Blood Cancers & Disorders Support Group

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339 total results

Comment

@babesmom, have you received the results of the scan? What led to your doctor wanted to...

https://connect.mayoclinic.org/comment/1191946/

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2024

Comment

Find out tomorrow what my regime of Chemo will be !!! Hopefully. How did they find...

https://connect.mayoclinic.org/comment/1476614/

Discussion: Does anyone have Amyloidosis as their primary condition?

Support Group: Blood Cancers & Disorders

Posted: Jan 7 11:02am

Comment

Yes it is more specific for cardiac Amyloidosis always varying opinions for testing protocols Sent from...

https://connect.mayoclinic.org/comment/754874/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 28, 2022

Comment

My husband was diagnosed with Acquired von Willebrand Syndrome almost a year ago today. Six months...

https://connect.mayoclinic.org/comment/1180018/

Discussion: Acquired Von Willebrand syndrome

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2024

Comment

My husband was diagnosed with Cardiac Amyloidosis recently at Mayo Clinic. He had 2 biopsies to...

https://connect.mayoclinic.org/comment/898857/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

Comment

Hi @colleenyoung , The links dont seem to work any longer. Are there updated ones we...

https://connect.mayoclinic.org/comment/732533/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2022

Comment

Also for those with cardiac amyloidosis and AFib green tea may not be recommended due to...

https://connect.mayoclinic.org/comment/678281/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2022

Comment

Diagnosed over 5 years ago with light chain amyloidosis and multiple myeloma. Did the 6 month...

https://connect.mayoclinic.org/comment/1479194/

Discussion: Does anyone have Amyloidosis as their primary condition?

Support Group: Blood Cancers & Disorders

Posted: Jan 10 7:42pm

Comment

How were you diagnosed with MGUS without the BMB? I am new to this. I have...

https://connect.mayoclinic.org/comment/1333678/

Discussion: Bone marrow biopsy and/or blood tests for MGUS

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2025

Comment

Thank you for recommending a consult with a a Mayo doctor specializing in both WM and...

https://connect.mayoclinic.org/comment/687250/

Discussion: Advice for Amyloidosis with Waldenstrom's macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2022