Head & Neck Cancer Support Group

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Comments (162)

Hi sandy8043 How often is Myofacial Release Massage is required to see or feel results? (I...

https://connect.mayoclinic.org/comment/1323712/

Discussion: Relief from Radiation Fibrosis Syndrome

Support Group: Head & Neck Cancer

Posted: Jun 9, 2025

This is so good to hear. I'm one year out and just now starting to have...

https://connect.mayoclinic.org/comment/1350259/

Discussion: Do I Dare Ask?

Support Group: Head & Neck Cancer

Posted: Jul 17, 2025

Almost a year since joining this "blog thread"..... so far, no good. 2015 radiation to my...

https://connect.mayoclinic.org/comment/1561448/

Discussion: Looking for help with radiation fibrosis; Tips?

Support Group: Head & Neck Cancer

Posted: Apr 28 6:22am

@roblem hear you - to me, it's a tough road ahead!! I was diagnosed and treated...

https://connect.mayoclinic.org/comment/1514444/

Discussion: Anyone dealing with dysphagia? What helps?

Support Group: Head & Neck Cancer

Posted: Feb 25 1:02pm

My expert with tongue cancer was similar to yours. I did radiation and cisplatin/chemo. The last...

https://connect.mayoclinic.org/comment/1161296/

Discussion: Diagnosed with tongue cancer (2nd cancer): Worried about treatment

Support Group: Head & Neck Cancer

Posted: Oct 23, 2024

Yes they had to rebuild my tongue. They transplanted skin from my breast. My tongue is...

https://connect.mayoclinic.org/comment/1341162/

Discussion: Had a Biopsy of my Tongue

Support Group: Head & Neck Cancer

Posted: Jul 4, 2025

Hi Sandy Since my onset and diagnosed in mid 2020 of dysphagia, dysarthria and severe neck...

https://connect.mayoclinic.org/comment/1207447/

Discussion: Looking for help with radiation fibrosis; Tips?

Support Group: Head & Neck Cancer

Posted: Jan 9, 2025

@lizzyj58 Thanks Lizzy, happy to hear he made it through it without alot of complications. I'm...

https://connect.mayoclinic.org/comment/1483925/

Discussion: How to fight cisplatin side effects like nausea & fatigue?

Support Group: Head & Neck Cancer

Posted: Jan 16 12:50pm

I had nasopharyngeal cancer treatment in early 2006, and the late effects started in 2012 -...

https://connect.mayoclinic.org/comment/1061477/

Discussion: Looking for help with radiation fibrosis; Tips?

Support Group: Head & Neck Cancer

Posted: May 3, 2024

The OT who does my Myo treatment is on staff at Mayo at the Cancer Center...

https://connect.mayoclinic.org/comment/1327144/

Discussion: Myofascial Release Therapy for longterm effects of cancer treatment

Support Group: Head & Neck Cancer

Posted: Jun 14, 2025

Hi Julie WoW ... kudos to you for braving and going through all these - and...

https://connect.mayoclinic.org/comment/1311112/

Discussion: Relief from Radiation Fibrosis Syndrome

Support Group: Head & Neck Cancer

Posted: May 23, 2025

@speseas Me too. I have the same problem. My neck feels like I have a bungee...

https://connect.mayoclinic.org/comment/1451528/

Discussion: Has anyone had surgery to remove scar tissue?

Support Group: Head & Neck Cancer

Posted: Dec 2, 2025

I'm just over 2 years post cancer. My tongue cancer surgery included reconstruction and neck dissection...

https://connect.mayoclinic.org/comment/1564338/

Discussion: Is it better to do DART Radiation after TORS Surgery or just Follow Up

Support Group: Head & Neck Cancer

Posted: May 1 5:07pm

@harleytiger I believe anything is a possible side effect from radiation. While I have dealt with...

https://connect.mayoclinic.org/comment/1513364/

Discussion: Insomnia after Neck Radiation

Support Group: Head & Neck Cancer

Posted: Feb 24 7:47am

I can talk and swallow though not as well as I would like and definitely not...

https://connect.mayoclinic.org/comment/1161406/

Discussion: Diagnosed with tongue cancer (2nd cancer): Worried about treatment

Support Group: Head & Neck Cancer

Posted: Oct 23, 2024

In Feb 2006 - I was diagnosed w/ nasopharyngeal carcinoma Stage IV, and commenced treatment in...

https://connect.mayoclinic.org/comment/1315216/

Discussion: Meet others living with Head & Neck Cancer: Introduce yourself

Support Group: Head & Neck Cancer

Posted: May 28, 2025

@jcl2018 Hear you ... I was treated for nasopharyngeal cancer in 2006, and in 2020 I...

https://connect.mayoclinic.org/comment/1403498/

Discussion: Anyone dealing with long-term dysphagia and chronic cough?

Support Group: Head & Neck Cancer

Posted: Sep 28, 2025

Actually I had the traditional radiation. I finished in early February of this year. My docs...

https://connect.mayoclinic.org/comment/1145112/

Discussion: Checking in again after starting treatment

Support Group: Head & Neck Cancer

Posted: Sep 21, 2024

I'm fighting the restricted mobility from fibrosis with daily excercises but it's a losing battle, bit...

https://connect.mayoclinic.org/comment/1378813/

Discussion: Looking for help with radiation fibrosis; Tips?

Support Group: Head & Neck Cancer

Posted: Aug 25, 2025

@trainwife I can understand your distress. Appearance is a big part of who we are and...

https://connect.mayoclinic.org/comment/1534955/

Discussion: Parotid gland tumor. Will need surgery. Your experience at Mayo?

Support Group: Head & Neck Cancer

Posted: Mar 25 9:11am

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