Brain Tumor Support Group

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Comments (376)

@daphne2020 - I welcome you too! My daughter had a pituitary adenoma removed 10 years ago...

https://connect.mayoclinic.org/comment/319315/

Discussion: Saying Hello! Just had surgery for a pituitary tumor

Support Group: Brain Tumor

Posted: Aug 15, 2020

@Iphillips May I asked what part of the dura or brain is affected by the inflammation/Pachymeningitis?...

https://connect.mayoclinic.org/comment/77013/

Discussion: Pachymeningitis: Anyone else?

Support Group: Brain & Nervous System

Posted: Feb 11, 2021

I can understand your confusion. When I had mine in 1997 they did not have proton...

https://connect.mayoclinic.org/comment/84287/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Nov 23, 2016

Thank You for your reply. My sister has been on anti seizure meds since her surgery...

https://connect.mayoclinic.org/comment/155327/

Discussion: Anyone have multiple meningioma brain tumors?

Support Group: Brain Tumor

Posted: Jul 8, 2017

Hello, I’m sorry to hear that you’re going through this stress! I also had a tumor...

https://connect.mayoclinic.org/comment/744447/

Discussion: Diagnosed with Meningioma

Support Group: Brain Tumor

Posted: Sep 2, 2022

@deborah52 :I also have an 8mm meningioma in that same location. So far, based on my...

https://connect.mayoclinic.org/comment/1464727/

Discussion: Parasagittal meningioma adjacent to the posterior right frontal lobe

Support Group: Brain Tumor

Posted: Dec 20, 2025

I had Gamma Knife in April of 2020 for bilateral Vestibular Schwannomas (an acoustic neuroma on...

https://connect.mayoclinic.org/comment/322746/

Discussion: What were your experiences with the head frame for Gamma Knife?

Support Group: Brain Tumor

Posted: Sep 22, 2020

Me! 9x12 mm. Anterior falx…. Under a web of veins of course. Said if did surgery...

https://connect.mayoclinic.org/comment/1284100/

Discussion: Does anyone have a falx meningioma in-between the brain hemispheres?

Support Group: Brain Tumor

Posted: Apr 17, 2025

@lisaj63 good morning. Gamma knife is a procedure using a one time radiation treatment. I went...

https://connect.mayoclinic.org/comment/1429653/

Discussion: Meningioma: Anyone else? I'm frightened

Support Group: Brain Tumor

Posted: Nov 3, 2025

I’ve had surgery and follow-up gamma knife for a macro-adenoma as well, resulting in panhypopituary (no...

https://connect.mayoclinic.org/comment/744916/

Discussion: Pituitary macroadenoma: Is anyone familiar with Apathy Syndrome?

Support Group: Brain Tumor

Posted: Sep 3, 2022

Hi @nanatessie ,I have had some experience with meningiomas involving the optic nerve. I had a...

https://connect.mayoclinic.org/comment/318787/

Discussion: Gamma knife treatment in 2018 for meningioma around the optic area

Support Group: Brain Tumor

Posted: Aug 9, 2020

Hi , I had a very large meningioma and surgery for it in June of 2016....

https://connect.mayoclinic.org/comment/238537/

Discussion: Stereotactic Radiosurgery Surgery (Gamma or Cyberknife) for Meningioma

Support Group: Brain Tumor

Posted: Jan 31, 2019

Another update here. So I feel really confident in 1 Dr. who is out at Stanford...

https://connect.mayoclinic.org/comment/885849/

Discussion: Watching a Meningioma Brain Tumor

Support Group: Brain Tumor

Posted: Jun 27, 2023

I was diagnosed in 2005 with a menginoma tumor. My neurologist said they are almost always...

https://connect.mayoclinic.org/comment/1105672/

Discussion: Meningioma: Anyone else? I'm frightened

Support Group: Brain Tumor

Posted: Jul 14, 2024

Gamma knife is something I have not experienced. I understand a halo is attached/ kind of...

https://connect.mayoclinic.org/comment/1210923/

Discussion: Cyberknife surgery for Meniogima side effects?

Support Group: Brain Tumor

Posted: Jan 13, 2025

Hi I had symptoms in 2018, being cross-eyed in my left eye, that lead to an...

https://connect.mayoclinic.org/comment/1104127/

Discussion: I have a minimum eleven meningiomas is this normal?

Support Group: Brain Tumor

Posted: Jul 12, 2024

Dear Rose4622, my tumor was found after a visit to the ER because I had fallen,...

https://connect.mayoclinic.org/comment/84424/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Jul 28, 2018

I’m a little unsure if I’m posting in the correct location, but here goes: In 2002...

https://connect.mayoclinic.org/comment/1085829/

Discussion: My Husband's journey with Glioblastoma

Support Group: Brain Tumor

Posted: Jun 12, 2024

I’m 42 years old and doctors found a meningioma on an MrI in June 2024. The...

https://connect.mayoclinic.org/comment/1186071/

Discussion: Cavernous sinus meningioma

Support Group: Brain Tumor

Posted: Dec 7, 2024

Joan, How distressing to hear of your consult with a neurologist! Not only did he ignore...

https://connect.mayoclinic.org/comment/271914/

Discussion: Lump by screw from gamma knife surgery, anyone else?

Support Group: Brain Tumor

Posted: Feb 4, 2020

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