Head & Neck Cancer Support Group

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Comments (2,189)

My husband had tonsil cancer and been done with chemo and radiation for 4 months now...

https://connect.mayoclinic.org/comment/1105773/

Discussion: When do you start getting energy after radiation?

Support Group: Head & Neck Cancer

Posted: Jul 15, 2024

Hi Thank you for your input. I did not have radiation, but I have had four...

https://connect.mayoclinic.org/comment/948847/

Discussion: Following tongue resection, I have no appetite. Is this normal?

Support Group: Head & Neck Cancer

Posted: Oct 16, 2023

How do you get an appt at Mayo for consult for ORN? I’m having infection in...

https://connect.mayoclinic.org/comment/1246271/

Discussion: Is anyone experiencing osteoradionecrosis (ORN)?

Support Group: Head & Neck Cancer

Posted: Feb 27 12:00am

Well, I had/have Base of Tongue Cancer with some spread into the Epiglottis. For the moment...

https://connect.mayoclinic.org/comment/1190649/

Discussion: Diagnosed with squamous cell carcinoma of the epiglottis: Anyone?

Support Group: Head & Neck Cancer

Posted: Dec 14, 2024

https://connect.mayoclinic.org/comment/1341156/

Discussion: Had a Biopsy of my Tongue

Support Group: Head & Neck Cancer

Posted: Jul 4 4:15pm

My husband had a sinus cancer last year, on Cisplatin & radiation, same issues. Senna is...

https://connect.mayoclinic.org/comment/1342889/

Discussion: Radiation & cisplatin

Support Group: Head & Neck Cancer

Posted: Jul 7 9:35am

Hi @midiwiz, I was diagnosed with Tongue cancer on my left side of my mouth on...

https://connect.mayoclinic.org/comment/1308736/

Discussion: Squamous cell carcinoma (SCC) P16+

Support Group: Head & Neck Cancer

Posted: May 20 2:19pm

It’s experienced by myself and many others that the effects of radiation will continue to bring...

https://connect.mayoclinic.org/comment/916859/

Discussion: Sore on tongue from treatments: What helps?

Support Group: Head & Neck Cancer

Posted: Aug 21, 2023

Thank you! He started the trismus exercises yesterday. He is able to do them without much...

https://connect.mayoclinic.org/comment/898429/

Discussion: Trismus (lock jaw) after Head & Neck cancer treatment: What helps?

Support Group: Head & Neck Cancer

Posted: Jul 19, 2023

I just had surgery at Barnes in St Louis MO. for my throat. While in there...

https://connect.mayoclinic.org/comment/802508/

Discussion: Squamous cell throat cancer

Support Group: Head & Neck Cancer

Posted: Jan 27, 2023

My understanding is that all oropharyngeal cancers can be caused by HPV. We were also told...

https://connect.mayoclinic.org/comment/796735/

Discussion: HPV P16 positive cancer

Support Group: Head & Neck Cancer

Posted: Jan 14, 2023

It’s helpful to hear I’m not alone with swallowing issues. Mine came 14yrs after breast radiation...

https://connect.mayoclinic.org/comment/1130006/

Discussion: Inability to swallow timeframe: Can one relearn to swallow?

Support Group: Head & Neck Cancer

Posted: Aug 24, 2024

Not sure what kind of cancer you had but I had 35 rounds of radiation for...

https://connect.mayoclinic.org/comment/1040545/

Discussion: Getting frustrated with throat pain post radiation

Support Group: Head & Neck Cancer

Posted: Mar 26, 2024

I had more tests ie pet, ct, mri.. cancer not spread in lymph or orbits but...

https://connect.mayoclinic.org/comment/1000613/

Discussion: Meet others living with Head & Neck Cancer: Introduce yourself

Support Group: Head & Neck Cancer

Posted: Jan 20, 2024

I had the red flap surgery January 3 2023. 12 hour surgery. Gruesome but it worked...

https://connect.mayoclinic.org/comment/974534/

Discussion: Is anyone experiencing osteoradionecrosis (ORN)?

Support Group: Head & Neck Cancer

Posted: Dec 3, 2023

I am hpv 16 head and neck cancer and it’s in at least 3 lymph nodes...

https://connect.mayoclinic.org/comment/795532/

Discussion: HPV P16 positive cancer

Support Group: Head & Neck Cancer

Posted: Jan 12, 2023

Margaret, can you ask your oncologist if they have a cancer coordinator and if not if...

https://connect.mayoclinic.org/comment/232862/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Feb 8, 2019

@1gnforty1, as you probably already know mucosal melanoma is a rare and aggressive type of cancer...

https://connect.mayoclinic.org/comment/1243785/

Discussion: Cancer of the nasal vestibule: What are the treatment options?

Support Group: Head & Neck Cancer

Posted: Feb 23 12:08pm

Just like you I had a diagnosis of HPV-16 SCC in The base of my tongue....

https://connect.mayoclinic.org/comment/1209393/

Discussion: New HPV-16 back of tongue cancer diagnosis and treatment to date

Support Group: Head & Neck Cancer

Posted: Jan 11 7:37pm

My understanding is the radiation should have destroyed the entire tumor, at least that is the...

https://connect.mayoclinic.org/comment/1151373/

Discussion: How long does radiation impact the tumor after treatment?

Support Group: Head & Neck Cancer

Posted: Oct 3, 2024

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