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Head & Neck Cancer Support Group

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Discussions (77)
Tonsil cancer?
Hi all, In January this year I developed a sore throat and noticed that a small hole had appeared near my right tonsil with a...
Support Group: Head & Neck Cancer
Last active: Jun 28, 2024
Post tonsil cancer
Hi everyone. First post here. My name is Paul and I just turned 42. I was diagnosed with tonsil cancer in July 2025. Did 35...
Support Group: Head & Neck Cancer
Last active: Jan 21 9:55pm
Enlarged Tonsil -- Cancer?
Had a sensation of something stuck in throat. Went to ENT 4 mos ago and was diagnosed as reflux (ENT did not scope). Got medication....
Last active: May 25, 2025
Proton versus Photon for HPV tonsil cancer
I have stage 2 HPV related cancer in my left tonsil that has spread to the lymph node. PET scan shows no other cancer. I'm...
Support Group: Head & Neck Cancer
Last active: Apr 18 2:35pm
Anyone have experience with tonsil cancer reccurrence?
Hello all, does anyone have any experience with tonsil reoccurrence?
Support Group: Head & Neck Cancer
Last active: Sep 26, 2024
Dental issues after radiation for tonsil cancer?
I am a year out from radiation and chemo for tonsil cancer. Treatments followed two surgeries, the first was biopsies and tonsillectomy. I was intubated...
Support Group: Head & Neck Cancer
Last active: Sep 8, 2024
Just Diagnosed with Tonsil Cancer - How to Treat?
I've just been diagnosed with stage three tonsil cancer on Feb 22nd. 63 year old male. Have seen the surgical oncologist and the radiology oncologist,...
Support Group: Head & Neck Cancer
Last active: May 9 1:58pm
Tonsil Cancer from HPV: Anyone else?
I discovered I had a tumor on my right tonsil in April and it had moved to one lymph node - I had robotic surgery...
Support Group: Head & Neck Cancer
Last active: Feb 23, 2025
Just diagnosed with Squamous Cell Tonsil cancer without a biopsy
My husband had a sore throat for several months. He finally saw his internist who noticed a spot on his tonsil. He was referred to...
Support Group: Head & Neck Cancer
Last active: Jan 9, 2024
Husband diagnosed with tonsil cancer: looking for tips and support
I am writing for my husband who was recently diagnose with Tonsil Cancer. He finished the biopsy and PET scan but we do not know...
Support Group: Head & Neck Cancer
Last active: Jan 12, 2025
What is the probability of reccurrence with T1N1 tonsil cancer?
Can anyone speak to the probability of reoccurrence with T1N1 tonsil cancer?
Support Group: Head & Neck Cancer
Last active: Dec 8, 2024
Tonsil Cancer in 2010: Dealing with multiple late side effects
In 2010 I had radiation and Chemo treatment for tonsil cancer. I have had several side affects such as Radiation Induced Brachial Plexopathy. severe dysphagia,...
Support Group: Head & Neck Cancer
Last active: Mar 17 6:08pm
HPV Tonsil Cancer: How do you manage the stigma?
I don't know about the rest of you, but where I live, I feel I'm the only one with HPV Tonsil Cancer. I'm sure some...
Support Group: Head & Neck Cancer
Last active: Jul 28 11:40pm
Your tips for recovery after 35 radiation treatments for tonsil cancer
Just completed 35 radiation treatments for HPV positive tonsil cancer at stage 1. I am frustrated with the pain, dry throat, medications and the duration...
Support Group: Head & Neck Cancer
Last active: Mar 15 2:53pm
ENT recs non-network surgeon for tonsil cancer - will ins help?
Husband (63) just dx'd with stage 1 SQUAMOUS CELL CARCINOMA, P16 POSITIVE from biopsy. ENT recommended a surgeon from Univ Hosp to consult. This doc...
Support Group: Head & Neck Cancer
Last active: Jun 20, 2025
HPV Tonsil cancer: I'm very nervous about chemo and radiation
In June of 2024 I was diagnosed with HPV+ tonsil cancer. I have been doing an alternative approach but believe it is not working and...
Support Group: Head & Neck Cancer
Last active: Mar 19 11:56am
Recently diagnosed with cancer on left tonsil with swollen lymph nodes
The only treatment options i have been offered is chemo and radiation. Radiation 5 times a week for 7 weeks and chemo once a week...
Support Group: Head & Neck Cancer
Last active: Dec 29, 2023
HPV tonsil, throat cancer spread to lymph node chains & clumped
This has exploded out of the neck and is inoperable. First round of aggressive Chemotherapy was given. Extreme fatigue has resulted while waiting for second...
Support Group: Head & Neck Cancer
Last active: Oct 31, 2025
Late effect stage 4 tonsil & tongue cancer 18 years ago
I have questions/comments I need some input about which I can’t seem to find. I am 18 years out from surgery, chemo and radiation. I...
Support Group: Head & Neck Cancer
Last active: Apr 19, 2025
Did you lose your hair with chemo and radiation?
Did everyone lose their hair with tonsil cancer. Does it just thin or all come out for a man?
Support Group: Head & Neck Cancer
Last active: Feb 9, 2024