Blood Cancers & Disorders Support Group

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Comment

@eansgardengirl Hello, and welcome! I too have a new diagnosis of ET, and trying to navigate...

https://connect.mayoclinic.org/comment/778643/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2022

Comment

My platelets have steadily increased over the last 4-5 years. Always a little high resulting in...

https://connect.mayoclinic.org/comment/833183/

Discussion: Persistently Elevated Platelets Fluctuating

Support Group: Blood Cancers & Disorders

Posted: Mar 27, 2023

Comment

I have had Essential Thrombocytosis for almost 6 years now(with 1,250,000 platelet count) Was started on...

https://connect.mayoclinic.org/comment/146320/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2021

Comment

I would like info on EPO value and how that relates to ET and JAk 2....

https://connect.mayoclinic.org/comment/594544/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2021

Comment

3 years ago I was diagnosed with ET abut after a Bone Marrow biopsy, I was...

https://connect.mayoclinic.org/comment/328569/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2020

Comment

Is JAK 2 the same as policythemia vera. My dr. said only that the test was...

https://connect.mayoclinic.org/comment/194307/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2019

Comment

I have had leukemia for 3 yrs before being diagnosed with Jak 2

https://connect.mayoclinic.org/comment/194292/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2019

Comment

I was diagnosed in January with jak 2 mutation and ET. I’m new to this sight...

https://connect.mayoclinic.org/comment/845004/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2023

Comment

I was diagnosed 3 years ago with PV and positive for Jak 2. I take 2...

https://connect.mayoclinic.org/comment/869702/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

Comment

For me it was slight vertigo that made me not as steady on my feet, loss...

https://connect.mayoclinic.org/comment/872185/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2023