Blood Cancers & Disorders Support Group

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Comment

Julie, I moved your message to the Cancer group where you can meet others who may...

https://connect.mayoclinic.org/comment/113902/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Sep 8, 2016

Comment

I had lab work for Amyloidosis and everything was good. Does that mean I dont have...

https://connect.mayoclinic.org/comment/1185293/

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2024

Comment

@loribmt thank you for this really helpful post, Lori! I had shortness of breath since 2013,...

https://connect.mayoclinic.org/comment/1041665/

Discussion: Abnormal bloodwork questions

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2024

Comment

ah. Are you concerned there could be other things happening like amyloidosis? I'm the worrier who...

https://connect.mayoclinic.org/comment/1118177/

Discussion: Paraprotein & Light chains

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2024

Comment

I’m trying to connect with someone who not only has multiple myeloma but also amyloidosis to...

https://connect.mayoclinic.org/comment/873112/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

Comment

My husband was diagnosed with MGUS not long ago. He went to a cardiologist in Jacksonville...

https://connect.mayoclinic.org/comment/931005/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2023

Comment

Hi @marykatr, your post led me to do a bit of internet searching. I learned that...

https://connect.mayoclinic.org/comment/1183818/

Discussion: Anyone w/ both AL Amyloidosis & Acquired Von Willebrand Syndrome?

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2024

Comment

My diagnosis is in. Negative for amyloidosis. A hypertrophic, asymmetrical heart wall septum, plus a slightly...

https://connect.mayoclinic.org/comment/1220047/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2025

Comment

I was dx with Amyloidosis of the ATTR-CM wild type in 2022. The standard of care...

https://connect.mayoclinic.org/comment/1462426/

Discussion: Looking for guidance...possible amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2025

Comment

@casey1329 My husband who is 80 yrs old has been suffering for months with the same...

https://connect.mayoclinic.org/comment/900586/

Discussion: Possible Al Amylodiois

Support Group: Blood Cancers & Disorders

Posted: Jul 23, 2023