What is the possibility of another ILC after surgery 11 months ago

Posted by dea2xILC @darack, Nov 27 11:52am

I had Right Breast ILC, stage2B with lumpectomy six years ago and then the Left Breast ILC, stage 2B, diagnosed 11 months ago. I had a lumpectomy and 20 rounds of radiation. Estrogen+ in each case and taking Exemestane. I am feeling a couple of lumps in the left breast, some pain, nipple is very sensitive with one of the lumps close to the surgical site. Could this be phantom pain, scar tissue? Is it too soon for any residual cancer to show up? I am scheduled for Mammo/US next week. The lumpectomy was at the 1pm position. I am feeling most of the discomfort at the 11 position.

Interested in more discussions like this? Go to the Breast Cancer Support Group.

It’s totally possible. Mine showed up 2 weeks later. Mastectomy. 2 weeks after hard bone like lump on chest wall. Biopsy confirmed a month later. 4 cm tumor. Everything was caught before treatment plan even started.

REPLY

Dear @darack:

My thoughts and prayers are with you during this challenging time, for you are one of ours that are fighting the disease of BC together. I know waiting is hard; but please try not to worry ahead and be patient with yourself and your care team.

We pray that the Mammo/US next week provides your care team of oncologists the most accurate assessment to give you the most effective treatment plan going forward. In the meantime, I pray that you gain peace of mind by realizing that you've done everything you could to take good care of yourself, and keep your daily life as normal as possible.

Better journey ahead with hope, peace, and love from above!

REPLY
Profile picture for lifetraveler @lifetraveler

Dear @darack:

My thoughts and prayers are with you during this challenging time, for you are one of ours that are fighting the disease of BC together. I know waiting is hard; but please try not to worry ahead and be patient with yourself and your care team.

We pray that the Mammo/US next week provides your care team of oncologists the most accurate assessment to give you the most effective treatment plan going forward. In the meantime, I pray that you gain peace of mind by realizing that you've done everything you could to take good care of yourself, and keep your daily life as normal as possible.

Better journey ahead with hope, peace, and love from above!

Jump to this post

REPLY

@darack
It sounds to me like the side effects of radiation. My breast was swollen and kind of lumpy for a few months. The apoptosis doesn’t stop right after radiation but continues to kill cancer cells for a while. I pray you get good results next week. Hugs.
@worried1111
It was so lucky that you found the cancer lump after the surgery! I think in your case the surgeon missed the cancer in the chest wall. If the cancer grows that quickly in 2 weeks, it would have spread to other organs within a month. I’m not sure if MRI can see cancer in pectoral muscles. How are you doing now? Are you completely recovered from BMX? Hugs.

REPLY
Profile picture for myoga @myoga

@darack
It sounds to me like the side effects of radiation. My breast was swollen and kind of lumpy for a few months. The apoptosis doesn’t stop right after radiation but continues to kill cancer cells for a while. I pray you get good results next week. Hugs.
@worried1111
It was so lucky that you found the cancer lump after the surgery! I think in your case the surgeon missed the cancer in the chest wall. If the cancer grows that quickly in 2 weeks, it would have spread to other organs within a month. I’m not sure if MRI can see cancer in pectoral muscles. How are you doing now? Are you completely recovered from BMX? Hugs.

Jump to this post

@myoga Thank you! I was super lucky to find it (although it did not feel that way at the time). In my case all the stars in the universe lined up. If I had a breast reconstruction immediately after surgery I would have never have seen the cancer (there was no plastic surgeons available). A new breast cancer team in a different province and 6 months of chemo later i had surgery to deal with that lump. There was 3.6 cm and 3 bad margins (posterior, inferior, and superior) - none of this was seen on the MRI. I had to lobby two tumor boards for surgery to clear those margins. One group of 7 in Edmonton Alberta Canada 🇨🇦 ordered me to skip the surgery and go straight to radiation. Thank God I left. The other group of 33 entertained my request due to a second pathologist who faught for me on the tumor board. Again the stars lined up in a critical moment. If the request for a second pathology review had gone to a different pathologist I would likely have never had been allowed another surgery to correct margins. Another big pocket of 1.2 billion cancer cells were removed. I also got super lucky with my oncologist. Right now I am fantastic but I shudder to think what would have happened if I never got involved. I am very appreciative of those people who played key roles at the time and literally saved my life. Also, as strange as it sounds, this experience has ignited in me a great love of science, and health and nutrition. 🥰

