Blood Cancers & Disorders Support Group

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Comment

Welcome, @rspriggle. I can only imagine your shock of receiving the diagnosis of primary myelofibrosis, especially...

https://connect.mayoclinic.org/comment/616932/

Discussion: Primary Myelofibrosis diagnosis in 40’s

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2021

Comment

I too have Myelofibrosis I did a bone marrow biopsy prior to starting Jakafi. They did...

https://connect.mayoclinic.org/comment/1099094/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jul 4 10:02am

Comment

My wife was diagnosed with MF 4 months ago due to MPL mutation. We just heard...

https://connect.mayoclinic.org/comment/132606/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2017

Comment

I was diagnosed by Mayo with myelofibrosis several years ago. Since then, various clinics have repeatedly...

https://connect.mayoclinic.org/comment/699543/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2022

Comment

Hi @mahmoudbakry. Sometimes diagnosing a blood condition can be like unraveling a complicated mystery with an...

https://connect.mayoclinic.org/comment/1044404/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Apr 2 7:12pm

Comment

:Yes I am being treated for myelofibrosis with Jakafi. I was never able to take the...

https://connect.mayoclinic.org/comment/1099091/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jul 4 9:57am

Comment

Hi @wellness3070. I'd also like to introduce you to other members who have myelofibrosis or are...

https://connect.mayoclinic.org/comment/132597/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2017

Comment

Welcome to Connect, @dot65. I moved your message to this discussion so you could meet others...

https://connect.mayoclinic.org/comment/132608/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2017

Comment

NAC sounds interesting. My pains are not from myelofibrosis. I don't have bone pain these days....

https://connect.mayoclinic.org/comment/132662/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2020

Comment

Have you also been given Allopurinol to prevent gout and cramps - stops the build up...

https://connect.mayoclinic.org/comment/943396/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2023