Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

291 total results

Comment

In regards to your question #3, I have yet to find anywhere that has a use...

https://connect.mayoclinic.org/comment/194257/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2018

Comment

Good morning, @serenity55 I love your @name of Serenity. It’s a word in my morning affirmations…and...

https://connect.mayoclinic.org/comment/828909/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2023

Comment

To determine if I still had polycythemia vera or myelofibrosis a bone marrow biopsy was done...

https://connect.mayoclinic.org/comment/876362/

Discussion: Delayed pain after bone marrow biopsy??

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2023

Comment

Hi @margrethe, I can imagine with such a new diagnosis, yet to be confirmed you have...

https://connect.mayoclinic.org/comment/873136/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

Comment

Hi @onthejoedock Polycythemia vera is a type of cancer that causes red blood cells to multiply....

https://connect.mayoclinic.org/comment/1009341/

Discussion: How bad is a diagnosis of Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Feb 4 9:50am

Comment

I was diagnosed at age 46 with Polycythemia Vera and am JAK-2 positive. My treatments have...

https://connect.mayoclinic.org/comment/194278/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2019

Comment

I'm 19 years old, male. I have noted my elevated Hb level since three years ago,...

https://connect.mayoclinic.org/comment/1008041/

Discussion: Polycythemia Vera - Help getting Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Feb 1 8:13pm

Comment

@lwengel, as you likely already know, the USA Food and Drug Administration (FDA) approved December, 2014...

https://connect.mayoclinic.org/comment/751307/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2022

Comment

Hello, @upnorth94 Hydroxyurea is the classic medication for PV. But it’s not for everyone. You mentioned...

https://connect.mayoclinic.org/comment/893496/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2023

Comment

Further research into my hematocrit problem revealed that if you have polycythemia vera long enough it...

https://connect.mayoclinic.org/comment/843456/

Discussion: Hematocrit Continues to Drop After Stopping Hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2023