Liver Cancer Support Group

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Comments (116)

According to this internet "Healthcare providers don’t use CEA tests to diagnose cancer. But the tests...

https://connect.mayoclinic.org/comment/1216879/

Discussion: Looking for advice/help with gallbladder/liver cancer symptoms

Support Group: Liver Cancer

Posted: Jan 19, 2025

Dear Sunflower 88: In preparation for potentially curative surgery in October for extrahepatic bile duct cancer...

https://connect.mayoclinic.org/comment/1126144/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: Aug 18, 2024

Recently diagnosed with Stage 4 colangiocarcinoma. Absolutely no symptoms or risk factors. Was treated until last...

https://connect.mayoclinic.org/comment/1280684/

Discussion: Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?

Support Group: Liver Cancer

Posted: Apr 13, 2025

Willow7799, Have you gotten a second opinion? Is UMMC designated by the National Cancer Institute as...

https://connect.mayoclinic.org/comment/1117726/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: Aug 4, 2024

My husband as been dealing with bile duct cancer starting in April. A long road, now...

https://connect.mayoclinic.org/comment/787988/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: Dec 23, 2022

@colleenyoung I only had chemo for 3 months as my port became infected. A new lesion...

https://connect.mayoclinic.org/comment/1490378/

Discussion: Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?

Support Group: Liver Cancer

Posted: Jan 25 1:48pm

Hello ms Kristen i was diagnosed in 2017 with CC, Mine was bile duct at the...

https://connect.mayoclinic.org/comment/669717/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: Jan 10, 2022

Hello Carmen @carmita, Thank you for the private message. I thought I would respond to you...

https://connect.mayoclinic.org/comment/1203502/

Discussion: Anyone taking Tibsovo (ivosidenib) for bile duct cancer?

Support Group: Liver Cancer

Posted: Jan 4, 2025

I was diagnosed with bile duct cancer that went to the pancreas in 2018. I had...

https://connect.mayoclinic.org/comment/1072274/

Discussion: Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?

Support Group: Liver Cancer

Posted: May 21, 2024

I had surgery at Mayo in 2017. The took out half my liver, gallbladder and reconnected...

https://connect.mayoclinic.org/comment/160125/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: Sep 15, 2020

Hi from Minneapolis. I was diagnosed early March 2018 after I had my gallbladder removed. I...

https://connect.mayoclinic.org/comment/160126/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: Sep 15, 2020

@demooretucson I took Capecitabine for bile duct cancer. I had a total of 34 rounds of...

https://connect.mayoclinic.org/comment/1109565/

Discussion: Did you have with chemo/radiation prior to distal bile duct surgery?

Support Group: Liver Cancer

Posted: Jul 21, 2024

I have Bile Duct Cancer which spread to my liver. I did a year of chemotherapy...

https://connect.mayoclinic.org/comment/798400/

Discussion: Living with Stage 4 Liver Cancer

Support Group: Liver Cancer

Posted: Jan 18, 2023

I also have Cholangiocarcinoma and live in Houston. I have received Chemotherapy consisting of the drugs...

https://connect.mayoclinic.org/comment/787698/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: Dec 22, 2022

Diagnosed April ‘24, surgery June. We chose wait and see with 90 day MRI. September MRI...

https://connect.mayoclinic.org/comment/1165097/

Discussion: Newly diagnosed with liver cancer, having trouble coping

Support Group: Liver Cancer

Posted: Oct 30, 2024

My mom found out she had cancer in november 2023 and in January t2024 they recently...

https://connect.mayoclinic.org/comment/1010403/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: Feb 5, 2024

We have not had direction from our local team. We had a phone call from Bob's...

https://connect.mayoclinic.org/comment/782848/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: Dec 9, 2022

I have ( as i see it) been active. I was a cancer patient since I...

https://connect.mayoclinic.org/comment/670486/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: Jan 13, 2022

My husband is 56. His only symptom was extreme fatigue. He thought he was having an...

https://connect.mayoclinic.org/comment/1351865/

Discussion: Husband recently diagnosed with Cholangiocarcinoma and had no symptoms

Support Group: Liver Cancer

Posted: Jul 19, 2025

I am John, living in Houston. I was diagnosed with Cholangiocarcinoma a year ago. My first...

https://connect.mayoclinic.org/comment/788453/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: Dec 24, 2022

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