Breast Cancer Support Group

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Comments (196)

In May 2021, I was diagnosed with invasive lobular carcinoma (ILC) in my left breast and...

https://connect.mayoclinic.org/comment/772522/

Discussion: Lobular Breast Cancer: Let's share and support each other

Support Group: Breast Cancer

Posted: Nov 12, 2022

Hi everyone, I wanted to reach out because the information shared in this group has been...

https://connect.mayoclinic.org/comment/1571731/

Discussion: Questions as I prepare for a lumpectomy: Tips please

Support Group: Breast Cancer

Posted: May 10 9:48pm

I found a lump back in May, didn’t show up on mammogram but luckily I was...

https://connect.mayoclinic.org/comment/908254/

Discussion: Atypical Ductal Hyperplasia AND Invasive Lobular Carcinoma

Support Group: Breast Cancer

Posted: Aug 5, 2023

Hello Thora902: Yes, I have had the Signatera test but no evidence of disease. I had...

https://connect.mayoclinic.org/comment/1366302/

Discussion: Signatera test

Support Group: Breast Cancer

Posted: Aug 8, 2025

Has anyone with invasive lobular carcinoma triple negative had a FAPi PET scan? FAPi (Fibroblast Activation...

https://connect.mayoclinic.org/comment/1311535/

Discussion: Triple negative invasive lobular breast cancer

Support Group: Breast Cancer

Posted: May 23, 2025

I have 2 tumors of invasive lobular carcinoma in my left breast. The largest was 6.7cm...

https://connect.mayoclinic.org/comment/794528/

Discussion: Radiation and Invasive Lobular Cancer

Support Group: Breast Cancer

Posted: Jan 9, 2023

I was found to have an invasive lobular carcinoma in left breast last August. Had mastectomy...

https://connect.mayoclinic.org/comment/1025094/

Discussion: Early stage breast cancer put on bisphosphonate (Zometa)

Support Group: Breast Cancer

Posted: Feb 29, 2024

I received my diagnosis an hour ago. I am so glad there is a support group...

https://connect.mayoclinic.org/comment/775892/

Discussion: Lobular Breast Cancer: Let's share and support each other

Support Group: Breast Cancer

Posted: Nov 21, 2022

I'm almost 78 and was diagnosed with Stage 2b ILC (Invasive Lobular Carcinoma) at the end...

https://connect.mayoclinic.org/comment/1409909/

Discussion: Anyone forego radiation? Research, personal experience, outcomes

Support Group: Breast Cancer

Posted: Oct 6, 2025

Hello again, Prior to surgery I had a PET scan and MRI with positive results (or...

https://connect.mayoclinic.org/comment/1373872/

Discussion: Newly diagnosed invasive ductal and lobular in right breast

Support Group: Breast Cancer

Posted: Aug 18, 2025

Thank you all. I had the double mastectomy. They found a 9.8 cm, a 6 cm,...

https://connect.mayoclinic.org/comment/1537675/

Discussion: invasive lobular carcinoma and invasive lobular in situ

Support Group: Breast Cancer

Posted: Mar 29 7:01am

I got some info from my doctor. However, what the drug and research is saying doesn't...

https://connect.mayoclinic.org/comment/667825/

Discussion: Deciding whether to go on abemaciclib (brand name Verzenio)

Support Group: Breast Cancer

Posted: Jan 4, 2022

LCIS typically doesn't spread it is when it becomes invasive; and of course it's called invasive...

https://connect.mayoclinic.org/comment/1387275/

Discussion: I have LCIS, anyone else?

Support Group: Breast Cancer

Posted: Sep 5, 2025

Thanks for sharing your experience. I’ve only been taking letrozole for a month but it’s scary...

https://connect.mayoclinic.org/comment/1338415/

Discussion: Alternative to Tamoxifen other than AI

Support Group: Breast Cancer

Posted: Jun 30, 2025

I got sick from the pain meds they gave me but the surgery wasn't too bad....

https://connect.mayoclinic.org/comment/748022/

Discussion: Time From Needle Biopsy to MRI With Invasive Lobular?

Support Group: Breast Cancer

Posted: Sep 10, 2022

My experience may be similar in some ways and not in others...but here's my experience. I...

https://connect.mayoclinic.org/comment/960021/

Discussion: High risk, NOT from BRCA but from typia, such as ALH, ADH, LCIS

Support Group: Breast Cancer

Posted: Nov 6, 2023

@llthomson That is a tricky question and hope survivors will speak up, I went on Chat...

https://connect.mayoclinic.org/comment/1451889/

Discussion: Amy long-term survivors in our group?

Support Group: Breast Cancer

Posted: Dec 3, 2025

I have recently been diagnosed with invasive lobular carcinoma in my right breast and it has...

https://connect.mayoclinic.org/comment/777514/

Discussion: Lobular Breast Cancer: Let's share and support each other

Support Group: Breast Cancer

Posted: Nov 26, 2022

Hi I’m waiting for my oncotype results. I have invasive pleomorphic lobular carcinoma and lobular carcinoma...

https://connect.mayoclinic.org/comment/1089369/

Discussion: Invasive Lobular Carcinoma Pleomorphic Level 3 (Oncotype Score 34)

Support Group: Breast Cancer

Posted: Jun 18, 2024

@otas My pathology report did include the note on E-cadhrin. That is how they determine that...

https://connect.mayoclinic.org/comment/1413868/

Discussion: Diagnosed with ILC: Any reconstruction input, implants vs DIEP?

Support Group: Breast Cancer

Posted: Oct 12, 2025

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