Head & Neck Cancer Support Group

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Comments (389)

@jonesja I am so worried that my taste buds are toasted. Food is horrible, nothing tastes...

https://connect.mayoclinic.org/comment/1404788/

Discussion: HPV Tonsil cancer: I'm very nervous about chemo and radiation

Support Group: Head & Neck Cancer

Posted: Sep 29, 2025

Hmmm.....I, too, had the PET Scan 3 months after completion of treatment with no cancer. My...

https://connect.mayoclinic.org/comment/1402441/

Discussion: Just Diagnosed with Tonsil Cancer - How to Treat?

Support Group: Head & Neck Cancer

Posted: Sep 27, 2025

Hi @linda90, In 2008 I was officially Stage IVB T2N3M0 on left tonsil caused by HPV...

https://connect.mayoclinic.org/comment/1372790/

Discussion: Hpv positive tonsil cancer

Support Group: Head & Neck Cancer

Posted: Aug 17, 2025

I had the same issues with my voice. Air escaping and sounding like I had a...

https://connect.mayoclinic.org/comment/1349445/

Discussion: Tonsillectomy & neck lymph node removal at the sometime surgery

Support Group: Head & Neck Cancer

Posted: Jul 16, 2025

I am 17 years out from stage lV tonsil & tongue. I had nothing removed before...

https://connect.mayoclinic.org/comment/1328509/

Discussion: Teeth cracking and chipping

Support Group: Head & Neck Cancer

Posted: Jun 16, 2025

Hi, I had stage 4 tonsil base of tongue squamous cell cancer 17 years ago. I...

https://connect.mayoclinic.org/comment/1310350/

Discussion: Relief from Radiation Fibrosis Syndrome

Support Group: Head & Neck Cancer

Posted: May 22, 2025

Had the same thing on my tonsil. Went immediately to MSK. Because it was hpv +and...

https://connect.mayoclinic.org/comment/1308300/

Discussion: Squamous cell carcinoma (SCC) P16+

Support Group: Head & Neck Cancer

Posted: May 20, 2025

Hi @vickimartin I see you are new here and I had given this post a while...

https://connect.mayoclinic.org/comment/1268978/

Discussion: Has anyone been diagnosed with salivary gland cancer in a minor gland?

Support Group: Head & Neck Cancer

Posted: Mar 28, 2025

Surgery scheduled for this week. Right tonsillectomy, base of tongue biopsy sectioning? (not sure of proper...

https://connect.mayoclinic.org/comment/1239256/

Discussion: Tonsil Cancer from HPV

Support Group: Head & Neck Cancer

Posted: Feb 17, 2025

Hi. I had cancer in the left tonsil 16 years ago. Both tonsils and 1 node...

https://connect.mayoclinic.org/comment/1226622/

Discussion: Primary Squamous Cell Carcinoma of the Oropharynx and level 11 LN

Support Group: Head & Neck Cancer

Posted: Feb 1, 2025

Hi Julie, My two cents for what it's worth... 64 year old male, went thru 35...

https://connect.mayoclinic.org/comment/1195992/

Discussion: Newly diagnosed and scared: How did you cope?

Support Group: Head & Neck Cancer

Posted: Dec 23, 2024

Hello @ijones98280. I think that question is best answered from your oncologist with known statistics. Everyone...

https://connect.mayoclinic.org/comment/1184775/

Discussion: What is the probability of reccurrence with T1N1 tonsil cancer?

Support Group: Head & Neck Cancer

Posted: Dec 5, 2024

Had HPV squamous cell cancer in lingual tonsil surgically removed in 2022. No radiation or chemo...

https://connect.mayoclinic.org/comment/1145538/

Discussion: Anyone had surgery (TORS) with no radiation or chemo after?

Support Group: Head & Neck Cancer

Posted: Sep 22, 2024

Hello, I had a left neck dissection in 2022 before I had TORS surgery to remove...

https://connect.mayoclinic.org/comment/1128234/

Discussion: Anyone had neck dissection surgery? What are your tips?

Support Group: Head & Neck Cancer

Posted: Aug 21, 2024

One thing I am finding out is this big de-escalation cancer treatments especially with radiation coming...

https://connect.mayoclinic.org/comment/1123594/

Discussion: Standard Procedure for Stage 1 OPSCC P16+?

Support Group: Head & Neck Cancer

Posted: Aug 14, 2024

In 2009 I discovered a lump in my throat. I was diagnosed as having squamous cell...

https://connect.mayoclinic.org/comment/241079/

Discussion: Scar tissue in throat caused by radiation and chemo treatment

Support Group: Head & Neck Cancer

Posted: Feb 18, 2019

I had TORS surgery at Mayo Jacksonville on June 25 with both tonsils removed and neck...

https://connect.mayoclinic.org/comment/1190305/

Discussion: Anyone had surgery (TORS) with no radiation or chemo after?

Support Group: Head & Neck Cancer

Posted: Dec 14, 2024

I have now had 3 reoccurrences of squamous cell cancer on tongue and tonsil. I decided...

https://connect.mayoclinic.org/comment/1259317/

Discussion: HPV squamous cell throat cancer: Soft palate isn't working

Support Group: Head & Neck Cancer

Posted: Mar 16, 2025

October 2023 had both tonsils out left on cancer and tissue removed from back of throat....

https://connect.mayoclinic.org/comment/1035667/

Discussion: Just Diagnosed with Tonsil Cancer - How to Treat?

Support Group: Head & Neck Cancer

Posted: Mar 18, 2024

Hi all. I've just been diagnosed with stage three tosil cancer on Feb 22nd. 63 year...

https://connect.mayoclinic.org/comment/1034068/

Discussion: Husband diagnosed with tonsil cancer: looking for tips and support

Support Group: Head & Neck Cancer

Posted: Mar 15, 2024

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