Blood Cancers & Disorders Support Group

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Comment

@luvs2dance Thank you for sharing. I'm sorry to hear that it has progressed to Myelofibrosis. How...

https://connect.mayoclinic.org/comment/1278844/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 10 5:09pm

Comment

I would recommend anyone on hydroxyurea to look into Besremi. It has been shown to significantly...

https://connect.mayoclinic.org/comment/1204661/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 5 2:12pm

Comment

Hi @pearly, Please note that the reply above was from @gael, who is also living with...

https://connect.mayoclinic.org/comment/50536/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2017

Comment

Sounds exactly like my story without the myelofibrosis. So many results from genetic and bone marrow...

https://connect.mayoclinic.org/comment/1203190/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 3 12:53pm

Comment

Had the uncontrollable itching about 5 years ago. No specialist had any idea what the cause...

https://connect.mayoclinic.org/comment/802925/

Discussion: Myelofibrosis or long Covid?

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2023

Comment

You will find on this site lot’s encouraging and people with words of wisdom on your...

https://connect.mayoclinic.org/comment/1312965/

Discussion: Primary Myelofibrosis: What is life going to be like now?

Support Group: Blood Cancers & Disorders

Posted: May 26 12:30am

Comment

Welcome to Connect, @tomatoes CAR-T (Chimeric Antigen Receptor T-cell) therapy is primarily used for certain types...

https://connect.mayoclinic.org/comment/1321477/

Discussion: Any information om using CAR-T cell techniques to treat myelofibrosis

Support Group: Blood Cancers & Disorders

Posted: Jun 6 10:00am

Comment

Sorry, but I find it difficult to know how to enter the discussion without just replying...

https://connect.mayoclinic.org/comment/1165808/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Oct 31, 2024

Comment

The way I understand it MPN specialists are hematologists with sub speciality of MPN’s such as...

https://connect.mayoclinic.org/comment/797781/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2023

Comment

Sounds like your in good hands. Yes, the liposomal Glutathione form is out front. It's recommended...

https://connect.mayoclinic.org/comment/132661/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2020