Blood Cancers & Disorders Support Group

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Comment

I was diagnosed with ET JAK 2 about 15 years ago - no symptoms but found...

https://connect.mayoclinic.org/comment/1140166/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Sep 12 3:09am

Comment

The only patients I've whose docs allowed them to run platelet levels up to 1,000 were...

https://connect.mayoclinic.org/comment/1010586/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 6 9:31am

Comment

Hi, I just read your post and am sorry that you are having a tough time...

https://connect.mayoclinic.org/comment/820895/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2023

Comment

I am also jak 2 positive as of 2019 and mgus since 201 3, now smouldering...

https://connect.mayoclinic.org/comment/755881/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2022

Comment

Hi, Karen here. I was diagnosed about a month ago with Essential Thrombocytosemia, the rate type....

https://connect.mayoclinic.org/comment/783499/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2022

Comment

My platlets were at over a million and pain in my feet was unbearable. I had...

https://connect.mayoclinic.org/comment/599861/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: May 6, 2021

Comment

hEHello out there. My name is Nancy Bush (shortshot80,net) I arrived on the Mayo Clinic site...

https://connect.mayoclinic.org/comment/132610/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2017

Comment

Hello, About a year ago I was diagnosed with antiphospholipid antibody syndrome and JAK 2 Mutation...

https://connect.mayoclinic.org/comment/194326/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2019

Comment

Hi Justin, I have been thinking that maybe I should get another opinion at Mayo because...

https://connect.mayoclinic.org/comment/188873/

Discussion: Is Idiopathic Erythrocytosis (Polycythemia) cancer?

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2018

Comment

I'm five mos in from the discovery of JAK 2, started at 680, now hovering above...

https://connect.mayoclinic.org/comment/194365/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2020