Blood Cancers & Disorders Support Group

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Comment

My Naturopathic Physician suggested I see a Oncologist or Hemotologist in 2013 because my Platelets were...

https://connect.mayoclinic.org/comment/194297/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2019

Comment

After asymptomatic high platelets in the 600 range, a bone marrow biopsy revealed JAK2 and I...

https://connect.mayoclinic.org/comment/940348/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2023

Comment

Ok from what I’m understanding is that you’ve been diagnosed with polycythemia vera. This is a...

https://connect.mayoclinic.org/comment/1137715/

Discussion: Polycythemia vera (PV) and bone pain: What helps?

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2024

Comment

Wonderful news that there’s no sign of lung cancer! That had to be a relief. I...

https://connect.mayoclinic.org/comment/1051623/

Discussion: How bad is a diagnosis of Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2024

Comment

I’m also thankful for this group! My very supportive husband found this for me. I was...

https://connect.mayoclinic.org/comment/975461/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2023

Comment

I was first alerted in May 2022 that all red blood count were high. No one...

https://connect.mayoclinic.org/comment/825133/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2023

Comment

Today diagnosed with ET/JAK 2 mutation. Hello ~ I have been reading other posts and recognize...

https://connect.mayoclinic.org/comment/782169/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2022

Comment

I was diagnosed with ET and I do have the Jak 2 mutation. Leading up to...

https://connect.mayoclinic.org/comment/776350/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 22, 2022

Comment

66 year old male, diagnosed ET with JAK2, June 2024. Last week my haematologist gave me...

https://connect.mayoclinic.org/comment/1211108/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 14 8:10am

Comment

Hi @rch552320 Your mom was recently diagnosed with thrombocytosis which is an excess of platelets in...

https://connect.mayoclinic.org/comment/1067044/

Discussion: 70 + year women with Thrombosis

Support Group: Blood Cancers & Disorders

Posted: May 13, 2024