Head & Neck Cancer Support Group

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Comments (2,947)

I have a question for those of you that have had neck radiation, which is most...

https://connect.mayoclinic.org/comment/1433284/

Discussion: HPV Tonsil cancer: I'm very nervous about chemo and radiation

Support Group: Head & Neck Cancer

Posted: Nov 7, 2025

Some people get lymphedema and some don't. I had a few affected lymph nodes. The radiation...

https://connect.mayoclinic.org/comment/1195449/

Discussion: Newly diagnosed and scared: How did you cope?

Support Group: Head & Neck Cancer

Posted: Dec 22, 2024

Hi @psgstl and welcome to the Head and Neck cancer group. Radiation is the gift that...

https://connect.mayoclinic.org/comment/1194373/

Discussion: Possible nerve damage from head radiation

Support Group: Head & Neck Cancer

Posted: Dec 20, 2024

Hello @goldfinch and welcome to the Head and Neck group. You seem faced with a unique...

https://connect.mayoclinic.org/comment/1033570/

Discussion: Meet others living with Head & Neck Cancer: Introduce yourself

Support Group: Head & Neck Cancer

Posted: Mar 14, 2024

My SCC was in the external ear canal and non-hpv but in 2012 I had 35...

https://connect.mayoclinic.org/comment/218109/

Discussion: HPV Throat Cancer

Support Group: Head & Neck Cancer

Posted: Nov 19, 2018

Yes, my surgeon is very aware of my concerns. He scheduled me with a Lymphedema Specialist...

https://connect.mayoclinic.org/comment/316530/

Discussion: Lymphedema in the neck after laryngectomy

Support Group: Head & Neck Cancer

Posted: Jul 18, 2020

Hi @darapoza Thanks for joining in. Dental issues after radiation are often caused by a combination...

https://connect.mayoclinic.org/comment/1256621/

Discussion: How do you care for teeth and dental health after H&N cancer?

Support Group: Head & Neck Cancer

Posted: Mar 12, 2025

I had TORS surgery to remove base of tongue Cancer April 2023. Also had radical neck...

https://connect.mayoclinic.org/comment/996057/

Discussion: 30 gy radiation side effects

Support Group: Head & Neck Cancer

Posted: Jan 12, 2024

@woodsy1 No need to apologize:) The part I’m still weighing is the chemotherapy component if I’m...

https://connect.mayoclinic.org/comment/1483566/

Discussion: How to fight cisplatin side effects like nausea & fatigue?

Support Group: Head & Neck Cancer

Posted: Jan 16 7:20am

Hello Barry @grimmers and welcome to head and neck connect. My radiation oncologist 13 years ago...

https://connect.mayoclinic.org/comment/1303213/

Discussion: Radiation impact on cognitive functioning/memory

Support Group: Head & Neck Cancer

Posted: May 13, 2025

I am astonished you can eat well but that is great! I could barely swallow a...

https://connect.mayoclinic.org/comment/1011094/

Discussion: Squamous cell carcinoma (SCC) P16+

Support Group: Head & Neck Cancer

Posted: Feb 7, 2024

I was diagnosed with same cancer on the base of my tongue as well as in...

https://connect.mayoclinic.org/comment/1191409/

Discussion: Diagnosed with squamous cell carcinoma of the epiglottis: Anyone?

Support Group: Head & Neck Cancer

Posted: Dec 16, 2024

Dear friends, I have been reading all your posts, and kind of unable to put in...

https://connect.mayoclinic.org/comment/174440/

Discussion: Meet others living with Head & Neck Cancer: Introduce yourself

Support Group: Head & Neck Cancer

Posted: Feb 24, 2018

First off please know that it may be a rough journey, but YOU CAN DO THIS!!!!...

https://connect.mayoclinic.org/comment/1545331/

Discussion: HPV 16 neck cancer journey…

Support Group: Head & Neck Cancer

Posted: Apr 8 5:45am

@fanortner My dentist does not completely, but does somewhat, agree with not doing implants to replace...

https://connect.mayoclinic.org/comment/1559912/

Discussion: Anyone had lower jaw discomfort after radiation?

Support Group: Head & Neck Cancer

Posted: 4 days ago

I could not do the surgery as it went from my tonsil to my tounge and...

https://connect.mayoclinic.org/comment/1041365/

Discussion: Just Diagnosed with Tonsil Cancer - How to Treat?

Support Group: Head & Neck Cancer

Posted: Mar 27, 2024

A year ago I had my first SCC. All others had been BCC. I was told...

https://connect.mayoclinic.org/comment/1418572/

Discussion: How do you clear the HPV16 virus to prevent cancer recurrence?

Support Group: Head & Neck Cancer

Posted: Oct 19, 2025

I hear you, I had four extractions done and two more tomorrow, going to get my...

https://connect.mayoclinic.org/comment/864846/

Discussion: Tonsil cancer?

Support Group: Head & Neck Cancer

Posted: May 22, 2023

The chemo for HPV+ SCC is very low dose. It’s really just used to make the...

https://connect.mayoclinic.org/comment/1436160/

Discussion: HPV Throat Cancer

Support Group: Head & Neck Cancer

Posted: Nov 11, 2025

What kind of treatments did you have? I had scc of nasal mucosa. It ate part...

https://connect.mayoclinic.org/comment/1183020/

Discussion: What’s left after "cured" of nasopharyngeal cancer?

Support Group: Head & Neck Cancer

Posted: Dec 2, 2024