Head & Neck Cancer Support Group

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Comments (991)

I was diagnosed with HPV16+ OSCC in March 2023. I had TORS robotic surgery April 2023....

https://connect.mayoclinic.org/comment/1033558/

Discussion: Inability to swallow and never ending foamy saliva

Support Group: Head & Neck Cancer

Posted: Mar 14, 2024

My husband is recovering from Tors surgery for cancer of tonsils, base of tongue and back...

https://connect.mayoclinic.org/comment/1032563/

Discussion: Does acupuncture help saliva glands damaged from radiation?

Support Group: Head & Neck Cancer

Posted: Mar 12, 2024

Do you have speech and swallow problem after 2 years? Can you share the problem that...

https://connect.mayoclinic.org/comment/911623/

Discussion: Diagnosed with Ameloblastoma

Support Group: Head & Neck Cancer

Posted: Aug 12, 2023

I have lots of trouble eating and swallowing. I will have a swallow test on January...

https://connect.mayoclinic.org/comment/986763/

Discussion: What is your quality of life after a partial maxillectomy?

Support Group: Head & Neck Cancer

Posted: Dec 26, 2023

A trach has been mentioned, especially since he can't swallow and keeps getting pneumonia. But not...

https://connect.mayoclinic.org/comment/1104961/

Discussion: Preventing pneumonia

Support Group: Head & Neck Cancer

Posted: Jul 13, 2024

@sepdvm When I ask him if he is having any pain he has said no. He...

https://connect.mayoclinic.org/comment/1556656/

Discussion: Excessive mucous after throat cancer treatment: How did you cope?

Support Group: Head & Neck Cancer

Posted: 4 days ago

@kth, you've gotten some helpful and encouraging tips from fellow members. You might also wish to...

https://connect.mayoclinic.org/comment/1075134/

Discussion: Seeking advice for eating challenges

Support Group: Head & Neck Cancer

Posted: May 26, 2024

If I may join the chorus of encouragement as you start your treatments, hope things go...

https://connect.mayoclinic.org/comment/1544059/

Discussion: HPV 16 neck cancer journey…

Support Group: Head & Neck Cancer

Posted: Apr 6 11:22am

@steve55 Thanks for this good experiential information. I’m scheduled for a swallow study at the Mayo,...

https://connect.mayoclinic.org/comment/1539651/

Discussion: What are the lifestyle changes with permanent G-Tube?

Support Group: Head & Neck Cancer

Posted: Mar 31 12:30pm

@colleenyoung yes, but Greg has swallowing issues not jaw issues as well as baroreflex issues. There...

https://connect.mayoclinic.org/comment/1535278/

Discussion: Has anyone had surgery to remove scar tissue?

Support Group: Head & Neck Cancer

Posted: Mar 25 4:19pm

I have not had the scar tissue removal sugery. However I do have swallow and restricted...

https://connect.mayoclinic.org/comment/757494/

Discussion: Has anyone had surgery to remove scar tissue?

Support Group: Head & Neck Cancer

Posted: Oct 5, 2022

@taylorma I’m 7 1/2 years out from H&N tonsil cancer. I had surgery, radiation and chemo....

https://connect.mayoclinic.org/comment/1523942/

Discussion: Radiation side effects with H&N cancer. When will they ever end?

Support Group: Head & Neck Cancer

Posted: Mar 10 11:37am

My husband completed treatment in 2011. Within the last 4 years he has lost pretty much...

https://connect.mayoclinic.org/comment/1513038/

Discussion: Anyone dealing with dysphagia? What helps?

Support Group: Head & Neck Cancer

Posted: Feb 23 5:29pm

Kimi, What I found works for me; hot water mouth rinse, swallow hot water and hack...

https://connect.mayoclinic.org/comment/1263208/

Discussion: Throat Radiation After-Effects, Aspiration & Suffocating Mucous

Support Group: Head & Neck Cancer

Posted: Mar 21, 2025

@josk, That you for responding...very frustrated with finding help. I aspirate on everything so looking for...

https://connect.mayoclinic.org/comment/1509058/

Discussion: Anyone dealing with dysphagia? What helps?

Support Group: Head & Neck Cancer

Posted: Feb 18 3:38pm

I am following on how to manage dysphagia. Perhaps speech therapy. Eating soup and health drinks...

https://connect.mayoclinic.org/comment/1334422/

Discussion: Anyone dealing with long-term dysphagia and chronic cough?

Support Group: Head & Neck Cancer

Posted: Jun 24, 2025

I too had the same problems however my oncologist had me on a strict pain management...

https://connect.mayoclinic.org/comment/828917/

Discussion: Missing late end radiation treatments due to uncontrollable coughing

Support Group: Head & Neck Cancer

Posted: Mar 20, 2023

Yes. I'm certainly going to check this out. Thank you so much. My neck is so...

https://connect.mayoclinic.org/comment/1351226/

Discussion: Lymphedema of the neck: What did you do?

Support Group: Lymphedema

Posted: Jul 18, 2025

Thanks all of you for sharing. My husband is 12 weeks post radiation and chemo. The...

https://connect.mayoclinic.org/comment/910190/

Discussion: Radiation side effects with H&N cancer. When will they ever end?

Support Group: Head & Neck Cancer

Posted: Aug 9, 2023

Hi. I just finished 6 weeks of RT/CT and no taste is my big issue, on...

https://connect.mayoclinic.org/comment/1211659/

Discussion: 9 days after end of treatment, mouth and throat questions

Support Group: Head & Neck Cancer

Posted: Jan 14, 2025

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