Head & Neck Cancer Support Group

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Comments (2,189)

I don't have any alternate advice, but I am about to begin chemo/radiation for HPV tongue/tonsil...

https://connect.mayoclinic.org/comment/1207355/

Discussion: HPV Tonsil cancer: I'm very nervous about chemo and radiation

Support Group: Head & Neck Cancer

Posted: Jan 9 7:44am

After surgery and lots of homework and talking to others I opt out of radiation. Chemo...

https://connect.mayoclinic.org/comment/1037058/

Discussion: Just Diagnosed with Tonsil Cancer - How to Treat?

Support Group: Head & Neck Cancer

Posted: Mar 20, 2024

My otolyngologist looked at mine and was 💯 sure it was cancer, but still did a...

https://connect.mayoclinic.org/comment/989183/

Discussion: Just diagnosed with Squamous Cell Tonsil cancer without a biopsy

Support Group: Head & Neck Cancer

Posted: Dec 31, 2023

You are a GOD sent I have just been diagnosed with this same cancer in the...

https://connect.mayoclinic.org/comment/849707/

Discussion: Radiation side effects with H&N cancer. When will they ever end?

Support Group: Head & Neck Cancer

Posted: Apr 26, 2023

I initially had this throat cancer in 2020 and had the full radiaiton treatments and chemo....

https://connect.mayoclinic.org/comment/762303/

Discussion: Anyone had neck dissection surgery? What are your tips?

Support Group: Head & Neck Cancer

Posted: Oct 17, 2022

I have had this as well following tongue cancer surgery, chemo and radiation. I use a...

https://connect.mayoclinic.org/comment/1202515/

Discussion: Lymphedema of the neck: What did you do?

Support Group: Head & Neck Cancer

Posted: Jan 2 2:02pm

Lori I am so sorry to hear of your cancer battle again. I know how painful...

https://connect.mayoclinic.org/comment/877543/

Discussion: Black Tongue

Support Group: Head & Neck Cancer

Posted: Jun 13, 2023

@jen75, do not worry about vocal cord (VC) paralysis. There are many, many people that underwent...

https://connect.mayoclinic.org/comment/843207/

Discussion: How long after radiation did it take to get your voice back?

Support Group: Head & Neck Cancer

Posted: Apr 14, 2023

I finished radiation & chemo treatment (35 rad & 7 wks chemo) Nov. 5, 2021, for...

https://connect.mayoclinic.org/comment/817564/

Discussion: HPV P16 positive cancer

Support Group: Head & Neck Cancer

Posted: Feb 26, 2023

Hi MOJO, I had 35 rounds (7weeks) of Photon radiation for a total of 70Gy and...

https://connect.mayoclinic.org/comment/1343205/

Discussion: Radiation & cisplatin

Support Group: Head & Neck Cancer

Posted: Jul 7 3:10pm

Hi Sue, my surgery was May 23. Had a trach and tube feed in nose. Was...

https://connect.mayoclinic.org/comment/1095444/

Discussion: Meet others living with Head & Neck Cancer: Introduce yourself

Support Group: Head & Neck Cancer

Posted: Jun 27, 2024

Thank you for your response. I'm not able to swallow but I will try the swallowing...

https://connect.mayoclinic.org/comment/816227/

Discussion: Meet others living with Head & Neck Cancer: Introduce yourself

Support Group: Head & Neck Cancer

Posted: Feb 23, 2023

Head and neck radiation can be very difficult to live through with lasting side effects. At...

https://connect.mayoclinic.org/comment/646059/

Discussion: Radiation therapy benefits after negative Biopsy and zero cancer

Support Group: Head & Neck Cancer

Posted: Oct 18, 2021

@SRM , I will be going through the standard NCCN guideline of 33 radiation “treatments” (as...

https://connect.mayoclinic.org/comment/643027/

Discussion: 13 weeks post radiation and throat pain continues

Support Group: Head & Neck Cancer

Posted: Oct 7, 2021

My husband had oral cancer in his cheek. After surgery, radiation and chemotherapy, he can not...

https://connect.mayoclinic.org/comment/975465/

Discussion: Oncology Dentist: Is it recommended to see a specialist?

Support Group: Head & Neck Cancer

Posted: Dec 5, 2023

I also have fibrosis affecting my carotid arteries and swallowing. I have regular NIVA ultrasound studies....

https://connect.mayoclinic.org/comment/1113093/

Discussion: Looking for help with radiation fibrosis; Tips?

Support Group: Head & Neck Cancer

Posted: Jul 28, 2024

Hello @phylissg, Knowing nothing about your situation, I can only relate my own experience. For approximately...

https://connect.mayoclinic.org/comment/1104723/

Discussion: Preventing pneumonia

Support Group: Head & Neck Cancer

Posted: Jul 13, 2024

I went through radiation and chemo about this time last year. I had a cancer in...

https://connect.mayoclinic.org/comment/1055654/

Discussion: How to deal with constant stress and worry as caregiver?

Support Group: Head & Neck Cancer

Posted: Apr 23, 2024

Good morning @karenjf. My name is Merry and I am a Mentor for Connect, mostly lung...

https://connect.mayoclinic.org/comment/174481/

Discussion: Meet others living with Head & Neck Cancer: Introduce yourself

Support Group: Head & Neck Cancer

Posted: Jun 9, 2019

I am 10 days post 30 rounds of Proton Radiation to "cleanup" any cancer that may...

https://connect.mayoclinic.org/comment/902507/

Discussion: Oral cancer: proton vs photon radiation?

Support Group: Head & Neck Cancer

Posted: Jul 26, 2023