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Brain Tumor Support Group

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Discussions (61)
Your tips: How to support someone recovering from brain surgery?
My sister-in-law is having a large meningioma removed today. For those of you that have had surgery, how was recovery, and what did you find...
Support Group: Brain Tumor
Last active: Mar 9, 2025
Trigeminal neuralgia worse 10 years after MVD now tentorial meningioma
I had MVD surgery for trigeminal neuralgia 10 yrs ago. The surgery was partially successful for a while although I continued to have terrible eye...
Support Group: Brain & Nervous System
Last active: Feb 11 3:24pm
Should I choose to do surgery right away or wait a while?
I was diagnosed with having meningioma measuring 2.9cm in the left posterior fossa. There is focal mass effect on left pons with suggestion of impingement...
Support Group: Brain Tumor
Last active: Feb 13, 2025
Meningioma in my Superior left parietal lobe-4 yr DX ann. Help!?
Good evening friends! Thanks in advance, for all of your support & info for me to consider, when it comes to my diagnosis of a...
Support Group: Brain Tumor
Last active: Nov 9, 2022
Are any of you making life changes due to tumors? Hair coloring? etc?
At age 66 I am recently diagnosed with a 4.2 cm meningioma and 2 cm vestibular schwannoma. I am seeing the team at Mayo and...
Support Group: Brain Tumor
Last active: Jul 4, 2024
1.5 cm calcified Parafalcine meningioma
My CT scan recently showed the above. I am waiting for a MRI. I’m 63. I’m losing sleep. MD doesn’t think it will require surgery...
Support Group: Brain Tumor
Last active: Jun 23, 2025
Grade 3 meningioma with double vision
My husband had craniotomy in 2022 for 5cm meningioma. Initially diagnosed as grade two. He did radiation following surgery. When it started to grow a...
Support Group: Brain Tumor
Last active: Aug 12, 2024
Frontal lobe large meningioma has spread into sinus cavity
91 yr old with apathy and she cant feel feet when they are on the ground is in care facility unable to get out of...
Support Group: Brain Tumor
Last active: Nov 18, 2025
Foramen magnum/jugular lesion
Hi! A 6mm lesion in the foramen magnum/jugular was recently found on a CT. The radiologist said “possible meningioma”. I am having a MRI w/w/o...
Support Group: Brain Tumor
Last active: Sep 23, 2025
Anyone have Encephalomalacia and Gliosis after brain surgery?
I had a craniotomy 5 months ago to remove a large frontal lobe meningioma. I recently had an MRI and the report included encephalomalacia and...
Support Group: Brain Tumor
Last active: Mar 22 3:25pm
Family reaction to my brain tumor (meningioma resection) was bizarre
I was reared with a large loving family. My meningioma was discovered by my blindness in my one eye. I had to rush to have...
Support Group: Brain Tumor
Last active: Aug 2, 2024
Craniotomy in 9 days: What can I expect?
In September 2021, I went for a routine MRI for my MS and a new 7mm tentorial meningioma was discovered. This was at the Mayo...
Support Group: Brain Tumor
Last active: Mar 21 4:23pm
I have a benign cavernous sinus meningioma and have a ? about tinnitus
In 2022 I started getting severe headaches right after recovering from COVID. After testing a 3 cm tumor was found on my right side. At...
Support Group: Brain Tumor
Last active: Mar 25, 2024
Neurosurgeon visit: Should I get another appointment?
Should I get another apt?Discovered I had a 12 mm meningioma after MD ordered MRI for inner ear problem.I went to first apt yesterday after...
Support Group: Brain Tumor
Last active: Nov 30, 2023
Atypical Grade 2 Meningioma Recurrence
I had a craniotomy to remove an atypical grade 2 meningioma about 5 years ago, right frontal cortex. It looks like the surgeon missed a...
Support Group: Brain Tumor
Last active: Oct 30, 2025
Watch and wait is over: meningioma has grown
Had my 4th MRI last Friday and yesterday found out my tumor has grown some more. Dr is recommending removal before it grows too much...
Support Group: Brain Tumor
Last active: Nov 1, 2018
Grade 3 Malignant Meningioma 2 Tumors
I was recently diagnosed with 2 malignant meningiomas, one in the center of my brain and one at the bottom of my head, top of...
Support Group: Brain Tumor
Last active: Oct 12, 2025
Glioblastoma with gross total resection.
My husband, 54 years old. He had approx. 12 minute seizure on Sept. 10. They did a CT scan and said that they felt he...
Support Group: Brain Tumor
Last active: Feb 28 8:37pm
Time for surgery: Questions about travelling home after brain surgery
Hello group! I am new the group, although I have had my Meningioma tumor for 3 years. Like most of you, it was discovered by...
Support Group: Brain Tumor
Last active: Nov 16, 2020
What were your experiences with the head frame for Gamma Knife?
I was diagnosed with a Brain Tumor in March, they think it’s more likely a Meningioma but they aren’t ruling out Acoustic Neuroma. I saw...
Support Group: Brain Tumor
Last active: Dec 15, 2020