Connect
Public Support Group 1,045 total results
Discussions (50)
Anyone experience Laryngeal chondroradionecrosis years post treatment?
I had been treated with radiation and chemotherapy for SCC base of tongue in 2009. I had many side effects from radiation including osteoradionecrosis of...
HPV 16 neck cancer journey…
57 years old, male, typical patient for HPV cancer…Found lump back in October. Lymph node, left side near jaw. Did all the usual procedures, antibiotics...
Post treatment for SCC tongue cancer following 7 weeks radiation
My husband finished 7 weeks of radiation therapy for SCC at the base of his tongue with 6 chemo treatments. He now suffers from severe...
How long before my taste buds recover after H&N treatments?
I have completed 35 treatments of radiation and chemotherapy two weeks ago for squamous cell cancer in my tongue and lymph node. I’m just wondering...
Phlegm and Saliva filling in the mouth after tongue sarcoma
My husband had a sarcoma of the tongue and throat He was diagnosed in 10/20 and has been cured by radiation and immunotherapy. Now his...
Trach stoma not closing.
I had a tracheostomy due to stage four larynx cancer. I completed chemoradiation without surgery. The trach was removed in March 2022 but has not...
Recently diagnosed with cancer on left tonsil with swollen lymph nodes
The only treatment options i have been offered is chemo and radiation. Radiation 5 times a week for 7 weeks and chemo once a week...
Adenoid cystic carcinoma - left tongue base
Primary radiation Jan 2013 and re-radiation Oct 2016. CT Angio Apr 2017. to view deep ulcer in left tongue base which may be cancerous and...
Post tonsil cancer
Hi everyone. First post here. My name is Paul and I just turned 42. I was diagnosed with tonsil cancer in July 2025. Did 35...
Sore on tongue from treatments: What helps?
Hi everybody, My husband has 9 more radiation treatments & 1 more chemo to go. He is having bad pain due to a huge, quarter...
Anyone had a subtotal glossectomy? Willing to talk?
Hello! I am reaching out regarding information concerning my little brother. We are currently at the Mayo where he underwent a subtotal glossectomy with a...
HPV squamous cell throat cancer: Soft palate isn't working
I had my surgery on 12/2021 which started in the left tonsil and traveled to the back of the tongue , some of the soft...
Checking in again after starting treatment
Hi everybody. Just started my treatment for HPV-negative Base of Tongue Cancer. 6 of 35 radiation sessions done, 2 of 7 Chemos with Cisplatin done....
Soft Food Suggestions
Head and neck cancer patients have a unique challenge in dealing with limited food options. I had such a struggle finding food that was soft...
Struggling with shortness of breath and lump in throat
I’m new here so still a little lost. After two chemo sessions and 33 radiation treatments to my throat I am finding every day more...
Living with a trach (tracheostomy), need advice.
My situation is when carrying things, walking upstairs (unspecific other times also) it’s like I can’t get enough air, I’m breathing but it’s like not...
My mom is 80 and was diagnosed with cancer at the base of her tongue.
Mom has completed 6 weeks of radiation and chemotherapy and we go for her follow up PET scan results tomorrow. She is on a feeding...
Inability to swallow and never ending foamy saliva
My 76 yr old husband had TORS surgery for SCC (HPV 16+) of the tonsils, back of throat and base of tongue in late January....
How to deal with constant stress and worry as caregiver?
I feel guilty that i feel so much stress and constant worry when it's my husband going through the cancer. And we haven't even started...
What’s left after "cured" of nasopharyngeal cancer?
I was “cured” from my stage 4 non-small cell Nasopharyngeal carcinoma after 8 months of living hell treatments in 2012. After the forth dose of...
Connect