Blood Cancers & Disorders Support Group

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Comment

They gave me nausea medication that I took initially. Obviously did not help. Diagnosis is myelodysplasia...

https://connect.mayoclinic.org/comment/1275078/

Discussion: I'm about to begin treatments with Vidaza, what should I know?

Support Group: Blood Cancers & Disorders

Posted: Apr 5, 2025

Comment

Good morning. I’m 71. I was diagnosed with myelofibrosis a few years ago. Was asymptomatic at...

https://connect.mayoclinic.org/comment/1502910/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 11 6:10am

Comment

@mirakrye Sorry to hear your diagnosis- I was also diagnosed with Myelofibrosis in 2025 but primary....

https://connect.mayoclinic.org/comment/1479767/

Discussion: Are there support groups for Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 11 2:07pm

Comment

Hello @derikburger and welcome to Mayo Clinic Connect. It sounds like you may have been diagnosed...

https://connect.mayoclinic.org/comment/674287/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2022

Comment

Hello @susanvij, Teresa, @hopeful33250 has provided some great information, and I would also encourage you to...

https://connect.mayoclinic.org/comment/50515/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2017

Comment

Hello @wellness3070, Connect members @jfinlay, @djr, @bijou have discussed Jakafi in the past as well; you...

https://connect.mayoclinic.org/comment/132602/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2017

Comment

Hi @raglus, I'm tagging @scottmatteo to make sure he sees your question about dietary changes. Have...

https://connect.mayoclinic.org/comment/859309/

Discussion: Primary Myelofibrosis diagnosis in 40’s

Support Group: Blood Cancers & Disorders

Posted: May 13, 2023

Comment

Welcome @iis. Are you asking whether the Jak2 mutation is hereditary? Here's more information that you...

https://connect.mayoclinic.org/comment/811076/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2023

Comment

Hi, in this video, it is not clear what new drug or treatment this Doctor is...

https://connect.mayoclinic.org/comment/1256699/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2025

Comment

My husband was diagnosed with myelofibrosis a month ago. He has had 6 platelet transfusions. His...

https://connect.mayoclinic.org/comment/1250056/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2025