Head & Neck Cancer Support Group

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Comments (1,110)

I was stage 4 head and neck.. I went to cancer treatment center of America... I...

https://connect.mayoclinic.org/comment/791199/

Discussion: HPV P16 positive cancer

Support Group: Head & Neck Cancer

Posted: Jan 1, 2023

I just finished radiation nearly 3 weeks ago and I still can’t really taste anything, but...

https://connect.mayoclinic.org/comment/1572513/

Discussion: I just started radiation, what kind of side effects should I expect?

Support Group: Head & Neck Cancer

Posted: May 11 9:32pm

After 3 years from throat and neck radiation I still have blister problems in the roof...

https://connect.mayoclinic.org/comment/1270053/

Discussion: Mouth issues (blisters and gum swelling) years after radiation

Support Group: Head & Neck Cancer

Posted: Mar 30, 2025

Just starting my journey with tonsil cancer, had first round of chemo and 2 radiation so...

https://connect.mayoclinic.org/comment/841863/

Discussion: Meet others living with Head & Neck Cancer: Introduce yourself

Support Group: Head & Neck Cancer

Posted: Apr 12, 2023

I had the trots through my entire Radiationa and Chemo treatment. I thought it was due...

https://connect.mayoclinic.org/comment/1097488/

Discussion: Diarrhea as radiation side effect?

Support Group: Head & Neck Cancer

Posted: Jul 1, 2024

@mtborz I am sorry to hear about your husband's suffering and yours as well. I had...

https://connect.mayoclinic.org/comment/174550/

Discussion: Meet others living with Head & Neck Cancer: Introduce yourself

Support Group: Head & Neck Cancer

Posted: Nov 3, 2020

I was diagnosed in 2021 with nasalpharangeal cancer and in 2024 with tongue cancer. I had...

https://connect.mayoclinic.org/comment/1314392/

Discussion: Meet others living with Head & Neck Cancer: Introduce yourself

Support Group: Head & Neck Cancer

Posted: May 27, 2025

Thrilled that my husband’s small palate surgery went well, with so far no radiation/chemo needed. Will...

https://connect.mayoclinic.org/comment/1550129/

Discussion: Today I'm grateful for... (add yours below)

Support Group: Head & Neck Cancer

Posted: Apr 14 6:55am

@colleenyoung yes, but Greg has swallowing issues not jaw issues as well as baroreflex issues. There...

https://connect.mayoclinic.org/comment/1535278/

Discussion: Has anyone had surgery to remove scar tissue?

Support Group: Head & Neck Cancer

Posted: Mar 25 4:19pm

His coughing is not as bad l but he still has terrible mucous and secretions to...

https://connect.mayoclinic.org/comment/1072001/

Discussion: Horrible coughing fits

Support Group: Head & Neck Cancer

Posted: May 21, 2024

Mojo244, I can relate. I did not realize that I began not to swallow several months...

https://connect.mayoclinic.org/comment/817577/

Discussion: SCC HPV+ on right tonsil and nodes treatment plan.

Support Group: Head & Neck Cancer

Posted: Feb 26, 2023

I believe your doctor should realize that getting nutrition and swallowing are 2 different things. If...

https://connect.mayoclinic.org/comment/827064/

Discussion: SCC HPV+ on right tonsil and nodes treatment plan.

Support Group: Head & Neck Cancer

Posted: Mar 16, 2023

My husband completed treatment in 2011. Within the last 4 years he has lost pretty much...

https://connect.mayoclinic.org/comment/1513038/

Discussion: Anyone dealing with dysphagia? What helps?

Support Group: Head & Neck Cancer

Posted: Feb 23 5:29pm

Yes, that’s what happened to me as well but the therapist was still forcing me to...

https://connect.mayoclinic.org/comment/1044823/

Discussion: Inability to swallow and never ending foamy saliva

Support Group: Head & Neck Cancer

Posted: Apr 3, 2024

Me too, water is the worst. I need powdered drinks as well. I have noticed that...

https://connect.mayoclinic.org/comment/828387/

Discussion: HPV P16 positive cancer

Support Group: Head & Neck Cancer

Posted: Mar 19, 2023

I can’t taste anything. So my brain doesn’t know what it is and says don’t swallow....

https://connect.mayoclinic.org/comment/1092765/

Discussion: Are there ways to help me swallow better?

Support Group: Head & Neck Cancer

Posted: Jun 23, 2024

@taylorma I’m 7 1/2 years out from H&N tonsil cancer. I had surgery, radiation and chemo....

https://connect.mayoclinic.org/comment/1523942/

Discussion: Radiation side effects with H&N cancer. When will they ever end?

Support Group: Head & Neck Cancer

Posted: Mar 10 11:37am

I gargled baking soda, Salt and water mixture about every 2 hours or so. I believe...

https://connect.mayoclinic.org/comment/928088/

Discussion: Sore on tongue from treatments: What helps?

Support Group: Head & Neck Cancer

Posted: Sep 11, 2023

I am seeing a speech therapist to help with my speaking and eating. She is so...

https://connect.mayoclinic.org/comment/896202/

Discussion: Are there ways to help me swallow better?

Support Group: Head & Neck Cancer

Posted: Jul 15, 2023

I am interested in knowing if he finds a solution. I too have been on a...

https://connect.mayoclinic.org/comment/719888/

Discussion: Phlegm and Saliva filling in the mouth after tongue sarcoma

Support Group: Head & Neck Cancer

Posted: Jun 22, 2022

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