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Hi, msherfinski here. I am 2 1/2 months post complete laryngectomy. I am experiencing severe Lymphedema in my neck and jowls area. Has anybody else had this problem?? I believe the swelling is holding up my progress. Thanks for any input.
Hello @msherfinski, Have you discussed the swelling in your neck area with your doctor or surgeon? It could be a serious side effect of the laryngectomy surgery. Here's some information from the American Head & Neck Society on Lymphedema and causes: https://www.ahns.info/survivorship_intro/topical_review-lymphedema/
Yes, my surgeon is very aware of my concerns. He scheduled me with a Lymphedema Specialist on Monday. He didn't seem overly concerned. I had this from radiation 2 1/2 years prior.
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@msherfinski, I have lymphedema in my legs but had not read about it being in the head and neck. Here's some information I found that includes a self massage video tutorial.
Patient Guide: Head and Neck Lymphedema following Cancer Treatment: https://torontophysiotherapy.ca/head-and-neck-lymphedema-following-cancer-treatment/
Are you able to share an update with us after you meet with the Lymphedema Specialist?
Thank you so much for the info. It looks like excercises and massages are my options.
I will do that John. I see her Monday morning.
Just got back from seeing the Lymphedema Specialist. Like I thought it's going to take excercises, massages and compression to get rid of the swelling in my throat area. When they told me after my laryngectomy that they tested 81 lymph nodes and none of them were cancerous, I didn't know they removed them for testing. This is why I'm so swollen. Oh well, another obstacle to try to overcome!!
@msherfinski, Thanks for the follow up. I'm thinking if it were me, I would prefer exercise to drugs anyday. I hope you can let us know how the exercises go for you. Like you said…another obstacle to overcome and you can do it!!
Yes I can!! I got a great Specialist. Dhe seem sdcc very determined to help me with my problem. We bbn hit it off right away!!
Ugh. So sorry. My husband had severe lymphedema and after seeing many specialist we were referred to Cancer Treatment Centers of America – They had us see a lymphedema specialist in Chicago. He did surgery a new surgery and the results have been wonderful. We saw Dr. Daniel Liu CTCA Chicago – again, wonderful. I would recommend him to anyone.
Was it in the neck?? Thank you for the info!!
No in the arm but a very severe case. If you have not reached out to them I really would suggest it. Ask to speak to Dr. Liu;s office.They are doing wonders for this type of stuff, let him know (if you are) willing to try something. He is probably one of the most detailed doctors we have ever seen. They also work with you financially so it really helps.
Yes I have also suffered from this I am 1 1/2 years from treatments- I didn’t have the surgery so I still have my VC and larynx but my airway is so scared from radiation I may have a trachea always but I was swelling same as you are and I am using the lymph pump at home it is better for head and neck – but you may have to fight with insurance to get this but worth it, get the pump if you can.
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