Blood Cancers & Disorders Support Group

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Comment

I just turned 67, and was diagnosed with ET JAK2 a few months ago. Although I’m...

https://connect.mayoclinic.org/comment/1196178/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2024

Comment

New to this group. I've been diagnosed with an MPN ET with JAK2. Doctor has put...

https://connect.mayoclinic.org/comment/1192587/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2024

Comment

I also started with platelets over one million at age 39. Now I'm 69. I'm also...

https://connect.mayoclinic.org/comment/1041181/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Mar 27, 2024

Comment

I'm 69 years old, JAK2 mutation, and diagnosed with ET this past November with platelets around...

https://connect.mayoclinic.org/comment/1026487/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2024

Comment

That is such encouraging news. Thank you! I did have a bone marrow biopsy & I...

https://connect.mayoclinic.org/comment/799804/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2023

Comment

Thank you Eileen, before all this occurred (ET, JAK2) I had been discussing with drs about...

https://connect.mayoclinic.org/comment/798340/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2023

Comment

I am surprised you are starting on Pegasys first. From what I have read Hydroxyurea is...

https://connect.mayoclinic.org/comment/774166/

Discussion: High platelets, Jak2, ET, and pre-fib new diagnosis

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2022

Comment

Well, I’m 77 so pregnancy isn’t an option! But, it made me chuckle. I was diagnosed...

https://connect.mayoclinic.org/comment/1348048/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jul 14 12:00pm

Comment

I've had ET w/JAK2 since 4/21/21. I've taken HU ever since. I had pallets as high...

https://connect.mayoclinic.org/comment/1301340/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: May 10 5:01pm

Comment

Your post is uplifting & amazing. I have been taking 1000mg HU now for 3 weeks....

https://connect.mayoclinic.org/comment/1042373/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2024