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Breast Cancer Support Group

Public Support Group
430 total results
Discussions (29)
Husband with ILC stage3C
Any men with ILC stage 3C? My husband was diagnosed this year. Had a mastectomy and did 4 rounds of AC and now doing 12...
Support Group: Breast Cancer
Last active: Dec 5, 2023
T or F? Not all LCIS becomes ILC but all ILC was once LCIS
Had to use abbreviations in the title. Spelling it out...Is it true or false that not all Lobular Carcinoma in Situ becomes Invasive Lobular Cancer,...
Support Group: Breast Cancer
Last active: Nov 30, 2023
ILC Is a lumpectomy typically the first step?
I was recently diagnosed with lobular breast cancer. Have only seen breast surgeon who says next step is lumpectomy. I feel that I should see...
Support Group: Breast Cancer
Last active: Jan 23, 2024
Diagnosed with stage 3a ILC
I was diagnosed 10 months ago with stage 3a ILC followed by a bilateral mastectomy. I am Interested in sharing information with others.....
Support Group: Breast Cancer
Last active: Jul 7, 2016
Diagnosed with ILC . Thoughts on bilateral mastectomy?
66 year old with positive family history, dense tissue, multiple biopsies. Trying to decide on bilateral mastectomies. ( They biopsied the same site and missed...
Support Group: Breast Cancer
Last active: Feb 18 9:38am
Just diagnosed with invasive lobular carcinoma (ILC): Any advice?
I’ve just found out i have invasive lobular carcinoma. Stage 2. I have an appointment with a surgeon today and an oncologist next week. Not...
Support Group: Breast Cancer
Last active: Sep 17, 2024
Anyone else diagnosed with IDC & ILC, at the same time?
Hello All,In November of 2021 I had a "normal" mammogram (always noted heterogeneously dense breasts) On Oct 7th I had a very long-awaited breast reduction...
Support Group: Breast Cancer
Last active: Mar 25, 2024
48 years old with stage 1 ILC - Tamoxifen Advice
Hello! I'm 48, diagnosed with stage 1, grade 1 ILC in Feb 2023 after 9th annual routine mammogram. Lumpectomy in April and 3 weeks of...
Support Group: Breast Cancer
Last active: Mar 11 9:56pm
ILC w/1 lymph node cancerous. Standard not to radiate lymph area?
Now I worry all the time it has spread. Oncologist tells me she can’t guarantee that it hasn’t already spread to bones, lungs etc. Has...
Support Group: Breast Cancer
Last active: Aug 27, 2023
Invasive lobular cancer and treatment choices
I was diagnosed with ILC in dec2023. I just had a lumpectomy and they removed 3 small tumors grade 1 and 3 lymph nodes. My...
Support Group: Breast Cancer
Last active: Nov 21, 2024
Radiation and Invasive Lobular Cancer
I am reading a lot about Endocrine Therapy and Chemo options with ILC, but not much on Radiation. Does anyone have experience on effectiveness of...
Support Group: Breast Cancer
Last active: Mar 10, 2024
Does Mayo Clinic have oncologists who specialize in Lobular BC?
My search continues. The doctors I have found so far who really get ILC (few and far between) are out of state. Now 56, 5...
Support Group: Breast Cancer
Last active: Dec 21, 2023
Invasive Lobular Carcinoma Pleomorphic Level 3 (Oncotype Score 34)
I was diagnosed with ILC Pleomorphic Type Level 3. I am waiting for my Oncotype and was wondering if anyone here had a similar diagnosis...
Support Group: Breast Cancer
Last active: Jun 29, 2024
Swelling six months after surgery
I had a double mastectomy for ILC - on left side, on chest wall. no lymph node involvement. stage 1A. Surgery was done in September....
Support Group: Breast Cancer
Last active: Feb 7, 2024
FAST-Forward: Anyone had Ultra-hypofractionated Radiotherapy?
I would be interested in hearing from anyone who has had FAST-Forward/Ultra-Hyprofractionation radiation therapy for breast cancer. My radiation oncologist is recommending this for me....
Support Group: Breast Cancer
Last active: Feb 28, 2021
Anyone had Atypical Lobular Hyperplasia in their pathology margins?
Hi! Grateful for this forum. Just got my pathology from Lumpectomy back and it's mostly good news! All margins and nodes negative, total tumour ILC...
Support Group: Breast Cancer
Last active: Mar 2 9:12am
Anyone taking cyclin-dependent kinase (CDK) 4/6 inhibitors?
I am a very active 72 and have been in very good health (other than osteoporosis) until the diagnose of stage III ICL end of...
Support Group: Breast Cancer
Last active: Feb 14 8:53pm
Provider Bingo
I was diagnosed with ILC in Feb 2022. Had lumpectomy and radiation at the time. At present, am doing OK. I will have a 6...
Support Group: Breast Cancer
Last active: Oct 17, 2023
Anxiety level soaring
Hello, I was dx with ILC in June, I’m on letrozole to shrink tumor before lumpectomy or mastectomy. I am wondering how everyone is managing...
Support Group: Breast Cancer
Last active: Sep 14, 2024
Invasive Lobular carcinoma history. 9 years ago. New symptoms
Had a double mastectomy 9 years ago for ILC. Started recently experiencing general malaise. Nausea and headaches daily now, start later day into evening. Sometimes...
Support Group: Breast Cancer
Last active: Jan 5, 2024