Head & Neck Cancer Support Group

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Comments (2,942)

Thank you, I think I’ve read one too many horror stories about all this neck cancer...

https://connect.mayoclinic.org/comment/1543399/

Discussion: HPV 16 neck cancer journey…

Support Group: Head & Neck Cancer

Posted: Apr 5 1:33pm

@logi My partial glossectomy with reconstruction with a free flap was Feb. 12th. I still have...

https://connect.mayoclinic.org/comment/1544724/

Discussion: Partial Glossectomy with free flap rebuild of tongue

Support Group: Head & Neck Cancer

Posted: Apr 7 9:12am

Going threw same thing radiation doctors first priority is they should tell you long term affects...

https://connect.mayoclinic.org/comment/1537117/

Discussion: Dentures plus implants after radiation

Support Group: Head & Neck Cancer

Posted: Mar 28 8:56am

@56tburd absolutely right on ... late side effects of radiation creeping up one by one !!...

https://connect.mayoclinic.org/comment/1529816/

Discussion: Anyone dealing with long-term dysphagia and chronic cough?

Support Group: Head & Neck Cancer

Posted: Mar 18 10:55am

Just to update, and full disclosure I'm doing the IMRT therapy here in Hawaii. Got those...

https://connect.mayoclinic.org/comment/1551767/

Discussion: Proton versus Photon for HPV tonsil cancer

Support Group: Head & Neck Cancer

Posted: Apr 16 8:07am

@roblem Thanks. I had 35 radiation treatments. I had to Google the comment. Glad to know...

https://connect.mayoclinic.org/comment/1485611/

Discussion: Severe long term side effects from head and neck radiation

Support Group: Head & Neck Cancer

Posted: Jan 18 12:02pm

@sepdvm There is so much in your post that is helpful to others. I had to...

https://connect.mayoclinic.org/comment/1523619/

Discussion: Do late effects of sinus radiation contribute to TBI/concussion?

Support Group: Head & Neck Cancer

Posted: Mar 10 12:55am

@kmlnj I should have said the longterm side effects of the radiation are on going. As...

https://connect.mayoclinic.org/comment/1485825/

Discussion: Severe long term side effects from head and neck radiation

Support Group: Head & Neck Cancer

Posted: Jan 18 3:51pm

Hi @kat63016, you've connected with just the right member @ltecato. I think you might both be...

https://connect.mayoclinic.org/comment/806352/

Discussion: Late side effects from Cobalt Radiation for Nasopharyngeal Cancer

Support Group: Head & Neck Cancer

Posted: Feb 4, 2023

You’ve been thru a lot and I certainly understand your hesitation about proton radiation. I’m hoping...

https://connect.mayoclinic.org/comment/267388/

Discussion: Synovial sarcoma: Proton or conventional radiation after surgery?

Support Group: Sarcoma

Posted: Jul 1, 2019

@deb26 I also went to UFHPTI for my prostate cancer treatment. I have posted many times...

https://connect.mayoclinic.org/comment/1221065/

Discussion: Squamous Cell Carcinoma in the eye orbit and on face

Support Group: Melanoma & Skin Cancer

Posted: Jan 25, 2025

Hi @pauley How long did it take after radiation treatments that your jaw fractured and also...

https://connect.mayoclinic.org/comment/1522504/

Discussion: Diagnosed with Ameloblastoma

Support Group: Head & Neck Cancer

Posted: Mar 8 1:12pm

Hi, there’s no doubt that radiation ruined his taste and saliva glands. He did not have...

https://connect.mayoclinic.org/comment/1069489/

Discussion: How long before my taste buds recover after H&N treatments?

Support Group: Head & Neck Cancer

Posted: May 17, 2024

Hi William, I had a T1N1 oropharyngeal SCC P16+ tumor removed last April with a right...

https://connect.mayoclinic.org/comment/1254803/

Discussion: What treatment options are available to reccurrence of H&N cancer?

Support Group: Head & Neck Cancer

Posted: Mar 10, 2025

Yes, I had TORS on 10/28/24 with a left side neck dissection. The margins came back...

https://connect.mayoclinic.org/comment/1544245/

Discussion: Anyone had surgery (TORS) with no radiation or chemo after?

Support Group: Head & Neck Cancer

Posted: Apr 6 2:56pm

@roblem I’d like to mention that I’m doing all of this and trying as much as...

https://connect.mayoclinic.org/comment/1561215/

Discussion: Has anyone had a palatal obturator? Does it help?

Support Group: Head & Neck Cancer

Posted: 10 hours ago

Hi @pauley thank you for sharing your story. It really hit me hard. I too have...

https://connect.mayoclinic.org/comment/1524952/

Discussion: Results of post radiation teeth extraction, implants and HBOT

Support Group: Head & Neck Cancer

Posted: Mar 11 10:34pm

I have radiation fibrosis as a result of treatment for tonsil cancer in 2003. This is...

https://connect.mayoclinic.org/comment/1497249/

Discussion: Has anyone had surgery to remove scar tissue?

Support Group: Head & Neck Cancer

Posted: Feb 3 12:22pm

@lilyann i think a rant is well deserved at this point. If radiation is considered curative...

https://connect.mayoclinic.org/comment/1142431/

Discussion: Advised to do dental work before radiation

Support Group: Head & Neck Cancer

Posted: Sep 16, 2024

20 years later, and I still deal with some of the problems created by neck cancer...

https://connect.mayoclinic.org/comment/1560546/

Discussion: H&N radiation

Support Group: Head & Neck Cancer

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