Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

475 total results

Comment

Hi, in this video, it is not clear what new drug or treatment this Doctor is...

https://connect.mayoclinic.org/comment/1256699/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2025

Comment

I am not an expert, but I would think a BM bx would allow the practitioner...

https://connect.mayoclinic.org/comment/877587/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2023

Comment

There is a lot of information but the final comment was: The patient’s positive CALR mutation...

https://connect.mayoclinic.org/comment/1256039/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2025

Comment

I was diagnosed with Myelofibrosis almost 2 1/2 years ago. Lost 50 pounds, have tremendous fatigue,...

https://connect.mayoclinic.org/comment/1005596/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 29, 2024

Comment

I have a different diagnosis than you so you can look at my list and substitute...

https://connect.mayoclinic.org/comment/1308354/

Discussion: Diagnosed with MGUS. What questions should I ask the hematologist?

Support Group: Blood Cancers & Disorders

Posted: May 20, 2025

Comment

Hi, @toste. I was diagnosed with prefibrotic myelofibrosis in June. JAK2, ASXL1, ZRSR2 & TET2 mutations....

https://connect.mayoclinic.org/comment/1433724/

Discussion: Are their support groups for Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2025

Comment

I was diagnosed with ET around 2002 and it transitioned to myelofibrosis 10 years ago. I've...

https://connect.mayoclinic.org/comment/1416511/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2025

Comment

JAK2 Myelofibrosis I have been on Ojjarra for almost three months. It is a half dose...

https://connect.mayoclinic.org/comment/1210536/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2025

Comment

I suffer from a mild myelofibrosis. From time to time, I am experiencing night sweats. Has...

https://connect.mayoclinic.org/comment/1193740/

Discussion: Primary Myelofibrosis: Continue watch & wait? 2nd opinion?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2024

Comment

Hi, @toste. I looked at your profile and see that you have found Myelofibrosis-related discussions and...

https://connect.mayoclinic.org/comment/1433259/

Discussion: Are their support groups for Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2025