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Discussions (77)
Comments (1,128)
Comment
The HU should help to bring down the high platelet level to a more normal level....
https://connect.mayoclinic.org/comment/1209073/
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Discussion:
Starting 17th year with ET. What's ahead?
Support Group:
Blood Cancers & Disorders
Posted: Jan 11 11:43am
Comment
Hi @robinll. With PV (Polycytmenia Vera) it is generally the red blood count that is elevated,...
https://connect.mayoclinic.org/comment/1144372/
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Discussion:
What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?
Support Group:
Blood Cancers & Disorders
Posted: Sep 20, 2024
Comment
I have the JAK2 mutation and, like you, my high platelets were discovered by blood work...
https://connect.mayoclinic.org/comment/1076886/
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Discussion:
Is my treatment a bit aggressive?
Support Group:
Blood Cancers & Disorders
Posted: May 29, 2024
Comment
I am now 65 and have been taking Hydroxyurea for 10 years to keep my platelets...
https://connect.mayoclinic.org/comment/910025/
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Discussion:
Has anyone had experience with Jakafi?
Support Group:
Blood Cancers & Disorders
Posted: Aug 9, 2023
Comment
Yes, I am CALR-ET for at least 15 years, and I'm sure I come off like...
https://connect.mayoclinic.org/comment/816179/
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Discussion:
Shingrex and ET platelet levels
Support Group:
Blood Cancers & Disorders
Posted: Feb 23, 2023
Comment
Hello @kanaazpereira , The article you shared (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4562533/ ) answers alot of my inquiry. Just wondering...
https://connect.mayoclinic.org/comment/194287/
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Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Feb 14, 2019
Comment
After my JAK2 was found my O/H ordered a bone marrow biopsy which could be done...
https://connect.mayoclinic.org/comment/1270695/
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Discussion:
What are most common side effects when starting HU (Hydroxyurea)?
Support Group:
Blood Cancers & Disorders
Posted: Mar 31 8:22am
Comment
I think I may be one of the people with the Jak2 mutation that lay dormant...
https://connect.mayoclinic.org/comment/978261/
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Discussion:
Research on COVID 19 vax causing Essential Thrombocythemia?
Support Group:
Blood Cancers & Disorders
Posted: Dec 10, 2023
Comment
Hello @cgpak, I can understand your wanting to know about the experience of others with ET....
https://connect.mayoclinic.org/comment/337139/
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Discussion:
Spleen involvement in ET
Support Group:
Blood Cancers & Disorders
Posted: Mar 16, 2021
Comment
Hi...I have a condition called Myeloid/lymphoid neoplasms with PCM1-JAK2. My first indication of something wrong was...
https://connect.mayoclinic.org/comment/132623/
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Discussion:
Anyone want to talk about Myelofibrosis?
Support Group:
Blood Cancers & Disorders
Posted: May 7, 2020
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