Brain Tumor Support Group

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Comments (376)

@geegeebabe I’m interested to hear more around your radiation experience. My partner is having gamma knife...

https://connect.mayoclinic.org/comment/1479657/

Discussion: Meningioma: Anyone else? I'm frightened

Support Group: Brain Tumor

Posted: Jan 11 12:16pm

Hi @helena49 I live in San Francisco Bay Area and was also diagnosed with ideopathic Pachymeningitis...

https://connect.mayoclinic.org/comment/76992/

Discussion: Pachymeningitis: Anyone else?

Support Group: Brain & Nervous System

Posted: Jul 17, 2020

I had a meningioma surgically removed about 6 years. I had options of surgery, doing nothing...

https://connect.mayoclinic.org/comment/185938/

Discussion: Any Optic Nerve Meningioma Patients Who've Had Surgery?

Support Group: Brain Tumor

Posted: Feb 7, 2019

Hello, I'm new to this group. I was diagnosed with Pachymeningitis in November 2016 via a...

https://connect.mayoclinic.org/comment/76955/

Discussion: Pachymeningitis: Anyone else?

Support Group: Brain & Nervous System

Posted: Feb 20, 2017

I am sorry to hear about your painful experience. I have a skull based meningioma near...

https://connect.mayoclinic.org/comment/1535087/

Discussion: Optic Sheath Meningioma, 6 Wks radiation, ongoing chonic pain.

Support Group: Brain Tumor

Posted: 1 day ago

Hello. Yes,I’m had a Meningioma. It was discovered in 2021 and I had the procedure in...

https://connect.mayoclinic.org/comment/1297107/

Discussion: Meningioma: Anyone else? I'm frightened

Support Group: Brain Tumor

Posted: May 5, 2025

I too have the same thing. Gamma knife radiation 6 months ago. Just started having symptoms...

https://connect.mayoclinic.org/comment/1247780/

Discussion: Steroid treatment for brain edema to be replaced by Boswellia.

Support Group: Brain Tumor

Posted: Mar 1, 2025

I have the exact same tumor. It is inoperable because it’s in the ICA and 5...

https://connect.mayoclinic.org/comment/254881/

Discussion: Cavernous sinus meningioma

Support Group: Brain Tumor

Posted: Jan 24, 2020

Gamma knife surgery worked well for my husband. After 10 years the tumor is actually shrinking...

https://connect.mayoclinic.org/comment/84341/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Nov 14, 2017

Monique: Hang in there. I have a meningioma that was partially resected late 2020 and had...

https://connect.mayoclinic.org/comment/1165650/

Discussion: Meningioma: Anyone else? I'm frightened

Support Group: Brain Tumor

Posted: Oct 31, 2024

I had the Gamma Knife treatment for a Meningioma in March. By accident I was told...

https://connect.mayoclinic.org/comment/1089272/

Discussion: Anyone having Gamma Knife for parafalcine (parafalx) meningioma?

Support Group: Brain Tumor

Posted: Jun 18, 2024

Hi... a family member had a meningioma treated at Mayo Rochester last August with the gamma...

https://connect.mayoclinic.org/comment/255050/

Discussion: Left Anterior Clinoid Meningioma Surgery

Support Group: Brain Tumor

Posted: Mar 15, 2019

Hello, when i had my gamma knife procedure (mar 22) recovery was difficult for a few...

https://connect.mayoclinic.org/comment/1199337/

Discussion: Meningioma: Anyone else? I'm frightened

Support Group: Brain Tumor

Posted: Dec 29, 2024

I did have Gamma knife for my menginoma to try to slow or stop the growth...

https://connect.mayoclinic.org/comment/806972/

Discussion: Stereotactic Radiosurgery Surgery (Gamma or Cyberknife) for Meningioma

Support Group: Brain Tumor

Posted: Feb 6, 2023

Hey there. New Dr says it grew 1mm in 6 months and bc of the location,...

https://connect.mayoclinic.org/comment/873207/

Discussion: Watching a Meningioma Brain Tumor

Support Group: Brain Tumor

Posted: Jun 5, 2023

Since yours is small enough for Gamma knife, from what I understand about size of yours,...

https://connect.mayoclinic.org/comment/966644/

Discussion: Neurosurgeon visit: Should I get another appointment?

Support Group: Brain Tumor

Posted: Nov 17, 2023

I did have surgery in 2019 for size and symptoms. Came out of that lengthy procedure...

https://connect.mayoclinic.org/comment/820228/

Discussion: Choosing how to handle a regrowth of a meningioma gamma knife/surgery

Support Group: Brain Tumor

Posted: Mar 3, 2023

I have all those symptoms and I haven't had the gamma knife surgery yet and I...

https://connect.mayoclinic.org/comment/84695/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Jun 7, 2020

It looks like I am late to the party in joining connect. If, however, anyone is...

https://connect.mayoclinic.org/comment/84689/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Apr 10, 2020

Hello, After my radiation and chemo treatments I had gamma knife treatment for a glioblastoma brain...

https://connect.mayoclinic.org/comment/1368601/

Discussion: Side effects of gamma knife treatment

Support Group: Brain Tumor

Posted: Aug 11, 2025

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