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Polycythemia causing high output cardiac failure
My spouse has polycythemia Vera, dx about 6 years ago. She did well on hydrea 500mg daily until about 3 months ago. Her platelets began...
Last active: Sep 2, 2023
Discussion
Has anyone told they went into remission without treatment?
I was diagnosed with MF in March. I had been seeing an oncologist for 15 months for Multiple Myeoloma, which hasn't been diagnosed yet. In...
Last active: Apr 28, 2025
Discussion
How high should my Kappa light chain continue to rise before I worry.?
My Kappa light chains continue to rise each time I have my labs run. They are now 90. The ratio rises also. But everything else...
Last active: Jan 2 12:12pm
Discussion
Starting MGUS journey: It feels like the "in limbo" disease
Hi all, I am very new my first post. My journey started going for regular coughs and uti’s. I was exhausted. GP phoned said all...
Last active: Nov 8, 2025
Discussion
In regard to lab results
Hi! I’m new here. I just want to get some insight on my lab results. I went to my hematologist to get some lab work...
Last active: Jun 23, 2025
Discussion
Que nuevas terapias se aplican actualmente? New therapies for myeloma?
me diagnosticaron mieloma múltiple en enero de 2015 y hasta ahora me trataron con infusiones y vía oral (bortezomib, etc.) actualmente lenalidomida y en el...
Last active: Feb 13, 2024
Discussion
My Autologous Stem Cell Transplant Journey - Mayo, Phoenix
First of all I have to give a huge shout out to my whole stem cell team. I can’t think them enough for making such...
Last active: Jul 28, 2023
Discussion
Clarkson's Disease and Systemic Myeloma
This is really about two issues: First, systemic myeloma, a cancer, which attacks every cell in the body and makes some diagnosticians think the patient...
Support Group: Cancer
Last active: Oct 27, 2021
Discussion
Anybody else have blackout memory issues?
I'm on a drug called pomalyst. I have Multiple MyelomaI was given 4 years when I first found out I had it. I got chemo...
Last active: Dec 9, 2024
Discussion
Acyclovir: Have You Been On It and How Long?
When I began my treatments (just two shots) in February of 2022, I was prescribed Acyclivir and Bactrim. Consultation with specialist from Mayo Rochester resulted...
Last active: Aug 20, 2024