Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

129 total results

Comment

Hi Lori. If I have already answered you please bear with me. lol. The hydroxy lowered...

https://connect.mayoclinic.org/comment/1098871/

Discussion: I've had CML for 20 years and want to encourage others

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

Comment

Follow your instincts! Continue to search for solutions. Try the resources that Lori gave you. My...

https://connect.mayoclinic.org/comment/1550163/

Discussion: Primary Myelofibrosis: so unsure of everything, need answers

Support Group: Blood Cancers & Disorders

Posted: Apr 14 7:44am

Comment

I am always so sad to hear stories from people who can't get a firm diagnosis...

https://connect.mayoclinic.org/comment/1002401/

Discussion: At my wits end. Not sure where to go from here.

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2024

Comment

I have bern on and off hydroxy for CMML which turned into AML I didn’t have...

https://connect.mayoclinic.org/comment/1352523/

Discussion: F/w PV- JAK2-pre-mylelofibrosis SCARED to start Hydroxyurea. Help!

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2025

Comment

I have only taken hydroxyurea and Jakafi. I was in a clinical study for a while...

https://connect.mayoclinic.org/comment/1368004/

Discussion: I would deeply appreciate feedback on patients diagnosed with CMML

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2025

Comment

I have had CMML for over 10 years. I started initially on HU for a couple...

https://connect.mayoclinic.org/comment/1666894/

Discussion: Diagnosed with CMML. On HU for past 6 months. Considering BESREMi.

Support Group: Blood Cancers & Disorders

Posted: Sep 9 11:12am

Comment

Hi @trijacks and welcome to Mayo Connect. Good grief, so your family doctor kept putting off...

https://connect.mayoclinic.org/comment/1463280/

Discussion: They say I have CMML but bone marrow not there: What to do?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2025

Comment

This gives me hope. I have been diagnosed with CMML border line AML. I have 6...

https://connect.mayoclinic.org/comment/1098689/

Discussion: Acute Myeloid Leukemia (AML) - Treatment of 75 year old is working!

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

Comment

Lori always has a wealth of knowledge to share with us when we are first diagnosed...

https://connect.mayoclinic.org/comment/1183515/

Discussion: What treatment options for CMML2 with no detected mutations ?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2024

Comment

Welcome to Connect, @lmoser325 Chronic Myelomonocytic Leukemia (CMML) is a type of leukemia disrupts the formation...

https://connect.mayoclinic.org/comment/1219683/

Discussion: They say I have CMML but bone marrow not there: What to do?

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2025

1
…
7
8
9
10
11
12