Support Groups

Brain Tumor Support Group

Public Support Group
162 total results
Discussions (11)
Acoustic Neuroma: Auditory symptoms are overwhelming
Was diagnosed in June 2024. The auditory symptoms are overwhelming. I would be grateful to read others experiences and advice. Thanks.
Support Group: Brain Tumor
Last active: Oct 14 10:04am
Acoustic neuroma, hydrocephalis, and vertigo
Have been suffering from vertigo for a week. Primary care did not want to see me; said I should call the neurosurgeon who had inserted...
Support Group: Brain Tumor
Last active: Jan 21, 2018
Acoustic neuroma And Avastin immunotherapy
Was diagnosed with Multiple Neuro Fibromatosis type 2 begnin tumors. Advised to undergo VEGF, avastin immunotherapy. Has anyone taken it ? My anxiety is through...
Support Group: Brain Tumor
Last active: Jul 10, 2023
Hereditary and one sided Acoustic Neuroma
My husband had an acoustic neuroma removed 21 or 22 years ago. I understand that acoustic neuromas are rather rare and I think only the...
Support Group: Brain Tumor
Last active: Jan 16, 2022
Hearing issues after radiation for Acoustic neuroma
I was given radiation treatment for my acoustic neuroma which left me with a large hole in my eardrum. This constantly bothers me I hear...
Support Group: Brain Tumor
Last active: Nov 24, 2021
Acoustic Neuroma: What treatment options and specialists?
Hi,A young family member is diagnosed with Acoustic Neuroma (AN).The Tumor size is 2CM.Please let me know your thoughts:1. What type of surgery could be...
Support Group: Brain Tumor
Last active: Jun 23 3:49pm
Anyone else diagnosed with acoustic neuroma, a benign brain tumor?
My name is Tracy Daley. I live in Omaha, Nebraska. My diagnosis is a jumbled mess that I am sorting out right now. Can anyone...
Support Group: Brain Tumor
Last active: 4 days ago
Living with Brain Tumor or Serious Illness and Relationships
I have been participating in Headway in the UK, but I am now glad to find a support group in the U.S. My treatment began...
Support Group: Brain Tumor
Last active: Mar 26, 2023
What were your experiences with the head frame for Gamma Knife?
I was diagnosed with a Brain Tumor in March, they think it’s more likely a Meningioma but they aren’t ruling out Acoustic Neuroma. I saw...
Support Group: Brain Tumor
Last active: Dec 15, 2020
Has anyone else been diagnosed with an endolymphatic sac tumor?
Hi all, I am new to the forum and wanted to reach out to see if anyone has been diagnosed or has had an Endolymphatic...
Support Group: Brain Tumor
Last active: Mar 16, 2023