Head & Neck Cancer Support Group

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Comments (643)

William, thanks so much. At my age would be happy to go on as it is....

https://connect.mayoclinic.org/comment/1170062/

Discussion: Dentures plus implants after radiation

Support Group: Head & Neck Cancer

Posted: Nov 8, 2024

hi josk, lilyann here. my goodness, thank you for telling us about your journey. i am...

https://connect.mayoclinic.org/comment/1164804/

Discussion: What’s left after "cured" of nasopharyngeal cancer?

Support Group: Head & Neck Cancer

Posted: Oct 29, 2024

@phyllisg you and your husband are right to be concerned. Please ask about therapy for swallowing...

https://connect.mayoclinic.org/comment/1130324/

Discussion: Inability to swallow timeframe: Can one relearn to swallow?

Support Group: Head & Neck Cancer

Posted: Aug 25, 2024

@josk this is a perfect example of us not using muscles and they atrophy from lack...

https://connect.mayoclinic.org/comment/1130308/

Discussion: Inability to swallow timeframe: Can one relearn to swallow?

Support Group: Head & Neck Cancer

Posted: Aug 25, 2024

It’s helpful to hear I’m not alone with swallowing issues. Mine came 14yrs after breast radiation...

https://connect.mayoclinic.org/comment/1130006/

Discussion: Inability to swallow timeframe: Can one relearn to swallow?

Support Group: Head & Neck Cancer

Posted: Aug 24, 2024

I’ve been fighting that for nearly 8 years. Speech therapy was a waste of time and...

https://connect.mayoclinic.org/comment/1128431/

Discussion: Nerve damage and unable to open mouth much. Stiff jaw.

Support Group: Head & Neck Cancer

Posted: Aug 22, 2024

I also have fibrosis affecting my carotid arteries and swallowing. I have regular NIVA ultrasound studies....

https://connect.mayoclinic.org/comment/1113093/

Discussion: Looking for help with radiation fibrosis; Tips?

Support Group: Head & Neck Cancer

Posted: Jul 28, 2024

Hello @robolobo. What are your symptoms? Do you have trouble swallowing, pain or changes in speech?...

https://connect.mayoclinic.org/comment/1113060/

Discussion: Saying hello and a question or two or three

Support Group: Head & Neck Cancer

Posted: Jul 28, 2024

Pain has definitely increased and more trouble swallowing day 4-5. 2 tramadol every 4 hours. Barely...

https://connect.mayoclinic.org/comment/1105930/

Discussion: Getting Transoral robotic surgery (TORS): What can I expect?

Support Group: Head & Neck Cancer

Posted: Jul 15, 2024

Biotene line of products for dry mouth. Spray is effective for me, especially epiglottis/swallowing. Xylimelts also...

https://connect.mayoclinic.org/comment/1077637/

Discussion: Dry Mouth. Particularly at night. Solutions?

Support Group: Head & Neck Cancer

Posted: May 30, 2024

Swallowing requires the use of roughly fifty separate muscles and the communication and reflex between all...

https://connect.mayoclinic.org/comment/1067436/

Discussion: Oral Cancer, surgery done..waiting for further treatment

Support Group: Head & Neck Cancer

Posted: May 13, 2024

Hi Sue Thanks for your feedback - and yes, my doctor is aware of my severe...

https://connect.mayoclinic.org/comment/1060713/

Discussion: Nerve damage

Support Group: Head & Neck Cancer

Posted: May 2, 2024

I had similar damage from radiation. My treatments completed May 5th, 2023. At my 1st follow-up...

https://connect.mayoclinic.org/comment/997525/

Discussion: Getting frustrated with throat pain post radiation

Support Group: Head & Neck Cancer

Posted: Jan 15, 2024

When you say partial what do you mean? I lost on one side all of my...

https://connect.mayoclinic.org/comment/984796/

Discussion: What is your quality of life after a partial maxillectomy?

Support Group: Head & Neck Cancer

Posted: Dec 22, 2023

Hello, I know the struggle well! I find that nearly hot water first thing in the...

https://connect.mayoclinic.org/comment/952878/

Discussion: Difficulty swallowing meds: Resorted to DIY pharmaceutical compounding

Support Group: Digestive Health

Posted: Oct 24, 2023

This is a recap of prep for and the first day of Chemo & Radiation. 12...

https://connect.mayoclinic.org/comment/897728/

Discussion: Husband diagnosed with tonsil cancer: looking for tips and support

Support Group: Head & Neck Cancer

Posted: Jul 17, 2023

Hi Sandralea58, My story is similar to your husbands. I am 90 days post treatment and...

https://connect.mayoclinic.org/comment/868102/

Discussion: How to gain weight after H&N Cancer treatment ends?

Support Group: Head & Neck Cancer

Posted: May 28, 2023

Hi, I was diagnosed with Squamous cell carcinoma of the Larynx in 2019. I had treatment...

https://connect.mayoclinic.org/comment/863329/

Discussion: Squamous Cell Carcinoma of the Larynx

Support Group: Head & Neck Cancer

Posted: May 20, 2023

Hi Blulady, Does your husband have any residual eating issues or complete loss of appetite? My...

https://connect.mayoclinic.org/comment/853376/

Discussion: How to gain weight after H&N Cancer treatment ends?

Support Group: Head & Neck Cancer

Posted: May 2, 2023

so sorry to hear about this and so glad you have finally reached a stage of...

https://connect.mayoclinic.org/comment/849271/

Discussion: Radiation side effects with H&N cancer. When will they ever end?

Support Group: Head & Neck Cancer

Posted: Apr 25, 2023