Support Groups

Head & Neck Cancer Support Group

Public Support Group
307 total results
Discussions (15)
Strange taste - change in taste
I had a radical tonsillectomy in April to remove a HPV tumor on my right tonsil- had left removed as well - just to be...
Support Group: Head & Neck Cancer
Last active: Feb 22 3:26pm
Taste Buds Not Quite Right
I had a radical tonsillectomy and neck dissection in April due to a tumor on my tonsil from HPV. I did not have radiation. That...
Support Group: Head & Neck Cancer
Last active: Dec 27, 2023
Mouth sores, no taste and no saliva and other side effects
I was diagnosed with Squamous Cell Carcinoma of base of tongue. Level II and Level III nodes less than 1cm. in October 2015. I started...
Support Group: Head & Neck Cancer
Last active: Jun 1, 2017
How long before my taste buds recover after H&N treatments?
I have completed 35 treatments of radiation and chemotherapy two weeks ago for squamous cell cancer in my tongue and lymph node. I’m just wondering...
Support Group: Head & Neck Cancer
Last active: Oct 2 2:46pm
Extranodal marginal zone lymphoma
Hi, I was recently diagnosed with extranodal marginal zone lymphoma to the base of tongue and palatine tonsils. I also have Sjogren's Syndrome and Lymphocytic...
Support Group: Cancer
Last active: Feb 15 8:33pm
Depression and anxiety, and Head & Neck Cancer
Hello, everyone.Recently I attended a talk by a health psychologist who sympathised greatly with the stress suffered by head and neck cancer patients. She gave...
Support Group: Head & Neck Cancer
Last active: Jul 11, 2018
Does acupuncture help saliva glands damaged from radiation?
I had cancer in soft palate of mouth and left tonsil and it went to lymph node on left side of neck received chemo and...
Support Group: Head & Neck Cancer
Last active: Apr 10 7:39pm
Nutrition and Cancer: Getting protein in my diet
I am having difficulty getting enough protein in my diet. I can't 'break down' chicken, due to no saliva. I can tolerate beef if rare...
Last active: Feb 10, 2022
Gastrostomy Tube (G-Tube): Difficulty finding a formula that works
My husband is currently starting week 4 of his 7 week treatment with Cistplatin and radiation but is having the worst time with finding a...
Support Group: Head & Neck Cancer
Last active: Apr 14 9:43am
Seeking advice for eating challenges
Good morning, I am recovering from oropharyngeal cancer radiation treatment which ended late last July. I have been working with a swallow therapist but am...
Support Group: Head & Neck Cancer
Last active: May 26 12:56pm
Difficulty swallowing meds: Resorted to DIY pharmaceutical compounding
I was irradiated for cancer of the nasopharynx in the mid-1970s. Over the years it has gotten increasingly difficult for me to swallow food and...
Support Group: Digestive Health
Last active: May 2 8:05pm
Tonsil Cancer from HPV
I discovered I had a tumor on my right tonsil in April and it had moved to one lymph node - I had robotic surgery...
Support Group: Head & Neck Cancer
Last active: Mar 19 9:25am
Post Treatment Questions: low RBC and dealing with throat pain
Hi everyone,My husband completed 7 weeks of Cisplatin and radiation on April 5th. As expected the first several weeks after were the worst but he...
Support Group: Head & Neck Cancer
Last active: Jun 25 7:45am
Soft Food Suggestions
Head and neck cancer patients have a unique challenge in dealing with limited food options. I had such a struggle finding food that was soft...
Support Group: Head & Neck Cancer
Last active: Nov 10, 2022
Tonsil cancer?
Hi all, In January this year I developed a sore throat and noticed that a small hole had appeared near my right tonsil with a...
Support Group: Head & Neck Cancer
Last active: Jun 28 2:22pm