Head & Neck Cancer Support Group

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Comments (396)

I vote for Proton all the way. Yes people travel a long way for it. I...

https://connect.mayoclinic.org/comment/1529678/

Discussion: Proton versus Photon for HPV tonsil cancer

Support Group: Head & Neck Cancer

Posted: Mar 18 8:45am

I hear your frustration and am sorry you have experienced this. In my experience, I don't...

https://connect.mayoclinic.org/comment/790750/

Discussion: Trismus (lock jaw) after Head & Neck cancer treatment: What helps?

Support Group: Head & Neck Cancer

Posted: Dec 31, 2022

Hi Catlyn, We have much in common, though my tumor was much smaller than yours, and...

https://connect.mayoclinic.org/comment/174456/

Discussion: Meet others living with Head & Neck Cancer: Introduce yourself

Support Group: Head & Neck Cancer

Posted: Apr 24, 2018

I am 2 years post radiation and had most of the problems you listed at first...

https://connect.mayoclinic.org/comment/1455399/

Discussion: I am now post 8 months from my radiation treatment for throat cancer.

Support Group: Head & Neck Cancer

Posted: Dec 7, 2025

I went to see my brother's Acupuncturist. She found a protocol developed by the VA to...

https://connect.mayoclinic.org/comment/1263772/

Discussion: How do you care for teeth and dental health after H&N cancer?

Support Group: Head & Neck Cancer

Posted: Mar 21, 2025

Hello @anonymous99, Thank you for sharing your experience. I can understand your concern, especially with the...

https://connect.mayoclinic.org/comment/1146652/

Discussion: How do you care for teeth and dental health after H&N cancer?

Support Group: Head & Neck Cancer

Posted: Sep 24, 2024

Hang in there! I’m a bit over 7 years out and I still have saliva issues...

https://connect.mayoclinic.org/comment/991104/

Discussion: Tongue and tonsil HPV found.

Support Group: Head & Neck Cancer

Posted: Jan 4, 2024

Yes . My speech therapist which I see weekly gives me exercises to do home to...

https://connect.mayoclinic.org/comment/1266901/

Discussion: HPV squamous cell throat cancer: Soft palate isn't working

Support Group: Head & Neck Cancer

Posted: Mar 25, 2025

Thank you to all who contributed to this article. I am presently going to be scheduled...

https://connect.mayoclinic.org/comment/1009807/

Discussion: What is your quality of life after a partial maxillectomy?

Support Group: Head & Neck Cancer

Posted: Feb 5, 2024

Hi Colleen, I have met with a hematology oncologist and will meet my radiation oncologist next...

https://connect.mayoclinic.org/comment/1288372/

Discussion: Core biopsy from mass on right lateral neck

Support Group: Head & Neck Cancer

Posted: Apr 23, 2025

Excellent, @mimiparris! I actually meant to ask about a referral to a prosthodontist in my reply...

https://connect.mayoclinic.org/comment/1014282/

Discussion: Should I get a bridge to replace teeth from removed jaw?

Support Group: Head & Neck Cancer

Posted: Feb 12, 2024

I will soon be 75 years old, at the end of normal life expectancy for a...

https://connect.mayoclinic.org/comment/894524/

Discussion: How do you care for teeth and dental health after H&N cancer?

Support Group: Head & Neck Cancer

Posted: Jul 12, 2023

@inkbkod7b I really feel for you. Trismus has been a big problem for me since 2014...

https://connect.mayoclinic.org/comment/789418/

Discussion: Trismus (lock jaw) after Head & Neck cancer treatment: What helps?

Support Group: Head & Neck Cancer

Posted: Dec 27, 2022

There are many protein drinks to choose from but you should try to find one that...

https://connect.mayoclinic.org/comment/174557/

Discussion: Meet others living with Head & Neck Cancer: Introduce yourself

Support Group: Head & Neck Cancer

Posted: Nov 8, 2020

That is correct, Tom, it was very rough. My dad went through very big spine surgery...

https://connect.mayoclinic.org/comment/945388/

Discussion: Diagnosed with Ameloblastoma

Support Group: Head & Neck Cancer

Posted: Oct 10, 2023

Hi @ltecato I was getting aspiration pneumonia too like it seemed for the last 2yrs. and...

https://connect.mayoclinic.org/comment/1513763/

Discussion: Anyone dealing with dysphagia? What helps?

Support Group: Head & Neck Cancer

Posted: Feb 24 3:15pm

Hi William Olsen and others, I’m a retired family doc who had chemoradiation for SCC of...

https://connect.mayoclinic.org/comment/1396046/

Discussion: Mandible Reconstruction with Fibula Free Flap. Is this an option?

Support Group: Head & Neck Cancer

Posted: Sep 18, 2025

@cskippy My cancer was tonsil cancer 20 years ago and over the years I have had...

https://connect.mayoclinic.org/comment/1465012/

Discussion: Nerve damage effecting tongue, muscle, swallowing.

Support Group: Head & Neck Cancer

Posted: Dec 21, 2025

It sounds like you are eating better than I at eight months. For me tastes had...

https://connect.mayoclinic.org/comment/1331707/

Discussion: I am now post 8 months from my radiation treatment for throat cancer.

Support Group: Head & Neck Cancer

Posted: Jun 21, 2025

Hello! It sounds like you’re making some really thoughtful changes, and I can see the determination...

https://connect.mayoclinic.org/comment/1172086/

Discussion: Xylitol, nutrition and dental care

Support Group: Head & Neck Cancer

Posted: Nov 12, 2024