Blood Cancers & Disorders Support Group

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Comment

@shorelady, I'd like to add my welcome along with @gingerw and tagging other members who have...

https://connect.mayoclinic.org/comment/807258/

Discussion: Amyloidisis of the mouth and myeloma

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2023

Comment

My first sign of Amyloidosis was increased protein in my urine….. Had a 24hr urine &...

https://connect.mayoclinic.org/comment/1119946/

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2024

Comment

Pyrophosphate scans , history and labs with a doctor knowledgeable about the different forms of Amyloidosis

https://connect.mayoclinic.org/comment/754613/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2022

Comment

Thanks for pointing that out, @azlatina. Unfortunately that webinar is no longer available. However, here are...

https://connect.mayoclinic.org/comment/732756/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2022

Comment

Welcome, @chrissteyn51. I moved your question about medications for amyloidosis ATTR to this existing discussion to...

https://connect.mayoclinic.org/comment/1265776/

Discussion: Wild-type ATTR Amyloidosis (ATTRwt): What meds help you?

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2025

Comment

@babesmom, have you received the results of the scan? What led to your doctor wanted to...

https://connect.mayoclinic.org/comment/1191946/

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2024

Comment

Good morning, @sherryzitter. I’m so happy to see you’re jumping in with both feet into this...

https://connect.mayoclinic.org/comment/1042022/

Discussion: Abnormal bloodwork questions

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2024

Comment

You're welcome. I hope you find some answers. I have AL Amyloidosis, there is another type...

https://connect.mayoclinic.org/comment/1120802/

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2024

Comment

Yes it is more specific for cardiac Amyloidosis always varying opinions for testing protocols Sent from...

https://connect.mayoclinic.org/comment/754874/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 28, 2022

Comment

My husband was diagnosed with Acquired von Willebrand Syndrome almost a year ago today. Six months...

https://connect.mayoclinic.org/comment/1180018/

Discussion: Acquired Von Willebrand syndrome

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2024