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Head & Neck Cancer Support Group

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Discussions (28)
Strange taste - change in taste
I had a radical tonsillectomy in April to remove a HPV tumor on my right tonsil- had left removed as well - just to be...
Support Group: Head & Neck Cancer
Last active: Feb 22, 2024
Taste Buds Not Quite Right
I had a radical tonsillectomy and neck dissection in April due to a tumor on my tonsil from HPV. I did not have radiation. That...
Support Group: Head & Neck Cancer
Last active: Dec 27, 2023
When will my sense of taste and smell return?
I've had chemo and radiation for my throat cancer. It's been three weeks now since I've had my last treatments, and I'm wondering when anyone...
Support Group: Head & Neck Cancer
Last active: May 2, 2025
Mouth sores, no taste and no saliva and other side effects
I was diagnosed with Squamous Cell Carcinoma of base of tongue. Level II and Level III nodes less than 1cm. in October 2015. I started...
Support Group: Head & Neck Cancer
Last active: Jun 1, 2017
Why can't I recover? Can't swallow, smell or taste
7 yrs after tonsil Carcinoma I still have open wound in my mouth, can't swallow or taste
Support Group: Head & Neck Cancer
Last active: Sep 26, 2025
How long before my taste buds recover after H&N treatments?
I have completed 35 treatments of radiation and chemotherapy two weeks ago for squamous cell cancer in my tongue and lymph node. I’m just wondering...
Support Group: Head & Neck Cancer
Last active: Oct 2, 2025
Extranodal marginal zone lymphoma
Hi, I was recently diagnosed with extranodal marginal zone lymphoma to the base of tongue and palatine tonsils. I also have Sjogren's Syndrome and Lymphocytic...
Support Group: Cancer
Last active: Feb 15, 2024
What foods worked best during chemo & radiation for throat cancer?
Hi all! I’m looking for suggestions on how to help my dad eat more during his treatments for throat cancer. He’s getting chemo & radiation...
Support Group: Head & Neck Cancer
Last active: Jan 19 10:21am
Has anyone gone through the 30gy DART therapy, what is recovery like?
I was diagnosed with HPV tonsil cancer SCC. Did TORS surgery with neck dissection. All margins clear but tumor had PNI-peri neural involvement. They are...
Support Group: Head & Neck Cancer
Last active: Feb 5 7:06am
Swelling at site of tumour 6 weeks post radiation
I am 6 weeks post 35 sessions radiation for HPV + tonsil cancer T2N0. Have had all the usual after effects but fortunately not to...
Support Group: Head & Neck Cancer
Last active: Dec 11, 2025
Does acupuncture help saliva glands damaged from radiation?
I had cancer in soft palate of mouth and left tonsil and it went to lymph node on left side of neck received chemo and...
Support Group: Head & Neck Cancer
Last active: Apr 21, 2025
Nutrition and Cancer: Getting protein in my diet
I am having difficulty getting enough protein in my diet. I can't 'break down' chicken, due to no saliva. I can tolerate beef if rare...
Last active: Feb 10, 2022
Difficulty swallowing meds: Resorted to DIY pharmaceutical compounding
I was irradiated for cancer of the nasopharynx in the mid-1970s. Over the years it has gotten increasingly difficult for me to swallow food and...
Support Group: Digestive Health
Last active: Oct 23, 2025
Vascular Issues Post-Treatment?
Hello, group. In 2015 I had 35 days of radiation and 3 rounds of cisplatin chemotherapy for stage IV oropharyngeal cancer. The tumor was at...
Support Group: Head & Neck Cancer
Last active: Aug 17, 2025
Seeking advice for eating challenges
Good morning, I am recovering from oropharyngeal cancer radiation treatment which ended late last July. I have been working with a swallow therapist but am...
Support Group: Head & Neck Cancer
Last active: May 26, 2024
Gastrostomy Tube (G-Tube): Difficulty finding a formula that works
My husband is currently starting week 4 of his 7 week treatment with Cistplatin and radiation but is having the worst time with finding a...
Support Group: Head & Neck Cancer
Last active: Apr 14, 2024
I am now post 8 months from my radiation treatment for throat cancer.
I am wondering if some of these symptoms are just part of the healing process. I assume they are but I just want to know...
Support Group: Head & Neck Cancer
Last active: Dec 18, 2025
Three months post treatment with Ongoing Mouth Pain
Hi everyone, I’m so grateful to have this forum! I’m a 43 year old female who received 35 rounds of radiation with chemo for metastatic...
Support Group: Head & Neck Cancer
Last active: Aug 24, 2025
Had a Biopsy of my Tongue
About a month ago felt discomfort on right side of tongue. Dentist checked said did not see anything go to ENT if continues. ENT ran...
Support Group: Head & Neck Cancer
Last active: Feb 7 5:26am
Tonsil Cancer from HPV
I discovered I had a tumor on my right tonsil in April and it had moved to one lymph node - I had robotic surgery...
Support Group: Head & Neck Cancer
Last active: Feb 23, 2025