Blood Cancers & Disorders Support Group

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Comment

Hello sorry for delayed response. I have had PV with JAK2 for almost 5 years. I...

https://connect.mayoclinic.org/comment/788322/

Discussion: Anyone with PV have insensitivity to cold?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2022

Comment

If you don't want to take a chemo drug, you could ask about Pegasys (interferon). I...

https://connect.mayoclinic.org/comment/764406/

Discussion: Essential Thrombocytosis - what's your experience with Jakifi?

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2022

Comment

Glad it helped! I hate adding more pills to my daily routine, but that itching can...

https://connect.mayoclinic.org/comment/1203737/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: 5 days ago

Comment

Does anyone else have severe itching and tingling all over really bad at night I have...

https://connect.mayoclinic.org/comment/1088584/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2024

Comment

I understand that itching too well, when I first got diagnosed with PV I went through...

https://connect.mayoclinic.org/comment/895517/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

Comment

I’m 78, diagnosed in 2021 with pv. On hydroxyurea 1000mg and hematocrit stays at 45. Itching...

https://connect.mayoclinic.org/comment/833829/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2023

Comment

I was diagnosed with MF. I have itching on my buttocks and upper legs. I also...

https://connect.mayoclinic.org/comment/1111433/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2024

Comment

This what I found Many researchers believe it is caused cytokines; chemicals released into the blood...

https://connect.mayoclinic.org/comment/959412/

Discussion: Has anyone else experienced frequent infections and itching with CLL?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2023

Comment

I talked to my oncologist and she said that because our basophils and eosinophils are abnormal...

https://connect.mayoclinic.org/comment/962671/

Discussion: Has anyone else experienced frequent infections and itching with CLL?

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2023

Comment

@claire39, does redness of your scalp cause you any other symptoms like itching or discomfort? Has...

https://connect.mayoclinic.org/comment/146299/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2020