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1,177 total results
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Discussions (74)
Comments (1,103)
Comment
Hi, i was diagnosed with primary polycythaemia 2 weeks back, dr has said that my Jak2...
https://connect.mayoclinic.org/comment/822183/
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Discussion:
Polycythemia Vera: Just been diagnosed
Support Group:
Blood Cancers & Disorders
Posted: Mar 7, 2023
Comment
Hi Bonnie, I’m saddened that you have been diagnosed with MDS/MPN-RS-T. I remember my original diagnosis...
https://connect.mayoclinic.org/comment/970297/
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Discussion:
I have been diagnosed and under treatment for MDS
Support Group:
Blood Cancers & Disorders
Posted: Nov 25, 2023
Comment
I don’t have EV, but I can give you first hand knowledge regarding hydroxyurea..I was diagnosed...
https://connect.mayoclinic.org/comment/784473/
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Discussion:
How did you make the final decision to begin HU protocol for ET?
Support Group:
Blood Cancers & Disorders
Posted: Dec 13, 2022
Comment
Hi @learnandlive I recently learned that PV can be related to sleep apnea as well. My...
https://connect.mayoclinic.org/comment/783163/
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Discussion:
Polycythemia Vera: Just been diagnosed
Support Group:
Blood Cancers & Disorders
Posted: Dec 10, 2022
Comment
Hi, ı am a patient who does have a MF/MDS overlap with JAk2 and SBF31 mutations,...
https://connect.mayoclinic.org/comment/328555/
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Discussion:
JAK2 Mutation, Low Iron and High Platelet count
Support Group:
Blood Cancers & Disorders
Posted: Nov 26, 2020
Comment
I take HU, 500 mg, 4x week, baby aspirin 2x day, and iron supplements 1x day....
https://connect.mayoclinic.org/comment/1210555/
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Discussion:
Does ET or HU affect liver functions?
Support Group:
Blood Cancers & Disorders
Posted: Jan 13 10:49am
Comment
Regarding hair loss: I've been on HU for two months; first month was 500mg daily with...
https://connect.mayoclinic.org/comment/1324276/
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Discussion:
New to Hydrea for ET
Support Group:
Blood Cancers & Disorders
Posted: Jun 10 11:36am
Comment
Hi Sherry, hope all is well. I am currently only on Aspirin. My hemo diagnosed the...
https://connect.mayoclinic.org/comment/1293272/
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Discussion:
Anyone living with Essential Thrombocythemia with JAK2?
Support Group:
Blood Cancers & Disorders
Posted: Apr 30 8:12am
Comment
A full blood test workup with the hematologist and an exam to determine the size of...
https://connect.mayoclinic.org/comment/1162672/
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Discussion:
JAK2 Mutation and enlarged spleen: What might it mean?
Support Group:
Blood Cancers & Disorders
Posted: Oct 25, 2024
Comment
Hello Debbie, Great to hear from you. I made my original post almost a year ago,...
https://connect.mayoclinic.org/comment/998935/
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Discussion:
Others out there with CEL (Chronic Eosinophilic Leukemia)?
Support Group:
Blood Cancers & Disorders
Posted: Jan 17, 2024
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