Brain Tumor Support Group

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Comments (385)

Good Evening! Thanks for all the useful information. How did your MRI go the end of...

https://connect.mayoclinic.org/comment/116359/

Discussion: Anyone have multiple meningioma brain tumors?

Support Group: Brain Tumor

Posted: Jul 25, 2017

I have had experience with this. My surgeon removed as much as he could, but I...

https://connect.mayoclinic.org/comment/185910/

Discussion: Any Optic Nerve Meningioma Patients Who've Had Surgery?

Support Group: Brain Tumor

Posted: Mar 16, 2018

I should do more homework on how to do this site, but hopefully I am on...

https://connect.mayoclinic.org/comment/84285/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Nov 22, 2016

Hello, I was diagnosed in 2007 with a tumor in the left occipital side of my...

https://connect.mayoclinic.org/comment/985634/

Discussion: Anyone diagnosed with Hemangiopericytoma (solid fibrous tumor)?

Support Group: Brain Tumor

Posted: Dec 23, 2023

My husband was diagnosed with glioblastoma stage 4 wild rose in November 2024. At that time...

https://connect.mayoclinic.org/comment/1524591/

Discussion: Share Your Brain Tumor type & Years since Diagnosis

Support Group: Brain Tumor

Posted: Mar 11 10:52am

Yes, I have a rare benign brain tumor - a trigeminal schwannoma. Though it is not...

https://connect.mayoclinic.org/comment/49913/

Discussion: Looking for Others with Brain Tumors

Support Group: Brain Tumor

Posted: Jul 16, 2011

@sturns - I’m sorry to hear about your wife’s struggle with her treatments, but the results...

https://connect.mayoclinic.org/comment/780522/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 3, 2022

Hello. I had the Gamma Knife a year ago in March. I had it done at...

https://connect.mayoclinic.org/comment/1290128/

Discussion: Has anyone traveled for their meningioma surgery?

Support Group: Brain Tumor

Posted: Apr 26, 2025

Hi Pranas, How large is your tumor? Are you having any side effects from it. My...

https://connect.mayoclinic.org/comment/185894/

Discussion: Any Optic Nerve Meningioma Patients Who've Had Surgery?

Support Group: Brain Tumor

Posted: Feb 20, 2018

I was diagnosed with an Acoustic Neuroma on my left side in February 2006. It's size...

https://connect.mayoclinic.org/comment/84552/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Nov 7, 2018

Hello @mrsjrocellis1 and welcome to Mayo Clinic Connect. Thinking about surgery can make a lot of...

https://connect.mayoclinic.org/comment/806658/

Discussion: Stereotactic Radiosurgery Surgery (Gamma or Cyberknife) for Meningioma

Support Group: Brain Tumor

Posted: Feb 5, 2023

Hi. I had Gamma Knife this past March. The only thing that I didn’t like (which...

https://connect.mayoclinic.org/comment/1105467/

Discussion: I have a minimum eleven meningiomas is this normal?

Support Group: Brain Tumor

Posted: Jul 14, 2024

Hello, I am sorry to hear your ordeal. You seemed to be angry with your surgeon...

https://connect.mayoclinic.org/comment/1380015/

Discussion: Atypical Grade 2 Meningioma Recurrence

Support Group: Brain Tumor

Posted: Aug 26, 2025

Hi Nancy, welcome to Connect. I moved your message to the Brain Tumor group to a...

https://connect.mayoclinic.org/comment/116338/

Discussion: Anyone have multiple meningioma brain tumors?

Support Group: Brain Tumor

Posted: Jul 4, 2017

Hi @tracyb and @megmor and cc to @cgrammie2. I was diagnosed November 2016 after a mini...

https://connect.mayoclinic.org/comment/76968/

Discussion: Pachymeningitis: Anyone else?

Support Group: Brain & Nervous System

Posted: Mar 6, 2018

Thanks so much for your reply. My sister had some complications with her surgery in 2001,...

https://connect.mayoclinic.org/comment/155326/

Discussion: Anyone have multiple meningioma brain tumors?

Support Group: Brain Tumor

Posted: Jul 8, 2017

Hi @loolookirl You should be referred to a neurosurgeon. The Neurologist did the same to me...

https://connect.mayoclinic.org/comment/254892/

Discussion: Cavernous sinus meningioma

Support Group: Brain Tumor

Posted: Aug 28, 2020

I was diagnosed with a meningioma in 2018. I was having double vision at night. My...

https://connect.mayoclinic.org/comment/1108620/

Discussion: Meningioma: Anyone else? I'm frightened

Support Group: Brain Tumor

Posted: Jul 20, 2024

@lisaj63: I had my craniotomy exactly 2 years ago at UCSF and just had a zoom...

https://connect.mayoclinic.org/comment/1430281/

Discussion: Meningioma: Anyone else? I'm frightened

Support Group: Brain Tumor

Posted: Nov 3, 2025

Everyone is different. I had a meningioma that grew and broke through my brain lining, which...

https://connect.mayoclinic.org/comment/867781/

Discussion: Anyone have multiple meningioma brain tumors?

Support Group: Brain Tumor

Posted: May 27, 2023

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