Support Groups

Head & Neck Cancer Support Group

Lock icon Public Support Group
Clear Search
512 total results
Discussions (77)
Husband shutting down emotionally
My husband is almost finished his treatment for SCC Tonsil/base of tongue HPV+ cancer. He is not communication and is actually being quite abusive towards...
Support Group: Head & Neck Cancer
Last active: Dec 27, 2022
Second PET scan after treatment.
My husband finished treatment for HPV+ SCC base of tongue and left tonsil in Dec 2022. He had a PET scan early April which still...
Support Group: Head & Neck Cancer
Last active: Jul 14, 2023
Does acupuncture help saliva glands damaged from radiation?
I had cancer in soft palate of mouth and left tonsil and it went to lymph node on left side of neck received chemo and...
Support Group: Head & Neck Cancer
Last active: Apr 21, 2025
Annual Testing - Long Term Survivors
I was diagnosed and treated in 2008. Cancer in tonsil. SCC. I don't know the root cause (HPV/other). 33 radiation. 6 chemo cisplatin & taxol....
Support Group: Head & Neck Cancer
Last active: Jul 29 10:01am
Seeking Support: First Mayo Appointment for Husband's Cancer
Hi everyone,My husband and I are feeling a bit anxious as we prepare for his first appointment at the Mayo Clinic in Rochester, and we'd...
Support Group: Head & Neck Cancer
Last active: Feb 22, 2025
Long Term Head and Neck Cancer radiation side effects
Hello. In 2008 I was diagnosed and treated for squamous cell cancer in the left tonsil. I have the expected long term side effects....dry mouth,...
Support Group: Head & Neck Cancer
Last active: Oct 23, 2024
Left Tonsil Swollen
Hello!I am posting because I am scared, as I imagine many other are who post here. I have been struggling with sinus/nasal congestion in my...
Last active: Dec 23, 2020
Just 2 and a half weeks into recovery after 33 radiation treatments
I had 33 radiation treatments and 4 chemo treatments for HPV cancer of the left tonsil/base of neck area… last radiation hit was 2.5 weeks...
Support Group: Head & Neck Cancer
Last active: Jun 15 6:56am
One Year Since Symptoms Started - 3 months Cancer Free
WOW! A year ago I started feeling stabbing pain in my ear which turned out to be SCC HPV base of tongue/tonsil. I was diagnosed...
Support Group: Head & Neck Cancer
Last active: Sep 15, 2025
Missing late end radiation treatments due to uncontrollable coughing
My husband, 68 years old, has oropharyngeal cancer (Stage 2) of the tonsil HPV 16+ and has completed 6 rounds of a 6 chemo plan...
Support Group: Head & Neck Cancer
Last active: Mar 27, 2023
Has anyone researched Salivary Gland reconstruction?
As a lot of us are suffering from is damage done by radiation on our salivary gland(s). Has anyone been researching the possibility of restoring...
Support Group: Head & Neck Cancer
Last active: Dec 17, 2025
Would you get a Laryngectomy or stay with a Trach? How to cope?
Hello members. I've had cancer twice. 1st one was if the left vocal cord. 2nd one was in April 2018 base of the tongue and...
Support Group: Head & Neck Cancer
Last active: Apr 14, 2021
HPV squamous cell throat cancer: Soft palate isn't working
I had my surgery on 12/2021 which started in the left tonsil and traveled to the back of the tongue , some of the soft...
Support Group: Head & Neck Cancer
Last active: May 6 8:31am
When to return to work after radiation ends
I am a 60 year old female I had my right tonsil removed in February 2024, CT scan prior to removal had shown no cancer...
Support Group: Head & Neck Cancer
Last active: Jun 19, 2024
Thank God for Hope-Miracles and Mashed Potatoes & Gravy
Hi everyone, I am Julie, 18 years out from Stage 4 tonsil and tongue “HPV” cancer. I can legitimately say I have experienced just about...
Support Group: Head & Neck Cancer
Last active: Nov 27, 2025
Radiation side effects with H&N cancer. When will they ever end?
After receiving a full course of radiotherapy for squamous cell carcinoma to the left tonsil area, lingering side effects had to be faced. My very...
Support Group: Head & Neck Cancer
Last active: Jun 9 5:32pm
Seeking alternatives to Radiation post-TORS tonsillectomy
I am a 54 y.o. male patient 3 weeks post TORS with radical tonsillectomy and right neck dissection. Surgical report indicated HPV+ SCC tumor 1.6cm...
Support Group: Head & Neck Cancer
Last active: Apr 6, 2025