Brain Tumor Support Group

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Comment

I was diagnosed with GBM in January 2023, had successful resection surgery, 6 weeks of proton...

https://connect.mayoclinic.org/comment/859551/

Discussion: Glioblastoma (GBM) trials and therapeutic devices (Optune)

Support Group: Brain Tumor

Posted: May 14, 2023

Comment

Of course each of us is different but I’ve truly only experienced mild fatigue and “chemo...

https://connect.mayoclinic.org/comment/1163575/

Discussion: How Have Your Glioblastoma Experiences With Temozolomide Been?

Support Group: Brain Tumor

Posted: Oct 27, 2024

Comment

I would like to hear more about your experiences. I am currently on the post op...

https://connect.mayoclinic.org/comment/1162972/

Discussion: How Have Your Glioblastoma Experiences With Temozolomide Been?

Support Group: Brain Tumor

Posted: Oct 26, 2024

Comment

My husband took it before bed and got along pretty good. Drink water to flush it...

https://connect.mayoclinic.org/comment/1025111/

Discussion: My Husband's diagnosis of glioblastoma grade 4

Support Group: Brain Tumor

Posted: Feb 29, 2024

Comment

I had surgery on 9-27-2018 & was diagnosed 10-8-2018 with glioblastoma grade 4. I believe my...

https://connect.mayoclinic.org/comment/239968/

Discussion: Glioblastoma Grade 4: An unexpected diagnosis

Support Group: Brain Tumor

Posted: Feb 5, 2019

Comment

Where do they get the figures of how many months the Optune device will extend one's...

https://connect.mayoclinic.org/comment/1383363/

Discussion: Can anyone tell me about the Optune device for glioblastoma?

Support Group: Brain Tumor

Posted: Aug 31, 2025

Comment

It is traditional Radiation or called Xray radiation stating wednesday and wil go for about 6...

https://connect.mayoclinic.org/comment/270036/

Discussion: Surgery or no surgery: possible low-grade glioma?

Support Group: Brain Tumor

Posted: May 11, 2020

Comment

Optune is a challenge to live with. You have an umbilical cord tugging at your head...

https://connect.mayoclinic.org/comment/1321946/

Discussion: Glioblastoma (GBM) trials and therapeutic devices (Optune)

Support Group: Brain Tumor

Posted: Jun 6, 2025

Comment

Kathie (@otis123), I have a few questions. How many hours a day does your husband where...

https://connect.mayoclinic.org/comment/322986/

Discussion: My Husband's journey with Glioblastoma

Support Group: Brain Tumor

Posted: Sep 27, 2020

Comment

just be aware that medicare is strict re; starting date of optune must be 6 or...

https://connect.mayoclinic.org/comment/1309762/

Discussion: High grade glioma: waiting for remainder of molecular testing

Support Group: Brain Tumor

Posted: May 21, 2025

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