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Blood Cancers & Disorders Support Group

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1,545 total results
Discussion
Just diagnoised with Amyloidosis, kappa light chain restricted.
Does anyone have AL Amyloidosis? If so could you share what treatment you were on and the outcome? I have MGUS, my kidney numbers dropped...
Last active: Nov 12 7:50pm
Discussion
Finding the best Curcumin
I am trying to find a good Curcumin supplement and could use some recommendations please. I am newly diagnosed with MGUS and want to do...
Last active: Aug 17 8:33am
Discussion
Vacuolated neutrophils: I'm worried what this means
I have cryoglobulinemia and mGUS. I have historically had low neutrophils on my complete blood counts but the last one they were undetectable. Upon further...
Last active: Jan 14, 2022
Discussion
Is it normal for free light chains to fluctuate?
Hi all, I hope you're all coping okay with whatever life is throwing at you at the moment. I have IGG lambda MGUS. My M-Spike...
Last active: Oct 29 3:16pm
Discussion
Tests for blood cancer ...the bills!!
I've been getting blood tests through Mayo Clinic to monitor MGUS. I recently became covered by Medicare. My bill has jumped up to near $500...
Last active: Dec 27, 2018
Discussion
How high should my Kappa light chain continue to rise before I worry.?
My Kappa light chains continue to rise each time I have my labs run. They are now 90. The ratio rises also. But everything else...
Last active: Apr 13 8:57am
Discussion
Jak 2 and Waldenstrom's Macroglobulinemia
Hi to all on this group. I was diagnosed with jak 2 and mgus in 2016 and then Waldromstrom Macroglobulinemia(WM) in august 2019. The hematology/oncology...
Last active: Mar 10, 2021
Discussion
A Pint of Sweat, Saves a Gallon of Blood
That's from George Patton I have a bloody dilemma. I have chronic anemia, although my iron levels are fine. I have MGUS, which I am...
Last active: Feb 29 3:59pm
Discussion
possible Myeloma ? big shocking surprise !!
Just received 2nd blood work results .... Quest's 1st blood work "Interpretation" was Possible monoclonal protein (M-protein) present. Suggest serum immunofixation. Had 2nd blood work...
Last active: Nov 18, 2022
Discussion
Anyone Else with Waldenstrom's and COPD?
I was diagnosed in February with Waldenstrom's. Here's my blood work just before the bone marrow biopsy. My IgM count last month was 634. CBC...
Last active: Jan 6 12:52pm