Brain Tumor Support Group

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Comments (283)

Hi Nancy, welcome to Connect. I moved your message to the Brain Tumor group to a...

https://connect.mayoclinic.org/comment/116338/

Discussion: Anyone have multiple meningioma brain tumors?

Support Group: Brain Tumor

Posted: Jul 4, 2017

Hi @tracyb and @megmor and cc to @cgrammie2. I was diagnosed November 2016 after a mini...

https://connect.mayoclinic.org/comment/76968/

Discussion: Pachymeningitis: Anyone else?

Support Group: Brain & Nervous System

Posted: Mar 6, 2018

Thanks so much for your reply. My sister had some complications with her surgery in 2001,...

https://connect.mayoclinic.org/comment/155326/

Discussion: Anyone have multiple meningioma brain tumors?

Support Group: Brain Tumor

Posted: Jul 8, 2017

I was diagnosed with a meningioma in 2018. I was having double vision at night. My...

https://connect.mayoclinic.org/comment/1108620/

Discussion: Meningioma: Anyone else? I'm frightened

Support Group: Brain Tumor

Posted: Jul 20, 2024

Hi @loolookirl You should be referred to a neurosurgeon. The Neurologist did the same to me...

https://connect.mayoclinic.org/comment/254892/

Discussion: Cavernous sinus meningioma

Support Group: Brain Tumor

Posted: Aug 28, 2020

Everyone is different. I had a meningioma that grew and broke through my brain lining, which...

https://connect.mayoclinic.org/comment/867781/

Discussion: Anyone have multiple meningioma brain tumors?

Support Group: Brain Tumor

Posted: May 27, 2023

Had my gamma knife procedure on 3/14 - no side effects yet. Been advised to contact...

https://connect.mayoclinic.org/comment/827035/

Discussion: Choosing how to handle a regrowth of a meningioma gamma knife/surgery

Support Group: Brain Tumor

Posted: Mar 16, 2023

Interestingly I had a similar experience in that my neurosurgeon told me I had 1 tumor,...

https://connect.mayoclinic.org/comment/1091196/

Discussion: I have a minimum eleven meningiomas is this normal?

Support Group: Brain Tumor

Posted: Jun 21, 2024

Many prayers to you @broncosport1 I’m new to this and also have a meningioma that’s over...

https://connect.mayoclinic.org/comment/815290/

Discussion: Choosing how to handle a regrowth of a meningioma gamma knife/surgery

Support Group: Brain Tumor

Posted: Feb 22, 2023

I saw this 'Accoustic Neuroma' subject and had to stop in. I had an AN in...

https://connect.mayoclinic.org/comment/84271/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Nov 1, 2016

No other options per neuro surgeon in Tucson AZ. He has done 1 a year in...

https://connect.mayoclinic.org/comment/185902/

Discussion: Any Optic Nerve Meningioma Patients Who've Had Surgery?

Support Group: Brain Tumor

Posted: Feb 20, 2018

@Iphillips May I asked what part of the dura or brain is affected by the inflammation/Pachymeningitis?...

https://connect.mayoclinic.org/comment/77013/

Discussion: Pachymeningitis: Anyone else?

Support Group: Brain & Nervous System

Posted: Feb 11, 2021

I can understand your confusion. When I had mine in 1997 they did not have proton...

https://connect.mayoclinic.org/comment/84287/

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Nov 23, 2016

@daphne2020 - I welcome you too! My daughter had a pituitary adenoma removed 10 years ago...

https://connect.mayoclinic.org/comment/319315/

Discussion: Saying Hello! Just had surgery for a pituitary tumor

Support Group: Brain Tumor

Posted: Aug 15, 2020

Thank You for your reply. My sister has been on anti seizure meds since her surgery...

https://connect.mayoclinic.org/comment/155327/

Discussion: Anyone have multiple meningioma brain tumors?

Support Group: Brain Tumor

Posted: Jul 8, 2017

Hello, I’m sorry to hear that you’re going through this stress! I also had a tumor...

https://connect.mayoclinic.org/comment/744447/

Discussion: Diagnosed with Meningioma

Support Group: Brain Tumor

Posted: Sep 2, 2022

Gamma knife is something I have not experienced. I understand a halo is attached/ kind of...

https://connect.mayoclinic.org/comment/1210923/

Discussion: Cyberknife surgery for Meniogima side effects?

Support Group: Brain Tumor

Posted: 3 days ago

I had Gamma Knife in April of 2020 for bilateral Vestibular Schwannomas (an acoustic neuroma on...

https://connect.mayoclinic.org/comment/322746/

Discussion: What were your experiences with the head frame for Gamma Knife?

Support Group: Brain Tumor

Posted: Sep 22, 2020

I’ve had surgery and follow-up gamma knife for a macro-adenoma as well, resulting in panhypopituary (no...

https://connect.mayoclinic.org/comment/744916/

Discussion: Pituitary macroadenoma: Is anyone familiar with Apathy Syndrome?

Support Group: Brain Tumor

Posted: Sep 3, 2022

Hi @nanatessie ,I have had some experience with meningiomas involving the optic nerve. I had a...

https://connect.mayoclinic.org/comment/318787/

Discussion: Gamma knife treatment in 2018 for meningioma around the optic area

Support Group: Brain Tumor

Posted: Aug 9, 2020

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