Head & Neck Cancer Support Group

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Comments (2,316)

My SCC was in the external ear canal and non-hpv but in 2012 I had 35...

https://connect.mayoclinic.org/comment/218109/

Discussion: HPV Throat Cancer

Support Group: Head & Neck Cancer

Posted: Nov 19, 2018

Some people get lymphedema and some don't. I had a few affected lymph nodes. The radiation...

https://connect.mayoclinic.org/comment/1195449/

Discussion: Newly diagnosed and scared: How did you cope?

Support Group: Head & Neck Cancer

Posted: Dec 22, 2024

Hi @psgstl and welcome to the Head and Neck cancer group. Radiation is the gift that...

https://connect.mayoclinic.org/comment/1194373/

Discussion: Possible nerve damage from head radiation

Support Group: Head & Neck Cancer

Posted: Dec 20, 2024

Many prayers for you. Radiation is NO joke. here I thought my husband will slide thorough...

https://connect.mayoclinic.org/comment/746452/

Discussion: Lymphedema in the neck after laryngectomy

Support Group: Head & Neck Cancer

Posted: Sep 7, 2022

Hello, The doctors at Mayo Clinic said that NavDX test only give a what they described...

https://connect.mayoclinic.org/comment/1367287/

Discussion: Negative NavDx Pre Treatment HPV16 Squamous Cell Cervical Lymph Node

Support Group: Head & Neck Cancer

Posted: Aug 9 6:19pm

Yes, my surgeon is very aware of my concerns. He scheduled me with a Lymphedema Specialist...

https://connect.mayoclinic.org/comment/316530/

Discussion: Lymphedema in the neck after laryngectomy

Support Group: Head & Neck Cancer

Posted: Jul 18, 2020

I was diagnosed with same cancer on the base of my tongue as well as in...

https://connect.mayoclinic.org/comment/1191409/

Discussion: Diagnosed with squamous cell carcinoma of the epiglottis: Anyone?

Support Group: Head & Neck Cancer

Posted: Dec 16, 2024

I am astonished you can eat well but that is great! I could barely swallow a...

https://connect.mayoclinic.org/comment/1011094/

Discussion: Squamous cell carcinoma (SCC) P16+

Support Group: Head & Neck Cancer

Posted: Feb 7, 2024

Dear friends, I have been reading all your posts, and kind of unable to put in...

https://connect.mayoclinic.org/comment/174440/

Discussion: Meet others living with Head & Neck Cancer: Introduce yourself

Support Group: Head & Neck Cancer

Posted: Feb 24, 2018

Hello Barry @grimmers and welcome to head and neck connect. My radiation oncologist 13 years ago...

https://connect.mayoclinic.org/comment/1303213/

Discussion: Radiation impact on cognitive functioning/memory

Support Group: Head & Neck Cancer

Posted: May 13 10:09am

I had TORS surgery to remove base of tongue Cancer April 2023. Also had radical neck...

https://connect.mayoclinic.org/comment/996057/

Discussion: 30 gy radiation side effects

Support Group: Head & Neck Cancer

Posted: Jan 12, 2024

About 5 years after my 2011 proton radiation for parotid cancer I developed goiter on my...

https://connect.mayoclinic.org/comment/1335543/

Discussion: Has anyone had thyroid issues after head and neck radiation?

Support Group: Head & Neck Cancer

Posted: Jun 26 10:26am

Hi @darapoza Thanks for joining in. Dental issues after radiation are often caused by a combination...

https://connect.mayoclinic.org/comment/1256621/

Discussion: How do you care for teeth and dental health after H&N cancer?

Support Group: Head & Neck Cancer

Posted: Mar 12 10:31pm

Hello . First off this a very winnable battle. In particular, if this is HPV +16....

https://connect.mayoclinic.org/comment/1371998/

Discussion: Hpv positive tonsil cancer

Support Group: Head & Neck Cancer

Posted: Aug 16 1:03pm

I wish you the best. You’re tough. I took cisplantin and etopiside in 2015 several rounds...

https://connect.mayoclinic.org/comment/1208067/

Discussion: New HPV-16 back of tongue cancer diagnosis and treatment to date

Support Group: Head & Neck Cancer

Posted: Jan 10 7:11am

What kind of treatments did you have? I had scc of nasal mucosa. It ate part...

https://connect.mayoclinic.org/comment/1183020/

Discussion: What’s left after "cured" of nasopharyngeal cancer?

Support Group: Head & Neck Cancer

Posted: Dec 2, 2024

Josk. Did you decide on the feeding tube in advance, or was the decision made after...

https://connect.mayoclinic.org/comment/1169633/

Discussion: How do I go through 6 weeks radiation and chemotherapy, alone?

Support Group: Thyroid Cancer

Posted: Nov 7, 2024

I hear you, I had four extractions done and two more tomorrow, going to get my...

https://connect.mayoclinic.org/comment/864846/

Discussion: Tonsil cancer?

Support Group: Head & Neck Cancer

Posted: May 22, 2023

I have been suffering from fibrosis for years and finally found a facility with treatments: South...

https://connect.mayoclinic.org/comment/1381360/

Discussion: Looking for help with radiation fibrosis; Tips?

Support Group: Head & Neck Cancer

Posted: Aug 28 1:24pm

It’s been a challenging week for us. Our car needs repair, the dryer broke, and the...

https://connect.mayoclinic.org/comment/888562/

Discussion: Husband diagnosed with tonsil cancer: looking for tips and support

Support Group: Head & Neck Cancer

Posted: Jul 2, 2023

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