Blood Cancers & Disorders Support Group

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Comment

Hi Pumpkin1, Me, too, ET w/ JAK2. My primary sent me to a heme doc at...

https://connect.mayoclinic.org/comment/929615/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023

Comment

I'm a 72 yrs. old and I was diagnosed with ET in 2011 when my platelet...

https://connect.mayoclinic.org/comment/635580/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2021

Comment

Penny...what was the determination? EV..PV? I too was diagnosed 3 years ago. BMB confirmed PV with...

https://connect.mayoclinic.org/comment/329374/

Discussion: JAK2 ASXL1 Mutations: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jan 15, 2021

Comment

Hello @sap21981 Welcome to Mayo Connect. I’m sure you’re in panic mode right now! Being a...

https://connect.mayoclinic.org/comment/886233/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2023

Comment

Hi shhanks. Welcome to the site. After I had seven vaccines (2 Moderna, 1 booster, 2...

https://connect.mayoclinic.org/comment/798922/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2023

Comment

I was diagnosed with JAK2 in early 2021. Taking the drug hydrea has put everything (RBC,...

https://connect.mayoclinic.org/comment/765304/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2022

Comment

Hi @lyno29, You posted: “I’m choosing not to do chemo, even though my doctor recommends it....

https://connect.mayoclinic.org/comment/1230545/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 6 8:47am

Comment

Hi @panamsandy, There are diets posted online to potentially lower platelets by reducing inflammation in the...

https://connect.mayoclinic.org/comment/1309518/

Discussion: Lowering platelet level with food

Support Group: Blood Cancers & Disorders

Posted: May 21 11:55am

Comment

Hi @nande. I jumped the gun with my comment and for that I apologize. I was...

https://connect.mayoclinic.org/comment/1319021/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Jun 2 10:08pm

Comment

Hi @lindagualtieri, Welcome to Connect. Looks like you’ve been dubbed with a new diagnosis and have...

https://connect.mayoclinic.org/comment/1146045/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2024