REPLY
Profile picture for worried1111 @worried1111

It’s totally possible. Mine showed up 2 weeks later. Mastectomy. 2 weeks after hard bone like lump on chest wall. Biopsy confirmed a month later. 4 cm tumor. Everything was caught before treatment plan even started.

Jump to this post

@worried1111

Thanks for sharing that. It sounds like you took charge of your health and well being and have a really great attitude about it all.

REPLY
Profile picture for lifetraveler @lifetraveler

Dear @darack:

My thoughts and prayers are with you during this challenging time, for you are one of ours that are fighting the disease of BC together. I know waiting is hard; but please try not to worry ahead and be patient with yourself and your care team.

We pray that the Mammo/US next week provides your care team of oncologists the most accurate assessment to give you the most effective treatment plan going forward. In the meantime, I pray that you gain peace of mind by realizing that you've done everything you could to take good care of yourself, and keep your daily life as normal as possible.

Better journey ahead with hope, peace, and love from above!

Jump to this post

@lifetraveler

Thank you for the support and prayers. I am praying that it is all just scar tissue and after effects of radiation. Bless you

REPLY

although encouraging to have experiences of others, it would be best to have a medical diagnosis which hopefully will be optimistic.

REPLY
Profile picture for worried1111 @worried1111

@myoga Thank you! I was super lucky to find it (although it did not feel that way at the time). In my case all the stars in the universe lined up. If I had a breast reconstruction immediately after surgery I would have never have seen the cancer (there was no plastic surgeons available). A new breast cancer team in a different province and 6 months of chemo later i had surgery to deal with that lump. There was 3.6 cm and 3 bad margins (posterior, inferior, and superior) - none of this was seen on the MRI. I had to lobby two tumor boards for surgery to clear those margins. One group of 7 in Edmonton Alberta Canada 🇨🇦 ordered me to skip the surgery and go straight to radiation. Thank God I left. The other group of 33 entertained my request due to a second pathologist who faught for me on the tumor board. Again the stars lined up in a critical moment. If the request for a second pathology review had gone to a different pathologist I would likely have never had been allowed another surgery to correct margins. Another big pocket of 1.2 billion cancer cells were removed. I also got super lucky with my oncologist. Right now I am fantastic but I shudder to think what would have happened if I never got involved. I am very appreciative of those people who played key roles at the time and literally saved my life. Also, as strange as it sounds, this experience has ignited in me a great love of science, and health and nutrition. 🥰

Jump to this post

@worried1111
Wow! Someone up there was looking out for you. Every turn seemed to be wrong at the time turn out to be the right turn. I admire your taking charge of your treatments and it turns out so well. Thank you for staying around to share your experience so we can all learn from it.
I’d like to thank all bc sisters who generously sharing experience and providing encouragement. I got through those days from reading those messages, though I was hesitant to join in. Happy Holidays sisters and mentors!

REPLY
Profile picture for dea2xILC @darack

@worried1111

Thanks for sharing that. It sounds like you took charge of your health and well being and have a really great attitude about it all.

Jump to this post

@darack

I have good news! The pain and lumps are all the result of radiation and surgery with no cancer detected - just alot of scar tissue. What I learned from this is that I need not worry myself sick for two weeks. If I have a concern with a new lump/pain, I will push for an exam right away. This was truly a stressful couple of weeks.

REPLY
Please sign in or register to post a reply.