Blood Cancers & Disorders Support Group

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Comment

I, too, am interested in what feedback others have. My platelets are in the 500s and...

https://connect.mayoclinic.org/comment/941103/

Discussion: Worried about slightly elevated platelet count

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2023

Comment

I have had MGUS, then smouldering myeloma since 2013 with very small increases. 2 years ago...

https://connect.mayoclinic.org/comment/746666/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2022

Comment

Weclome @lwengel, as you likely already know, the most common treatment for polychythemia vera (PV) is...

https://connect.mayoclinic.org/comment/738023/

Discussion: When is hydroxurea usually added to treat polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2022

Comment

Hi @lwengel, this sounds like a really good question to ask your doctors. Sometimes you have...

https://connect.mayoclinic.org/comment/770258/

Discussion: PV and atrial fibrillation

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2022

Comment

I originally had a platelet count of 555 that started my journey. I was diagnosed with...

https://connect.mayoclinic.org/comment/780489/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2022

Comment

Hi @pennyhedgecoth, I'm tagging @stevehurlburt on this reply since I think your question about genetic testing...

https://connect.mayoclinic.org/comment/591406/

Discussion: JAK2 ASXL1 Mutations: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2021

Comment

Hi Keith, I moved your message to this existing discussion: - BESREMi anyone? https://connect.mayoclinic.org/discussion/besremi-anyone/ I did...

https://connect.mayoclinic.org/comment/911723/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2023

Comment

What was your Iron before the infusion? Mine has been between 4 and 6. And I...

https://connect.mayoclinic.org/comment/999945/

Discussion: Polycythemia and lack of iron

Support Group: Blood Cancers & Disorders

Posted: Jan 19 8:42am

Comment

Hi @cindyem I just read another comment you posted about having PV and anemia. From information...

https://connect.mayoclinic.org/comment/884148/

Discussion: Does anyone have information on PV with a low hemoglobin/ red count

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2023

Comment

Hi all. In December, I was diagnosed with a JAK2 mutation. Finally had my appointment with...

https://connect.mayoclinic.org/comment/231778/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2019