Support Groups

Brain Tumor Support Group

Public Support Group
455 total results
Discussions (52)
Are any of you making life changes due to tumors? Hair coloring? etc?
At age 66 I am recently diagnosed with a 4.2 cm meningioma and 2 cm vestibular schwannoma. I am seeing the team at Mayo and...
Support Group: Brain Tumor
Last active: Jul 4, 2024
Trigeminal neuralgia worse 10 years after MVD now tentorial meningioma
I had MVD surgery for trigeminal neuralgia 10 yrs ago. The surgery was partially successful for a while although I continued to have terrible eye...
Support Group: Brain & Nervous System
Last active: May 30, 2022
Grade 3 meningioma with double vision
My husband had craniotomy in 2022 for 5cm meningioma. Initially diagnosed as grade two. He did radiation following surgery. When it started to grow a...
Support Group: Brain Tumor
Last active: Aug 12, 2024
1.5 cm calcified Parafalcine meningioma
My CT scan recently showed the above. I am waiting for a MRI. I’m 63. I’m losing sleep. MD doesn’t think it will require surgery...
Support Group: Brain Tumor
Last active: Sep 14, 2024
Family reaction to my brain tumor (meningioma resection) was bizarre
I was reared with a large loving family. My meningioma was discovered by my blindness in my one eye. I had to rush to have...
Support Group: Brain Tumor
Last active: Aug 2, 2024
Craniotomy in 9 days
In September 2021, I went for a routine MRI for my MS and a new 7mm tentorial meningioma was discovered. This was at the Mayo...
Support Group: Brain Tumor
Last active: Jan 10 8:18pm
I have a benign cavernous sinus meningioma and have a ? about tinnitus
In 2022 I started getting severe headaches right after recovering from COVID. After testing a 3 cm tumor was found on my right side. At...
Support Group: Brain Tumor
Last active: Mar 25, 2024
Neurosurgeon visit: Should I get another appointment?
Should I get another apt?Discovered I had a 12 mm meningioma after MD ordered MRI for inner ear problem.I went to first apt yesterday after...
Support Group: Brain Tumor
Last active: Nov 30, 2023
Watch and wait is over: meningioma has grown
Had my 4th MRI last Friday and yesterday found out my tumor has grown some more. Dr is recommending removal before it grows too much...
Support Group: Brain Tumor
Last active: Nov 1, 2018
Time for surgery: Questions about travelling home after brain surgery
Hello group! I am new the group, although I have had my Meningioma tumor for 3 years. Like most of you, it was discovered by...
Support Group: Brain Tumor
Last active: Nov 16, 2020
What were your experiences with the head frame for Gamma Knife?
I was diagnosed with a Brain Tumor in March, they think it’s more likely a Meningioma but they aren’t ruling out Acoustic Neuroma. I saw...
Support Group: Brain Tumor
Last active: Dec 15, 2020
Recurring malignant brain meningiomas …completely lost -
I have had four very closely spaced brain tumor all identified within less than two and an half years. All cancerous and two so large...
Support Group: Brain Tumor
Last active: May 18, 2024