Head & Neck Cancer Support Group

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Comments (2,947)

Hello Kent . First off this a very winnable battle. In particular with HPV +16. Google...

https://connect.mayoclinic.org/comment/1548400/

Discussion: HPV 16 neck cancer journey…

Support Group: Head & Neck Cancer

Posted: Apr 12 6:56am

Yes, it's radiation. I also read a paper about how it still prevents radiation-induced sarcoma from...

https://connect.mayoclinic.org/comment/1192350/

Discussion: Recurrent radiation-induced sarcoma in head and neck area

Support Group: Sarcoma

Posted: Dec 17, 2024

@harleytiger Did you have Proton or Photon radiation? I am scheduled to begin Photon radiation for...

https://connect.mayoclinic.org/comment/1529090/

Discussion: HPV Tonsil cancer: I'm very nervous about chemo and radiation

Support Group: Head & Neck Cancer

Posted: Mar 17 12:52pm

I was diagnosed with HPV 16 positive tonsil cancer T2N2M0 in May 2025. I was going...

https://connect.mayoclinic.org/comment/1530290/

Discussion: Proton versus Photon for HPV tonsil cancer

Support Group: Head & Neck Cancer

Posted: Mar 18 10:14pm

You may also find the tips shared in this discussion helpful for your boyfriend's radiation burns:...

https://connect.mayoclinic.org/comment/784198/

Discussion: Severe Radiation burns from adverse reaction to mask from treatment

Support Group: Head & Neck Cancer

Posted: Dec 12, 2022

@justwow It’s a 2 week course of chemo/radiation. Chemo drug is docetaxel on day 1 &...

https://connect.mayoclinic.org/comment/1490101/

Discussion: Has anyone gone through the 30gy DART therapy, what is recovery like?

Support Group: Head & Neck Cancer

Posted: Jan 25 8:59am

I went through 42 treatments 20 years ago. I had experienced acid reflux most of my...

https://connect.mayoclinic.org/comment/1548522/

Discussion: Anyone get acid reflux after radiation for head & neck cancer?

Support Group: Head & Neck Cancer

Posted: Apr 12 8:51am

https://connect.mayoclinic.org/comment/1523382/

Discussion: Anyone dealing with dysphagia? What helps?

Support Group: Head & Neck Cancer

Posted: Mar 9 3:10pm

I’m on my six week of radiation and chemotherapy my dr and nurse both told me...

https://connect.mayoclinic.org/comment/897496/

Discussion: Anyone like to share their remedy for medication build up on neck?

Support Group: Head & Neck Cancer

Posted: Jul 17, 2023

Before I was to undergo radiation treatment, the nurse for the radiation oncologist recommended a product...

https://connect.mayoclinic.org/comment/1377669/

Discussion: Three months post treatment with Ongoing Mouth Pain

Support Group: Head & Neck Cancer

Posted: Aug 23, 2025

Has anyone had all uppers pulled after!! radiation and get dentures this is one of my...

https://connect.mayoclinic.org/comment/1537372/

Discussion: Dentures plus implants after radiation

Support Group: Head & Neck Cancer

Posted: Mar 28 2:08pm

Hello @ponygirlnd, I had radiation directed at base of one ear for SCC 13 years ago...

https://connect.mayoclinic.org/comment/1514929/

Discussion: Do late effects of sinus radiation contribute to TBI/concussion?

Support Group: Head & Neck Cancer

Posted: Feb 26 9:00am

@sepdvm hear you - had diagnosed and treated - nasopharyngeal carcinoma IV almost 20 yrs ago....

https://connect.mayoclinic.org/comment/1524003/

Discussion: Anyone dealing with dysphagia? What helps?

Support Group: Head & Neck Cancer

Posted: Mar 10 12:57pm

My surgeons were Dr. Ketan Patel and Dr Jeffery Goldstein at North Memorial Hospital in Robbinsdale,...

https://connect.mayoclinic.org/comment/1547645/

Discussion: Osteoradionecrosis - free flap jaw and maxilla reconstruction

Support Group: Head & Neck Cancer

Posted: Apr 11 6:43am

Thank you, I think I’ve read one too many horror stories about all this neck cancer...

https://connect.mayoclinic.org/comment/1543399/

Discussion: HPV 16 neck cancer journey…

Support Group: Head & Neck Cancer

Posted: Apr 5 1:33pm

@logi My partial glossectomy with reconstruction with a free flap was Feb. 12th. I still have...

https://connect.mayoclinic.org/comment/1544724/

Discussion: Partial Glossectomy with free flap rebuild of tongue

Support Group: Head & Neck Cancer

Posted: Apr 7 9:12am

Going threw same thing radiation doctors first priority is they should tell you long term affects...

https://connect.mayoclinic.org/comment/1537117/

Discussion: Dentures plus implants after radiation

Support Group: Head & Neck Cancer

Posted: Mar 28 8:56am

@56tburd absolutely right on ... late side effects of radiation creeping up one by one !!...

https://connect.mayoclinic.org/comment/1529816/

Discussion: Anyone dealing with long-term dysphagia and chronic cough?

Support Group: Head & Neck Cancer

Posted: Mar 18 10:55am

@colleenyoung Thanks Colleen, good information there. I had 3 teeth pulled last week and I start...

https://connect.mayoclinic.org/comment/1538361/

Discussion: Proton versus Photon for HPV tonsil cancer

Support Group: Head & Neck Cancer

Posted: Mar 29 10:13pm

Just to update, and full disclosure I'm doing the IMRT therapy here in Hawaii. Got those...

https://connect.mayoclinic.org/comment/1551767/

Discussion: Proton versus Photon for HPV tonsil cancer

Support Group: Head & Neck Cancer

Posted: Apr 16 8:07am

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