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Head & Neck Cancer Support Group

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Discussions (264)
Concerned Caregiver: Oral SCC lymph nodes involved
My mother(61) had her surgery to remove primary tumor at right trimolar region, neck dissection which had multiple lymph nodes positive with extra nodal extension...
Support Group: Head & Neck Cancer
Last active: Mar 12, 2025
Husband diagnosed with Squamous cell tumor on his neck.
After 5 weeks 19 treatments it fell off. He was in extreme pain after that during radiation because of the way they were positioning his...
Support Group: Head & Neck Cancer
Last active: Mar 11, 2024
Has anyone had lymph node transplant surgery?
I would love to hear from someone who has suffered with lymphedema and was able to have corrective surgery. I know it isn’t very common...
Support Group: Lymphedema
Last active: Oct 21, 2024
Extremely tired 6 weeks after finishing treatments chemo and radiatin
Hi there! My husband finished treatment 6 weeks ago ( radiation and chemotherapy for 7 weeks) for base of tongue hpv cancer. He was feeling...
Support Group: Head & Neck Cancer
Last active: Jun 6, 2025
Healing process after throat cancer treatments: What to expect?
My husband recently finished his metastatic squamous cell tongue cancer treatment , after 35 rounds of radiation and 6 rounds of chemo. His feeding tube...
Support Group: Head & Neck Cancer
Last active: Nov 3, 2025
Anyone dealing with long-term dysphagia and chronic cough?
Asking for my husband who is 61 and 12 years post chemo/radiation for stage IV scc base of tongue w/lymph node involvement. He is now...
Support Group: Head & Neck Cancer
Last active: Mar 18 10:55am
Anyone with osteoradionecrosis had hypobaric treatment prior surgery?
After 2 episodes of cancer surgery, first on my right jaw followed by 30 radiation treatments, then partial glossectomy of the tongue, I developed osteoradionecrosis....
Last active: Nov 5, 2025
Difficulty swallowing meds: Resorted to DIY pharmaceutical compounding
I was irradiated for cancer of the nasopharynx in the mid-1970s. Over the years it has gotten increasingly difficult for me to swallow food and...
Support Group: Digestive Health
Last active: Oct 23, 2025
How I was diagnosed with Parotid Gland Cancer (High-grade NETs)
I would like to share some of my symptoms I experienced when I was first diagnosed with High Grade Neuroendocrine Carcinoma in my parotid gland....
Last active: Feb 16, 2021
Checking in again after starting treatment
Hi everybody. Just started my treatment for HPV-negative Base of Tongue Cancer. 6 of 35 radiation sessions done, 2 of 7 Chemos with Cisplatin done....
Support Group: Head & Neck Cancer
Last active: Sep 28, 2024
Recurring squamous cell cancer
I had my lower right jaw and tumor removed in August + 44 lymph nodes on right side removed, then 35 radiation treatments and 5...
Support Group: Head & Neck Cancer
Last active: Mar 14, 2025
Going my way: Decided to stop cancer treatments
To make a 18 yr long story short, I was diagnosed with stage 3 breast cancer in Nov. of 2000 at the age of 48....
Support Group: Breast Cancer
Last active: Sep 5, 2023
What is the survival rate for 65 yr Male w/ squamous cell carcinoma
My husband was diagnosed in November of 2022 with left tongue squamous cell carcinoma. He had a partial glossectomy. He was doing great then in...
Support Group: Head & Neck Cancer
Last active: May 9, 2025
It's difficult to get used to the radial forearm free flap. Tips?
I have had a radial free flap grafted in my mouth. It is extremely difficult for me to get used to it and causes me...
Support Group: Head & Neck Cancer
Last active: Jun 17, 2021
How to deal with constant stress and worry as caregiver?
I feel guilty that i feel so much stress and constant worry when it's my husband going through the cancer. And we haven't even started...
Support Group: Head & Neck Cancer
Last active: Apr 30, 2024
Best muscle cream
I suffer from radiation damage due to throat cancer 10 years ago which causes neck spasms at least 5 times a day especially if I...
Last active: Jun 8, 2024
Would you get a Laryngectomy or stay with a Trach? How to cope?
Hello members. I've had cancer twice. 1st one was if the left vocal cord. 2nd one was in April 2018 base of the tongue and...
Support Group: Head & Neck Cancer
Last active: Apr 14, 2021
3 yrs in remission H & N cancer - Experiencing ear discomfort
Had exploratory surgery at Mayo to remove cancerous lymph nodes in Nov '21, followed by radiation and chemo. Squamous Cell Carcinoma (HPV Induced). Was told...
Support Group: Head & Neck Cancer
Last active: Dec 21, 2025
Husband diagnosed with tonsil cancer: looking for tips and support
I am writing for my husband who was recently diagnose with Tonsil Cancer. He finished the biopsy and PET scan but we do not know...
Support Group: Head & Neck Cancer
Last active: Jan 12, 2025
Husband fighting neck cancer, depressed and gloomy
My husband was diagnosed with oral cancer in July 2021, had extensive surgery to remove the tumor followed by chemo and radiation . 9 months...
Support Group: Caregivers
Last active: Nov 3, 2022