Brain Tumor Support Group

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Comments (181)

The Mayo Clinic team works together so well. Great to hear your testmonials to the team....

https://connect.mayoclinic.org/comment/84628/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Jan 30, 2019

Hi @saucy I encourage you to join this discussion about acoustic neuromas https://connect.mayoclinic.org/discussion/my-name-is-tracy-daley-i-live-in-omaha-nebraska-my-diagnosis/ where other Connect...

https://connect.mayoclinic.org/comment/170568/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Oct 1, 2017

I was happy to hear that all is well. It is interesting to hear your tumor...

https://connect.mayoclinic.org/comment/131895/

Discussion: So scared: Brain tumor on watch and wait has grown

Support Group: Brain Tumor

Posted: Jan 17, 2017

@alexie1942, here is the discussion where members like @sarasally2 @ellene @vickid117 @dlmassot @saucy @sepdvm are talking...

https://connect.mayoclinic.org/comment/775510/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Nov 20, 2022

Hello from a 75-year old who has been dealing with two acoustic neuromas since 2006. At...

https://connect.mayoclinic.org/comment/1195761/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Dec 23, 2024

Hi Tracey, my name is Steve. I was Diagnosed with a 4.7cm AN. Today is the...

https://connect.mayoclinic.org/comment/84656/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Mar 20, 2019

Hi, my name is Steve. I was Diagnosed with a 4.7cm (very large) Acoustic Nueroma Vestibular...

https://connect.mayoclinic.org/comment/84625/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Jan 28, 2019

Hey Saucy> Yes I had a 3.5 tumor (acustic Nuroma) removed from my brain stem in...

https://connect.mayoclinic.org/comment/170574/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Oct 2, 2017

GoodMorning KKK: I don't know where you live, or who your Doctors are. But the U...

https://connect.mayoclinic.org/comment/84319/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Apr 23, 2017

I had surgery 4 months ago for acustic neuroma

https://connect.mayoclinic.org/comment/84300/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Apr 20, 2017

@kathp Good morning, Based on my family’s history I believe there is at least a strong...

https://connect.mayoclinic.org/comment/668337/

Discussion: Hereditary and one sided Acoustic Neuroma

Support Group: Brain Tumor

Posted: Jan 6, 2022

Just a point of clarification...though the majority of acoustic neuromas (also called vestibular schwannomas) usually do...

https://connect.mayoclinic.org/comment/131898/

Discussion: So scared: Brain tumor on watch and wait has grown

Support Group: Brain Tumor

Posted: Jan 17, 2017

It looks like I am late to the party in joining connect. If, however, anyone is...

https://connect.mayoclinic.org/comment/84689/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Apr 10, 2020

I can relate to your balance challenges. While I had GammaKnife treatment for my two acoustic...

https://connect.mayoclinic.org/comment/1371386/

Discussion: Acoustic Neuroma: Balance issues years after treatment

Support Group: Brain Tumor

Posted: Aug 15, 2025

Colleen, thank you so much for following up. For some reason, I missed your previous note...

https://connect.mayoclinic.org/comment/1345331/

Discussion: Any experience with ganglion cyst misdiagnosed as acoustic neuroma?

Support Group: Brain Tumor

Posted: Jul 10, 2025

You don't need a doctor's referral, @sarasally2. You can self-refer. Both the Florida and Arizona campuses...

https://connect.mayoclinic.org/comment/84665/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Aug 29, 2019

Hi Colleen I had surgery last Sept for an Acoustic Neurona and am still a patient...

https://connect.mayoclinic.org/comment/259589/

Discussion: Mayo Appointments: Brain Tumor 48-hour Access Program

Support Group: Brain Tumor

Posted: Jun 14, 2019

My husband has had 2 acoustic neuromas seven years apart removed. They have been wrapped around...

https://connect.mayoclinic.org/comment/84612/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Jan 10, 2019

Hello @rose4622 and @bomashisha. I would like to add a welcome to Teresas and add that...

https://connect.mayoclinic.org/comment/84426/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Jul 28, 2018

Im sorry im just now responding to this. I found out i had an acustic neuroma...

https://connect.mayoclinic.org/comment/84302/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Apr 20, 2017

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