Support Groups

Head & Neck Cancer Support Group

Public Support Group
359 total results
Discussions (17)
Strange taste - change in taste
I had a radical tonsillectomy in April to remove a HPV tumor on my right tonsil- had left removed as well - just to be...
Support Group: Head & Neck Cancer
Last active: Feb 22, 2024
Taste Buds Not Quite Right
I had a radical tonsillectomy and neck dissection in April due to a tumor on my tonsil from HPV. I did not have radiation. That...
Support Group: Head & Neck Cancer
Last active: Dec 27, 2023
When will my sense of taste and smell return?
I've had chemo and radiation for my throat cancer. It's been three weeks now since I've had my last treatments, and I'm wondering when anyone...
Support Group: Head & Neck Cancer
Last active: Mar 17 2:00pm
Mouth sores, no taste and no saliva and other side effects
I was diagnosed with Squamous Cell Carcinoma of base of tongue. Level II and Level III nodes less than 1cm. in October 2015. I started...
Support Group: Head & Neck Cancer
Last active: Jun 1, 2017
How long before my taste buds recover after H&N treatments?
I have completed 35 treatments of radiation and chemotherapy two weeks ago for squamous cell cancer in my tongue and lymph node. I’m just wondering...
Support Group: Head & Neck Cancer
Last active: Oct 2, 2024
Extranodal marginal zone lymphoma
Hi, I was recently diagnosed with extranodal marginal zone lymphoma to the base of tongue and palatine tonsils. I also have Sjogren's Syndrome and Lymphocytic...
Support Group: Cancer
Last active: Feb 15, 2024
Depression and anxiety, and Head & Neck Cancer
Hello, everyone.Recently I attended a talk by a health psychologist who sympathised greatly with the stress suffered by head and neck cancer patients. She gave...
Support Group: Head & Neck Cancer
Last active: Jul 11, 2018
Does acupuncture help saliva glands damaged from radiation?
I had cancer in soft palate of mouth and left tonsil and it went to lymph node on left side of neck received chemo and...
Support Group: Head & Neck Cancer
Last active: Apr 8 9:17am
Nutrition and Cancer: Getting protein in my diet
I am having difficulty getting enough protein in my diet. I can't 'break down' chicken, due to no saliva. I can tolerate beef if rare...
Last active: Feb 10, 2022
Difficulty swallowing meds: Resorted to DIY pharmaceutical compounding
I was irradiated for cancer of the nasopharynx in the mid-1970s. Over the years it has gotten increasingly difficult for me to swallow food and...
Support Group: Digestive Health
Last active: May 2, 2024
Gastrostomy Tube (G-Tube): Difficulty finding a formula that works
My husband is currently starting week 4 of his 7 week treatment with Cistplatin and radiation but is having the worst time with finding a...
Support Group: Head & Neck Cancer
Last active: Apr 14, 2024
Seeking advice for eating challenges
Good morning, I am recovering from oropharyngeal cancer radiation treatment which ended late last July. I have been working with a swallow therapist but am...
Support Group: Head & Neck Cancer
Last active: May 26, 2024
Tonsil Cancer from HPV
I discovered I had a tumor on my right tonsil in April and it had moved to one lymph node - I had robotic surgery...
Support Group: Head & Neck Cancer
Last active: Feb 23 10:15am
Throat Pain Help
Hey everyone, My husband just finished week 3 of proton radiation (15x) and his 3rd round of chemo. We’ve got 4 more weeks to go—4...
Support Group: Head & Neck Cancer
Last active: Mar 21 10:54am
Post Treatment Questions: low RBC and dealing with throat pain
Hi everyone,My husband completed 7 weeks of Cisplatin and radiation on April 5th. As expected the first several weeks after were the worst but he...
Support Group: Head & Neck Cancer
Last active: Jun 25, 2024
Soft Food Suggestions
Head and neck cancer patients have a unique challenge in dealing with limited food options. I had such a struggle finding food that was soft...
Support Group: Head & Neck Cancer
Last active: Nov 10, 2022
Tonsil cancer?
Hi all, In January this year I developed a sore throat and noticed that a small hole had appeared near my right tonsil with a...
Support Group: Head & Neck Cancer
Last active: Jun 28, 2024