Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

814 total results

Comment

I have MDS/MPN with SF3B1 and ET. It's basically the same as MDS/MPN RS T -...

https://connect.mayoclinic.org/comment/970212/

Discussion: I have been diagnosed and under treatment for MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2023

Comment

@garyrp, I apologize for my delayed welcome to Connect. If you don't mind, are you comfortable...

https://connect.mayoclinic.org/comment/196818/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: May 7, 2018

Comment

Hi Brenda, As someone else who posted here said “Be your own advocate.” Since you are...

https://connect.mayoclinic.org/comment/963403/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

Comment

MDS 5q what happens now?I was diagnosed with Mds 5Q in 2019 did required blood tests...

https://connect.mayoclinic.org/comment/1080101/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2024

Comment

No tx yet. Fish analysis MDs extended: issues: Del5q, trisomy 8 and 19 all detected abnormal.

https://connect.mayoclinic.org/comment/1202390/

Discussion: Anyone living with MDS Extended diagnosis experience?

Support Group: Blood Cancers & Disorders

Posted: Jan 2 11:02am

Comment

I was diagnosed last year. I have MDS with del(5q). The initial diagnosis was confirmed with...

https://connect.mayoclinic.org/comment/1031602/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2024

Comment

Hi Hollie, There are several different types of MDS that indicate whether you are low or...

https://connect.mayoclinic.org/comment/962436/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2023

Comment

Good morning..has anyone taken this treatment for mds..that would be hopeful for me Thank you

https://connect.mayoclinic.org/comment/1058610/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Apr 28, 2024

Comment

By the way, check out the websites for Myleukemia.com, MyMPNteam, MPN Research Foundation, MDS-foundatio.org. They have...

https://connect.mayoclinic.org/comment/328595/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2021

Comment

MDS with 5Q and not responding to Lenalidomide, best options?Not responding to lenalidomide after 5 weeks,...

https://connect.mayoclinic.org/comment/1271172/

Discussion: What are your experiences with lenalidomide (Revlimid) for MDS?

Support Group: Blood Cancers & Disorders

Posted: Mar 31 4:21pm