Brain Tumor Support Group

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Comments (385)

Had my gamma knife procedure on 3/14 - no side effects yet. Been advised to contact...

https://connect.mayoclinic.org/comment/827035/

Discussion: Choosing how to handle a regrowth of a meningioma gamma knife/surgery

Support Group: Brain Tumor

Posted: Mar 16, 2023

I am 66 years old with high blood pressure and bone spurs all over from sitting...

https://connect.mayoclinic.org/comment/1524971/

Discussion: Schwannoma tumor (Nowotwór nerwiak schwannona)

Support Group: Brain Tumor

Posted: Mar 11 11:30pm

Three months ago I had a 6”+ frontal lobe atypical meningioma removed via craniotomy. Surgery was...

https://connect.mayoclinic.org/comment/1292101/

Discussion: Post craniotomy did anyone have weird sensations? Throbbing?

Support Group: Brain Tumor

Posted: Apr 28, 2025

Interestingly I had a similar experience in that my neurosurgeon told me I had 1 tumor,...

https://connect.mayoclinic.org/comment/1091196/

Discussion: I have a minimum eleven meningiomas is this normal?

Support Group: Brain Tumor

Posted: Jun 21, 2024

Many prayers to you @broncosport1 I’m new to this and also have a meningioma that’s over...

https://connect.mayoclinic.org/comment/815290/

Discussion: Choosing how to handle a regrowth of a meningioma gamma knife/surgery

Support Group: Brain Tumor

Posted: Feb 22, 2023

@as72 Hello, I became unable to get out of a chair. My partner called an ambulance...

https://connect.mayoclinic.org/comment/1455740/

Discussion: Has anyone been diagnosed with Meningioma with edema?

Support Group: Brain Tumor

Posted: Dec 7, 2025

I saw this 'Accoustic Neuroma' subject and had to stop in. I had an AN in...

https://connect.mayoclinic.org/comment/84271/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Nov 1, 2016

No other options per neuro surgeon in Tucson AZ. He has done 1 a year in...

https://connect.mayoclinic.org/comment/185902/

Discussion: Any Optic Nerve Meningioma Patients Who've Had Surgery?

Support Group: Brain Tumor

Posted: Feb 20, 2018

@daphne2020 - I welcome you too! My daughter had a pituitary adenoma removed 10 years ago...

https://connect.mayoclinic.org/comment/319315/

Discussion: Saying Hello! Just had surgery for a pituitary tumor

Support Group: Brain Tumor

Posted: Aug 15, 2020

@Iphillips May I asked what part of the dura or brain is affected by the inflammation/Pachymeningitis?...

https://connect.mayoclinic.org/comment/77013/

Discussion: Pachymeningitis: Anyone else?

Support Group: Brain & Nervous System

Posted: Feb 11, 2021

I can understand your confusion. When I had mine in 1997 they did not have proton...

https://connect.mayoclinic.org/comment/84287/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Nov 23, 2016

Thank You for your reply. My sister has been on anti seizure meds since her surgery...

https://connect.mayoclinic.org/comment/155327/

Discussion: Anyone have multiple meningioma brain tumors?

Support Group: Brain Tumor

Posted: Jul 8, 2017

Hello, I’m sorry to hear that you’re going through this stress! I also had a tumor...

https://connect.mayoclinic.org/comment/744447/

Discussion: Diagnosed with Meningioma

Support Group: Brain Tumor

Posted: Sep 2, 2022

@deborah52 :I also have an 8mm meningioma in that same location. So far, based on my...

https://connect.mayoclinic.org/comment/1464727/

Discussion: Parasagittal meningioma adjacent to the posterior right frontal lobe

Support Group: Brain Tumor

Posted: Dec 20, 2025

I had Gamma Knife in April of 2020 for bilateral Vestibular Schwannomas (an acoustic neuroma on...

https://connect.mayoclinic.org/comment/322746/

Discussion: What were your experiences with the head frame for Gamma Knife?

Support Group: Brain Tumor

Posted: Sep 22, 2020

Me! 9x12 mm. Anterior falx…. Under a web of veins of course. Said if did surgery...

https://connect.mayoclinic.org/comment/1284100/

Discussion: Does anyone have a falx meningioma in-between the brain hemispheres?

Support Group: Brain Tumor

Posted: Apr 17, 2025

@lisaj63 good morning. Gamma knife is a procedure using a one time radiation treatment. I went...

https://connect.mayoclinic.org/comment/1429653/

Discussion: Meningioma: Anyone else? I'm frightened

Support Group: Brain Tumor

Posted: Nov 3, 2025

@colleenyoung Thanks for asking. My partner had Gamma Knife Surgery two weeks ago today. The procedure...

https://connect.mayoclinic.org/comment/1491735/

Discussion: Have you had Gamma knife surgery? What can I expect?

Support Group: Brain Tumor

Posted: Jan 27 10:20am

I’ve had surgery and follow-up gamma knife for a macro-adenoma as well, resulting in panhypopituary (no...

https://connect.mayoclinic.org/comment/744916/

Discussion: Pituitary macroadenoma: Is anyone familiar with Apathy Syndrome?

Support Group: Brain Tumor

Posted: Sep 3, 2022

Hi @nanatessie ,I have had some experience with meningiomas involving the optic nerve. I had a...

https://connect.mayoclinic.org/comment/318787/

Discussion: Gamma knife treatment in 2018 for meningioma around the optic area

Support Group: Brain Tumor

Posted: Aug 9, 2020

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