Has anyone had Gamma Knife for a glomus jugulare benign tumor?

Posted by jmotte12 @jmotte12, Jan 1, 2023

I had Gamma Knife in January 2022. I am doing very well. My tumor had not shrunk at this point. I was told it could take years because a benign tumor reacts differently than a malignant tumor. Just wondering how anyone else is doing from the GKS.

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Amanda Roe | @amandajro | Jan 2, 2023

Hello @jmotte12 and welcome to Mayo Clinic Connect. I thought you may find this article interesting.

- Gamma Knife radiosurgery for glomus jugulare tumors: a single-center series of 75 cases: https://thejns.org/view/journals/j-neurosurg/126/5/article-p1488.xml.

You are one year out from your GKS. When is your next follow up to see if you have any improvement to the size of your tumor?

Colleen Young, Connect Director | @colleenyoung | Jan 8, 2023

Hi @jmotte12, I add my welcome. You may wish to connect with @sharik and other members in this related discussion:
- Does anyone have a glomus brain tumor (paraganglioma)? https://connect.mayoclinic.org/discussion/glomus-brain-tumors-1/

vermont10 | @vermont10 | Jan 9, 2023

Did you have Gamma at Mayo. Was it with a frame or mask.

Colleen Young, Connect Director | @colleenyoung | Jan 22, 2023

In reply to @vermont10 "Did you have Gamma at Mayo. Was it with a frame or mask." + (show)

@vermont10, I believe your question was directed to @jmotte12, who I've tagged here to make sure they receive it.

Vermont, will you be having gammaknife at Mayo Clinic soon?

jmotte12 | @jmotte12 | Jan 18 12:22pm

In reply to @vermont10 "Did you have Gamma at Mayo. Was it with a frame or mask." + (show)

@vermont10

I had it at MUSC Charleston. I had a frame.

texashummingbird | @texashummingbird | Jan 21 11:31am

Hello, is the Gamma Knife for treating a Paraganglioma similar at all, to the Photon Knife used at the Vanderbilt University Medical Center Clinical Research Center for Cushings Disease pituitary tumors back in the early 1990's? My Mother had this done to her pituitary there, and it did not work at all. Transferred Mom to the Mayo Clinic MN and had successful transsphenoidal pituitary surgery, with Dr. David Piepgras and Dr. Dudley Davis, and she lived 10 more great years to 81. Thank you Mayo Rochester Endocrinology (Dr. Paul Carpenter) and Neurosurgery, from all our family!! I have just been diagnosed with a Paraganglioma tumor in my right neck, and starting my journey in Houston.