Brain Tumor Support Group

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Comment

I've had my surgery, did my radiation and 1st round of chemo & plan to start...

https://connect.mayoclinic.org/comment/154109/

Discussion: Pleomorphic xanthoastrocytoma tumor (Pxa): help

Support Group: Brain Tumor

Posted: Dec 30, 2018

Comment

just make sure your team is aware of the criteria that medicare requires for payment, we...

https://connect.mayoclinic.org/comment/1311412/

Discussion: High grade glioma: waiting for remainder of molecular testing

Support Group: Brain Tumor

Posted: May 23, 2025

Comment

My husband was diagnosed in December of 2023. Had surgery and standard of care. Started optune...

https://connect.mayoclinic.org/comment/1371664/

Discussion: Can anyone tell me about the Optune device for glioblastoma?

Support Group: Brain Tumor

Posted: Aug 16, 2025

Comment

I have been diagnosed with GBM stage 4 last August. I’m a 66 yr old female....

https://connect.mayoclinic.org/comment/1118160/

Discussion: Multiple meningiomas in past, but now my new tumor is GBM4

Support Group: Brain Tumor

Posted: Aug 5, 2024

Comment

@coreythomas Hi my 22 year old daughter was diagnosed last December, with Pediatric diffuse type high...

https://connect.mayoclinic.org/comment/1519067/

Discussion: Share Your Brain Tumor type & Years since Diagnosis

Support Group: Brain Tumor

Posted: Mar 4 1:45am

Comment

@amherst I was only able find out a little about the Optune system. It can be...

https://connect.mayoclinic.org/comment/266727/

Discussion: Recurrent GBM and treatment options?

Support Group: Brain Tumor

Posted: Jun 22, 2019

Comment

I read that with Optune, its more of a dealing with them directly on support, problems,...

https://connect.mayoclinic.org/comment/1308889/

Discussion: High grade glioma: waiting for remainder of molecular testing

Support Group: Brain Tumor

Posted: May 20, 2025

Comment

My brother has had the same experience and has decided to forego using Optune because of...

https://connect.mayoclinic.org/comment/1123387/

Discussion: How Have Your Glioblastoma Experiences With Temozolomide Been?

Support Group: Brain Tumor

Posted: Aug 14, 2024

Comment

@pnf24, if you are exploring Optune, you may be interested in this related discussion: - Glioblastoma...

https://connect.mayoclinic.org/comment/1096399/

Discussion: Multiple meningiomas in past, but now my new tumor is GBM4

Support Group: Brain Tumor

Posted: Jun 29, 2024

Comment

My husband has been on the Optune treatment for 10 months. Although wearing the device has...

https://connect.mayoclinic.org/comment/1306736/

Discussion: High grade glioma: waiting for remainder of molecular testing

Support Group: Brain Tumor

Posted: May 18, 2025

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