Blood Cancers & Disorders Support Group

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Comment

Has anyone diagnosed with type AL Amyloidosis had success after treatment with Darzalex? If so, how...

https://connect.mayoclinic.org/comment/104724/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2018

Comment

Good morning, @pices and welcome to Mayo Clinic Connect. We have some current members in our...

https://connect.mayoclinic.org/comment/722050/

Discussion: Waldenstrom Macroglobulinemia with MYD88-wild type

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2022

Comment

Just read about a support group for lymphoma patients, and wondering if I could be connected...

https://connect.mayoclinic.org/comment/196639/

Discussion: Support groups for lymphoma patients

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2018

Comment

Hi @patio29dadio, welcome. You're facing some big decisions. Allow me to bring in fellow members who...

https://connect.mayoclinic.org/comment/687154/

Discussion: Advice for Amyloidosis with Waldenstrom's macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2022

Comment

Julie, I moved your message to the Cancer group where you can meet others who may...

https://connect.mayoclinic.org/comment/113902/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Sep 8, 2016

Comment

ah. Are you concerned there could be other things happening like amyloidosis? I'm the worrier who...

https://connect.mayoclinic.org/comment/1118177/

Discussion: Paraprotein & Light chains

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2024

Comment

I’m trying to connect with someone who not only has multiple myeloma but also amyloidosis to...

https://connect.mayoclinic.org/comment/873112/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

Comment

I had lab work for Amyloidosis and everything was good. Does that mean I dont have...

https://connect.mayoclinic.org/comment/1185293/

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2024

Comment

Are you retaining fluid? This could be causing your shortness of breath. Normally 95% O2 wouldn't...

https://connect.mayoclinic.org/comment/1318883/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Jun 2 6:13pm

Comment

@loribmt thank you for this really helpful post, Lori! I had shortness of breath since 2013,...

https://connect.mayoclinic.org/comment/1041665/

Discussion: Abnormal bloodwork questions

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2024