Blood Cancers & Disorders Support Group

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Comment

I started Jakafi about two weeks ago and so far so good. Medicare now as a...

https://connect.mayoclinic.org/comment/1011282/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2024

Comment

@loribmt - @loribmt Thanks for this encouragement! I believe we are under great care provided by...

https://connect.mayoclinic.org/comment/1521631/

Discussion: This is new, overwhelming. Wife is diagnosed with PV, we need support

Support Group: Blood Cancers & Disorders

Posted: Mar 7 10:02am

Comment

I am about to start the drug Jakafi. Has anyone taken it and what were the...

https://connect.mayoclinic.org/comment/1269462/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2025

Comment

I have Polycythemia Vera with Jak2 an 76 years old and diagnosed 3 yrs ago. My...

https://connect.mayoclinic.org/comment/1222785/

Discussion: Polycythemia Vera and low iron

Support Group: Blood Cancers & Disorders

Posted: Jan 27, 2025

Comment

Hi @pamdg, You’re wondering if Jakafi can cause irregular heartbeat. I’m looking at the Drugs.com website...

https://connect.mayoclinic.org/comment/699161/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2022

Comment

I have PV and have burning in my feet and calves. I’m taking Jakafi and low...

https://connect.mayoclinic.org/comment/856373/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: May 8, 2023

Comment

I had read in one article that Jakafi raises platelet levels which would increase clotting chances.

https://connect.mayoclinic.org/comment/751331/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2022

Comment

Hello, I heard the Jakafi is really expensive. I am happy that you are able to...

https://connect.mayoclinic.org/comment/1010332/

Discussion: ET management, Is anyone here taking Jakafi or Pegasus?

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

Comment

I have the very same side effects however I feel so much better then before Jakafi.

https://connect.mayoclinic.org/comment/914535/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2023

Comment

Just switched to Jakafi this past week. So far no improvement but I will give it...

https://connect.mayoclinic.org/comment/1279893/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2025