oct 21, 2023

Amen! Just grabbed my new nebulizer - so lovely, battery operated, silent and fast. Philips InnoSpire...

https://connect.mayoclinic.org/comment/677041/

Discussion: Percussion Vests: Are you using one? Is it working for you?

Support Group: MAC & Bronchiectasis

Posted: Feb 2, 2022

@alleycatkate Hey Kate, when my journey started 2 plus years ago, I got my doc to...

https://connect.mayoclinic.org/comment/308166/

Discussion: Nebulizing Equipment

Support Group: MAC & Bronchiectasis

Posted: May 3, 2020

You could use 70% alcohol to sterilize the Aerobika. They list it as a way to...

https://connect.mayoclinic.org/comment/871481/

Discussion: Travel advice

Support Group: MAC & Bronchiectasis

Posted: Jun 3, 2023

sueinmn ...... I'm interesting in your information about a nebulizer with the faster delivery. I am...

https://connect.mayoclinic.org/comment/289038/

Discussion: 7% Saline Solution

Support Group: MAC & Bronchiectasis

Posted: Jan 9, 2021

Many people like the affordable PARI Trek for travel, available with AC adapter and/or rechargeable lithium...

https://connect.mayoclinic.org/comment/1216919/

Discussion: Looking for a decent portable nebulizer

Support Group: MAC & Bronchiectasis

Posted: Jan 19 8:17pm

I have Pari Green and Pro Neb from Pari. Used with sprint cups. I have found...

https://connect.mayoclinic.org/comment/886406/

Discussion: Nebulizer recommendation

Support Group: MAC & Bronchiectasis

Posted: Jun 28, 2023

Linda, I’m currently reading your book the be clear method. I know you said you use...

https://connect.mayoclinic.org/comment/865059/

Discussion: Why is breath holding important during airway clearance?

Support Group: MAC & Bronchiectasis

Posted: May 23, 2023

I agree about vinegar not disinfecting well. That is why I had been using alcohol. I...

https://connect.mayoclinic.org/comment/821642/

Discussion: Again, which nebulizer...HELP!!

Support Group: MAC & Bronchiectasis

Posted: Mar 6, 2023

I think we all have differing experiences with our nebulizers. Over many years, I have tried...

https://connect.mayoclinic.org/comment/617005/

Discussion: Living Dangerously - Nebulizer Cleaning

Support Group: MAC & Bronchiectasis

Posted: Jul 16, 2021

For a couple years after my diagnosis, I use the Pari trek S but then switched...

https://connect.mayoclinic.org/comment/865279/

Discussion: Why is breath holding important during airway clearance?

Support Group: MAC & Bronchiectasis

Posted: May 23, 2023

I use the old-fashioned Pari Vios, that I call the mean green machine. My current one...

https://connect.mayoclinic.org/comment/616741/

Discussion: Have you had your water tested?

Support Group: MAC & Bronchiectasis

Posted: Jul 15, 2021

I have tried two smaller, more portable units than the 10 year old Pari, but I...

https://connect.mayoclinic.org/comment/325325/

Discussion: Nebulizer: What model do you like?

Support Group: MAC & Bronchiectasis

Posted: Oct 15, 2020

alleycatkate I too would like to know more about the two different types of nebulizing equipment....

https://connect.mayoclinic.org/comment/308161/

Discussion: Nebulizing Equipment

Support Group: MAC & Bronchiectasis

Posted: May 3, 2020

Hi @anniepie Yes the trail included a pari E flow, a fantistic machine which delivers the...

https://connect.mayoclinic.org/comment/67148/

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Feb 5, 2021

Hello, I will be traveling to Africa/Tanzania is a few weeks. I use an Aerobika with...

https://connect.mayoclinic.org/comment/1219706/

Discussion: Looking for a decent portable nebulizer

Support Group: MAC & Bronchiectasis

Posted: Jan 23 11:42am

@lindam272 Did you also get the nebulizer thru Medicare Part B at the same time as...

https://connect.mayoclinic.org/comment/597273/

Discussion: 7% Saline Solution

Support Group: MAC & Bronchiectasis

Posted: Apr 26, 2021