Breast Cancer Support Group

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Comments (561)

Thanks Laurie - I'll be contacting insurance on Monday - not on medicare yet - self...

https://connect.mayoclinic.org/comment/951392/

Discussion: 5 year recheck at Oncology - Next Steps

Support Group: Breast Cancer

Posted: Oct 21, 2023

@kakc19 How was the MRI guided biopsy? I understand that it can be bloody and painful....

https://connect.mayoclinic.org/comment/1478105/

Discussion: Breast MRI is suspicious, now what?

Support Group: Breast Cancer

Posted: Jan 9 10:51am

@vegada My cancer was similar to yours...7mm ILC, stage 1a, no lymph nodes. Ki67 was 5%....

https://connect.mayoclinic.org/comment/1511226/

Discussion: What treatment decisions did you make with stage 1, Oncotype 34?

Support Group: Breast Cancer

Posted: Feb 21 12:00pm

I was diagnosed in 1/25 with ILC. I chose a bilateral mastectomy because the surgical option...

https://connect.mayoclinic.org/comment/1485550/

Discussion: invasive lobular carcinoma and invasive lobular in situ

Support Group: Breast Cancer

Posted: Jan 18 11:24am

I had swelling right after surgery from lumpectomy ILC left breast. 11mm at 12:30 6cm from...

https://connect.mayoclinic.org/comment/1008671/

Discussion: Swelling six months after surgery

Support Group: Breast Cancer

Posted: Feb 3, 2024

This comment is for us all, but really for our moderators and volunteer mentors- yes, sharing...

https://connect.mayoclinic.org/comment/1397172/

Discussion: Lobular Breast Cancer: Let's share and support each other

Support Group: Breast Cancer

Posted: Sep 20, 2025

Thanks so much for your reply - a friend was diagnosed with ILC 8 yrs ago...

https://connect.mayoclinic.org/comment/772654/

Discussion: Lobular Breast Cancer: Let's share and support each other

Support Group: Breast Cancer

Posted: Nov 13, 2022

I had ILC and after two lumpectomy procedures and radiation I opted out of estrogen blockers....

https://connect.mayoclinic.org/comment/1366527/

Discussion: Decide against aromatase inhibitors?

Support Group: Breast Cancer

Posted: Aug 8, 2025

Froom 2017: The utility of the Oncotype DX in decision making for treatment of invasive lobular...

https://connect.mayoclinic.org/comment/757777/

Discussion: Invasive Lobular Carcinoma Pleomorphic Level 3 (Oncotype Score 34)

Support Group: Breast Cancer

Posted: Oct 5, 2022

I am very happy you received MRI - is this part of your surveillance? I had...

https://connect.mayoclinic.org/comment/1001639/

Discussion: Anyone experience regional recurrence of stage 1 ER+ BC < 5 years?

Support Group: Breast Cancer

Posted: Jan 22, 2024

The gadiolium..Spelled? Is dye they use in mri of breasts. It lights up breast cancer. It...

https://connect.mayoclinic.org/comment/1013538/

Discussion: Has the contrast used in an MRI caused anyone to have kidney damage?

Support Group: Breast Cancer

Posted: Feb 11, 2024

I don't understand oncologists saying a MRI "could be an insurance issue" and you will have...

https://connect.mayoclinic.org/comment/955935/

Discussion: 5 year recheck at Oncology - Next Steps

Support Group: Breast Cancer

Posted: Oct 29, 2023

ILC here. I'm going in for second set of follow up imaging 11/10, CT of chest,...

https://connect.mayoclinic.org/comment/947628/

Discussion: Lobular Breast Cancer: Let's share and support each other

Support Group: Breast Cancer

Posted: Oct 14, 2023

@guillermina I was diagnosed with Stage 2 ILC ER+, PR+ Her2- at 66 years old. Had...

https://connect.mayoclinic.org/comment/1485478/

Discussion: Any long-term success stories from those NOT taking hormone therapy?

Support Group: Breast Cancer

Posted: Jan 18 10:34am

I have an appt for a second opinion at Dana Farber on Nov 4th for atypical...

https://connect.mayoclinic.org/comment/756775/

Discussion: Radiation and Invasive Lobular Cancer

Support Group: Breast Cancer

Posted: Oct 3, 2022

I had ILC and LCIS, along with IDC at the age of 52. I had a...

https://connect.mayoclinic.org/comment/1157426/

Discussion: Diagnosed with ILC . Thoughts on bilateral mastectomy?

Support Group: Breast Cancer

Posted: Oct 15, 2024

I had a 1.5cm mixed IDC annd ILC tumor, grade 3, with lymphovascular invasion, and am...

https://connect.mayoclinic.org/comment/1040348/

Discussion: I am a male had mammography and ultrasound. Solid tumor 1.3 cm

Support Group: Breast Cancer

Posted: Mar 26, 2024

Has anyone with invasive lobular carcinoma triple negative had a FAPi PET scan? FAPi (Fibroblast Activation...

https://connect.mayoclinic.org/comment/1311535/

Discussion: Triple negative invasive lobular breast cancer

Support Group: Breast Cancer

Posted: May 23, 2025

My surgeon wanted me to have manmo follow up. I said no because mammo did not...

https://connect.mayoclinic.org/comment/1011682/

Discussion: Lobular Breast Cancer: Let's share and support each other

Support Group: Breast Cancer

Posted: Feb 8, 2024

I appreciate all you offer! I have ILC and so wonder why doc didn’t mention bone...

https://connect.mayoclinic.org/comment/1034506/

Discussion: Breast cancer treatment and osteoporosis

Support Group: Breast Cancer

Posted: Mar 16, 2024

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