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Discussions (38)
T or F? Not all LCIS becomes ILC but all ILC was once LCIS
Had to use abbreviations in the title. Spelling it out...Is it true or false that not all Lobular Carcinoma in Situ becomes Invasive Lobular Cancer,...
Support Group: Breast Cancer
Last active: Nov 30, 2023
Husband with ILC stage3C
Any men with ILC stage 3C? My husband was diagnosed this year. Had a mastectomy and did 4 rounds of AC and now doing 12...
Support Group: Breast Cancer
Last active: Dec 5, 2023
Diagnosed with ILC . Thoughts on bilateral mastectomy?
66 year old with positive family history, dense tissue, multiple biopsies. Trying to decide on bilateral mastectomies. ( They biopsied the same site and missed...
Support Group: Breast Cancer
Last active: Feb 18, 2025
IDC with Lobular Invasion Pattern vs. ILC?
I was diagnosed with "invasive ductal carcinoma of no special type with lobular invasion pattern" (Stage 1, Grade 2, ER+ PR+, HER2 -, Oncotype score...
Support Group: Breast Cancer
Last active: Jun 20, 2025
ILC Is a lumpectomy typically the first step?
I was recently diagnosed with lobular breast cancer. Have only seen breast surgeon who says next step is lumpectomy. I feel that I should see...
Support Group: Breast Cancer
Last active: Jan 23, 2024
Anyone else diagnosed with IDC & ILC, at the same time?
Hello All,In November of 2021 I had a "normal" mammogram (always noted heterogeneously dense breasts) On Oct 7th I had a very long-awaited breast reduction...
Support Group: Breast Cancer
Last active: Mar 25, 2024
Anyone with ILC (invasive lobular cancer) had Goldilocks mastectomy?
After 9 months on AI to reduce tumor, which it has done, I have decided to have a mastectomy rather than lumpectomy. My oncologist surgeon...
Support Group: Breast Cancer
Last active: 2 days ago
1 yr post ILC mammo; radiologist changed recommendation
72 years old. At my 1 year post ILC (right breast lumpectomy, ER+ PR+,HER-) mammo the radiologist informed me that I should return in 6...
Support Group: Breast Cancer
Last active: Aug 20, 2025
48 years old with stage 1 ILC - Tamoxifen Advice
Hello! I'm 48, diagnosed with stage 1, grade 1 ILC in Feb 2023 after 9th annual routine mammogram. Lumpectomy in April and 3 weeks of...
Support Group: Breast Cancer
Last active: Mar 11, 2025
Diagnosed with ILC: Any reconstruction input, implants vs DIEP?
My initial, pre-surgery stage is 1a, right breast only. Reading about ILC scares me about recurrence (not to mention initial possibility of more than scans...
Support Group: Breast Cancer
Last active: Oct 18, 2025
Just diagnosed with invasive lobular carcinoma (ILC): Any advice?
I’ve just found out i have invasive lobular carcinoma. Stage 2. I have an appointment with a surgeon today and an oncologist next week. Not...
Support Group: Breast Cancer
Last active: Sep 17, 2024
What is the possibility of another ILC after surgery 11 months ago?
I had Right Breast ILC, stage2B with lumpectomy six years ago and then the Left Breast ILC, stage 2B, diagnosed 11 months ago. I had...
Support Group: Breast Cancer
Last active: Dec 3, 2025
ILC w/1 lymph node cancerous. Standard not to radiate lymph area?
Now I worry all the time it has spread. Oncologist tells me she can’t guarantee that it hasn’t already spread to bones, lungs etc. Has...
Support Group: Breast Cancer
Last active: Aug 27, 2023
Does anyone have advice on Letrozole?
I was diagnosed with ILC in July and had a lumpectomy in my right breast followed by 4 weeks of radiation. Im starting Letrozole next...
Support Group: Breast Cancer
Last active: Dec 14, 2025
Invasive lobular cancer and treatment choices
I was diagnosed with ILC in dec2023. I just had a lumpectomy and they removed 3 small tumors grade 1 and 3 lymph nodes. My...
Support Group: Breast Cancer
Last active: Nov 21, 2024
Radiation and Invasive Lobular Cancer
I am reading a lot about Endocrine Therapy and Chemo options with ILC, but not much on Radiation. Does anyone have experience on effectiveness of...
Support Group: Breast Cancer
Last active: Mar 10, 2024
New lump other breast
Three months postop lumpectomy on right for ER+, PR+, HER2- ILC , node negative. Finished 19 sessions of radiation 2 weeks ago. Started tamoxifen this...
Support Group: Breast Cancer
Last active: Aug 12, 2025
Does Mayo Clinic have oncologists who specialize in Lobular BC?
My search continues. The doctors I have found so far who really get ILC (few and far between) are out of state. Now 56, 5...
Support Group: Breast Cancer
Last active: Dec 21, 2023
Invasive Lobular Carcinoma Pleomorphic Level 3 (Oncotype Score 34)
I was diagnosed with ILC Pleomorphic Type Level 3. I am waiting for my Oncotype and was wondering if anyone here had a similar diagnosis...
Support Group: Breast Cancer
Last active: Jun 29, 2024
Swelling six months after surgery
I had a double mastectomy for ILC - on left side, on chest wall. no lymph node involvement. stage 1A. Surgery was done in September....
Support Group: Breast Cancer
Last active: Feb 7, 2024