MAC & Bronchiectasis: Discussions

Hello! I have Crohn`s for 25 years, gastroparesis for 8 years, GERD, osteoporosis and Bronchiectasis. Recently,...

https://connect.mayoclinic.org/comment/1322970/

Discussion: Crohn's Disease, Bronchiectasis, and Biologics

Posted: Jun 8 12:01pm

you probably also had the blood tests Crohn,Celiac,colitis sound possible to me https://www.mayoclinic.org/diseases-conditions/celiac-disease/symptoms-causes/syc-20352220 Potential causes of...

https://connect.mayoclinic.org/comment/1292450/

Discussion: MAC Without Respiratory Distress with Weight Loss of 25 lbs

Support Group: MAC & Bronchiectasis

Posted: Apr 29 7:23am

My Smarvest setting is 30%. I start with 8 Hz and then increases to 10 Hz...

https://connect.mayoclinic.org/comment/1088858/

Discussion: Vest therapy and spinal compression fractures

Support Group: MAC & Bronchiectasis

Posted: Jun 17, 2024

I have several spinal compression fractures due to osteoporosis secondary to Crohn`s disease. I am 64...

https://connect.mayoclinic.org/comment/1088733/

Discussion: Vest therapy and spinal compression fractures

Support Group: MAC & Bronchiectasis

Posted: Jun 17, 2024

Welcome to the group. I am sorry you have to be here! I hope you'll find...

https://connect.mayoclinic.org/comment/1322312/

Discussion: Crohn's Disease, Bronchiectasis, and Biologics

Support Group: MAC & Bronchiectasis

Posted: Jun 7 12:41pm

I have Crohn's in remission on humira, and BE, & MAC being treated w Azithromycin, ethambutol...

https://connect.mayoclinic.org/comment/1323741/

Discussion: Covid booster with autoimmune disease AND bronchiectasis

Support Group: MAC & Bronchiectasis

Posted: Jun 9 1:30pm

Hi @jeff0198 -- I wanted to chime in with others here & encourage you to help...

https://connect.mayoclinic.org/comment/1359057/

Discussion: Recurring Pneumonia after MAC

Support Group: MAC & Bronchiectasis

Posted: Jul 29 8:53am

There is a correlation between BE and autoimmunity -- especially RA and inflammatory bowel disease, Crohn's...

https://connect.mayoclinic.org/comment/1345294/

Discussion: Does anyone have BE, MAI, with Rheumatoid Arthritis?

Support Group: MAC & Bronchiectasis

Posted: Jul 10 2:54pm

The leader is indeed insane and a bully. But there's also good information there. I take...

https://connect.mayoclinic.org/comment/1322192/

Discussion: Lung Matters Protocol

Support Group: MAC & Bronchiectasis

Posted: Jun 7 10:14am

Thank you for sharing your experience. I'm glad you maintain an active life in NYC despite...

https://connect.mayoclinic.org/comment/1324822/

Discussion: Crohn's Disease, Bronchiectasis, and Biologics

Support Group: MAC & Bronchiectasis

Posted: Jun 11 9:13am

Thank you for responding, fellow Crohnie! You are dealing with a lot.

https://connect.mayoclinic.org/comment/1324819/

Discussion: Crohn's Disease, Bronchiectasis, and Biologics

Support Group: MAC & Bronchiectasis

Posted: Jun 11 9:10am

Hi ... I am in a study taking ethambutol + Azithromycin and either arikayce or placebo...

https://connect.mayoclinic.org/comment/1345634/

Discussion: Does anyone have BE, MAI, with Rheumatoid Arthritis?

Support Group: MAC & Bronchiectasis

Posted: Jul 11 7:31am

Hi and welcome, there are a few of us here with autoimmune conditions who have posted...

https://connect.mayoclinic.org/comment/1323767/

Discussion: Crohn's Disease, Bronchiectasis, and Biologics

Support Group: MAC & Bronchiectasis

Posted: Jun 9 2:08pm

After Covid my skin worsened. I had never been properly diagnosed to determine whether I had...

https://connect.mayoclinic.org/comment/1327029/

Discussion: Eczema or Hives/Atopic Dermatitis + Bronchiectasis

Support Group: MAC & Bronchiectasis

Posted: Jun 14 11:17am

It seems the experience and expertise are so widely variable and in my experience, even in...

https://connect.mayoclinic.org/comment/1183552/

Discussion: Environmental causes of bronchiectasis?

Support Group: MAC & Bronchiectasis

Posted: Dec 2, 2024

I take Stelara an immune suppressant. I have 3 autoimmune diseases MAS. I do the injections...

https://connect.mayoclinic.org/comment/1153271/

Discussion: Pneumonia and flu vaccines

Support Group: MAC & Bronchiectasis

Posted: Oct 7, 2024

Actually a bit complicated. It was my GI doc who referred me to the bronchiectasis team...

https://connect.mayoclinic.org/comment/1097131/

Discussion: Bronchiectatis with dry cough

Support Group: MAC & Bronchiectasis

Posted: Jun 30, 2024

An open question to anyone who has been on Clofazimine meds for MAC/MAI: Did you ever...

https://connect.mayoclinic.org/comment/604592/

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: May 25, 2021

@crepassNever heard of that, and I am the queen of dental work- crowns, bridges, implants etc.....

https://connect.mayoclinic.org/comment/290405/

Discussion: My dentist suggest delaying crown until definitive diagnosis of MAC?

Support Group: MAC & Bronchiectasis

Posted: Jan 16, 2020

@sueinoregon Keep plugging Sue. I am also from Oregon, (Lincoln County) Sounds to me like you...

https://connect.mayoclinic.org/comment/215257/

Discussion: New Diagnosis of MAC/MAI & I'm scared

Support Group: MAC & Bronchiectasis

Posted: Sep 10, 2018

MAC & Bronchiectasis Support Group